Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur. J. Hum. Genet. 2013
Times Cited: 46
Times Cited: 46
Times Cited
Citation Count
Similarity
Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.
Lisa Soleymani Lehmann, David J Kaufman, Richard R Sharp, Tanya A Moreno, Joanna L Mountain, J Scott Roberts, Robert C Green. Genet. Med. 2012
Lisa Soleymani Lehmann, David J Kaufman, Richard R Sharp, Tanya A Moreno, Joanna L Mountain, J Scott Roberts, Robert C Green. Genet. Med. 2012
11
Impact of direct-to-consumer genomic testing at long term follow-up.
Cinnamon S Bloss, Nathan E Wineinger, Burcu F Darst, Nicholas J Schork, Eric J Topol. J. Med. Genet. 2013
Cinnamon S Bloss, Nathan E Wineinger, Burcu F Darst, Nicholas J Schork, Eric J Topol. J. Med. Genet. 2013
4
Effect of direct-to-consumer genetic tests on health behaviour and anxiety: a survey of consumers and potential consumers.
Corin Egglestone, Anne Morris, Ann O'Brien. J Genet Couns 2013
Corin Egglestone, Anne Morris, Ann O'Brien. J Genet Couns 2013
9
"It's not like judgment day": public understanding of and reactions to personalized genomic risk information.
Erynn S Gordon, Georgia Griffin, Lisa Wawak, Hauchie Pang, Sarah E Gollust, Barbara A Bernhardt. J Genet Couns 2012
Erynn S Gordon, Georgia Griffin, Lisa Wawak, Hauchie Pang, Sarah E Gollust, Barbara A Bernhardt. J Genet Couns 2012
5
Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic.
Katherine M James, Clayton T Cowl, Jon C Tilburt, Pamela S Sinicrope, Marguerite E Robinson, Katrin R Frimannsdottir, Kristina Tiedje, Barbara A Koenig. Mayo Clin. Proc. 2011
Katherine M James, Clayton T Cowl, Jon C Tilburt, Pamela S Sinicrope, Marguerite E Robinson, Katrin R Frimannsdottir, Kristina Tiedje, Barbara A Koenig. Mayo Clin. Proc. 2011
7
Effect of direct-to-consumer genomewide profiling to assess disease risk.
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N. Engl. J. Med. 2011
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N. Engl. J. Med. 2011
4
Informed choice in direct-to-consumer genetic testing (DTCGT) websites: a content analysis of benefits, risks, and limitations.
Amanda Singleton, Lori Hamby Erby, Kathryn V Foisie, Kimberly A Kaphingst. J Genet Couns 2012
Amanda Singleton, Lori Hamby Erby, Kathryn V Foisie, Kimberly A Kaphingst. J Genet Couns 2012
6
Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants.
S E Gollust, E S Gordon, C Zayac, G Griffin, M F Christman, R E Pyeritz, L Wawak, B A Bernhardt. Public Health Genomics 2012
S E Gollust, E S Gordon, C Zayac, G Griffin, M F Christman, R E Pyeritz, L Wawak, B A Bernhardt. Public Health Genomics 2012
4
Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study.
E Vayena, E Gourna, J Streuli, E Hafen, B Prainsack. Public Health Genomics 2012
E Vayena, E Gourna, J Streuli, E Hafen, B Prainsack. Public Health Genomics 2012
6
4
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
4
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
4
Incidental findings of therapeutic misconception in biobank-based research.
Colin M E Halverson, Lainie Friedman Ross. Genet. Med. 2012
Colin M E Halverson, Lainie Friedman Ross. Genet. Med. 2012
7
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
4
Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project.
Leslie G Biesecker. Genet. Med. 2012
Leslie G Biesecker. Genet. Med. 2012
4
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
4
The evolution of consent forms for research: a quarter century of changes.
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
5
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
4
Incidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).
Ebony B Bookman, Corina Din-Lovinescu, Bradford B Worrall, Teri A Manolio, Siiri N Bennett, Cathy Laurie, Daniel B Mirel, Kimberly F Doheny, Garnet L Anderson, Kate Wehr,[...]. Genome Med 2013
Ebony B Bookman, Corina Din-Lovinescu, Bradford B Worrall, Teri A Manolio, Siiri N Bennett, Cathy Laurie, Daniel B Mirel, Kimberly F Doheny, Garnet L Anderson, Kate Wehr,[...]. Genome Med 2013
20
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
4
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
4
Assessment of the content and process of genetic counseling: a critical review of empirical studies.
Bettina Meiser, Jennifer Irle, Elizabeth Lobb, Kristine Barlow-Stewart. J Genet Couns 2008
Bettina Meiser, Jennifer Irle, Elizabeth Lobb, Kristine Barlow-Stewart. J Genet Couns 2008
4
What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report.
Belen Hurle, Toby Citrin, Jean F Jenkins, Kimberly A Kaphingst, Neil Lamb, Jo Ellen Roseman, Vence L Bonham. Genet. Med. 2013
Belen Hurle, Toby Citrin, Jean F Jenkins, Kimberly A Kaphingst, Neil Lamb, Jo Ellen Roseman, Vence L Bonham. Genet. Med. 2013
4
Computerized prenatal genetic testing decision-assisting tool: a randomized controlled trial.
Miriam Kuppermann, Mary E Norton, Elena Gates, Steven E Gregorich, Lee A Learman, Sanae Nakagawa, Vickie A Feldstein, James Lewis, A Eugene Washington, Robert F Nease. Obstet Gynecol 2009
Miriam Kuppermann, Mary E Norton, Elena Gates, Steven E Gregorich, Lee A Learman, Sanae Nakagawa, Vickie A Feldstein, James Lewis, A Eugene Washington, Robert F Nease. Obstet Gynecol 2009
4
The multi-dimensional measure of informed choice: a validation study.
Susan Michie, Elizabeth Dormandy, Theresa M Marteau. Patient Educ Couns 2002
Susan Michie, Elizabeth Dormandy, Theresa M Marteau. Patient Educ Couns 2002
4
Knowledge of prenatal screening and psychological management of test decisions.
K Dahl, L Hvidman, F S Jørgensen, U S Kesmodel. Ultrasound Obstet Gynecol 2011
K Dahl, L Hvidman, F S Jørgensen, U S Kesmodel. Ultrasound Obstet Gynecol 2011
7
Development of a measure of informed choice suitable for use in low literacy populations.
Elizabeth Dormandy, Elaine Y L Tsui, Theresa M Marteau. Patient Educ Couns 2007
Elizabeth Dormandy, Elaine Y L Tsui, Theresa M Marteau. Patient Educ Couns 2007
8
Risk and uncertainty: shifting decision making for aneuploidy screening to the first trimester of pregnancy.
Ruth M Farrell, Natasha Dolgin, Susan A Flocke, Victoria Winbush, Mary Beth Mercer, Christian Simon. Genet. Med. 2011
Ruth M Farrell, Natasha Dolgin, Susan A Flocke, Victoria Winbush, Mary Beth Mercer, Christian Simon. Genet. Med. 2011
11
Informed decision making in the context of prenatal screening.
Matthijs van den Berg, Danielle R M Timmermans, Leo P ten Kate, John M G van Vugt, Gerrit van der Wal. Patient Educ Couns 2006
Matthijs van den Berg, Danielle R M Timmermans, Leo P ten Kate, John M G van Vugt, Gerrit van der Wal. Patient Educ Couns 2006
4
Are pregnant Australian women well informed about prenatal genetic screening? A systematic investigation using the Multidimensional Measure of Informed Choice.
Heather J Rowe, Jane R W Fisher, Julie A Quinlivan. Aust N Z J Obstet Gynaecol 2006
Heather J Rowe, Jane R W Fisher, Julie A Quinlivan. Aust N Z J Obstet Gynaecol 2006
4
Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.
Nadine A Kasparian, Claire E Wakefield, Bettina Meiser. J Genet Couns 2007
Nadine A Kasparian, Claire E Wakefield, Bettina Meiser. J Genet Couns 2007
4
Informed decision making: an annotated bibliography and systematic review.
H Bekker, J G Thornton, C M Airey, J B Connelly, J Hewison, M B Robinson, J Lilleyman, M MacIntosh, A J Maule, S Michie,[...]. Health Technol Assess 1999
H Bekker, J G Thornton, C M Airey, J B Connelly, J Hewison, M B Robinson, J Lilleyman, M MacIntosh, A J Maule, S Michie,[...]. Health Technol Assess 1999
4
Challenges in the clinical application of whole-genome sequencing.
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
4
Views of genetics health professionals on the return of genomic results.
Megan E Grove, Maya N Wolpert, Mildred K Cho, Sandra Soo-Jin Lee, Kelly E Ormond. J Genet Couns 2014
Megan E Grove, Maya N Wolpert, Mildred K Cho, Sandra Soo-Jin Lee, Kelly E Ormond. J Genet Couns 2014
6
New challenges for informed consent through whole genome array testing.
C Netzer, C Klein, J Kohlhase, C Kubisch. J. Med. Genet. 2009
C Netzer, C Klein, J Kohlhase, C Kubisch. J. Med. Genet. 2009
6
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
4
Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
6
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
4
Incidental findings in genetics research using archived DNA.
Ellen Wright Clayton. J Law Med Ethics 2008
Ellen Wright Clayton. J Law Med Ethics 2008
5
5
Association of risk-reducing surgery in BRCA1 or BRCA2 mutation carriers with cancer risk and mortality.
Susan M Domchek, Tara M Friebel, Christian F Singer, D Gareth Evans, Henry T Lynch, Claudine Isaacs, Judy E Garber, Susan L Neuhausen, Ellen Matloff, Rosalind Eeles,[...]. JAMA 2010
Susan M Domchek, Tara M Friebel, Christian F Singer, D Gareth Evans, Henry T Lynch, Claudine Isaacs, Judy E Garber, Susan L Neuhausen, Ellen Matloff, Rosalind Eeles,[...]. JAMA 2010
4
American Society of Clinical Oncology policy statement update: genetic and genomic testing for cancer susceptibility.
Mark E Robson, Courtney D Storm, Jeffrey Weitzel, Dana S Wollins, Kenneth Offit. J. Clin. Oncol. 2010
Mark E Robson, Courtney D Storm, Jeffrey Weitzel, Dana S Wollins, Kenneth Offit. J. Clin. Oncol. 2010
4
Multiplex genetic testing for cancer susceptibility: out on the high wire without a net?
Susan M Domchek, Angela Bradbury, Judy E Garber, Kenneth Offit, Mark E Robson. J. Clin. Oncol. 2013
Susan M Domchek, Angela Bradbury, Judy E Garber, Kenneth Offit, Mark E Robson. J. Clin. Oncol. 2013
4
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am. J. Epidemiol. 2014
Christine Weiner. Am. J. Epidemiol. 2014
4
Goals, benefits, and outcomes of genetic counseling: client and genetic counselor assessment.
B A Bernhardt, B B Biesecker, C L Mastromarino. Am. J. Med. Genet. 2000
B A Bernhardt, B B Biesecker, C L Mastromarino. Am. J. Med. Genet. 2000
4
Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing.
Megan Allyse, Marsha Michie. Trends Biotechnol. 2013
Megan Allyse, Marsha Michie. Trends Biotechnol. 2013
4
Knowledge and attitudes regarding expanded genetic carrier screening among women's healthcare providers.
Kaylene Ready, Imran S Haque, Balaji S Srinivasan, John R Marshall. Fertil. Steril. 2012
Kaylene Ready, Imran S Haque, Balaji S Srinivasan, John R Marshall. Fertil. Steril. 2012
8
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