Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur. J. Hum. Genet. 2013
Times Cited: 48
Times Cited: 48
Times Cited
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Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
6
DNA databanks and consent: a suggested policy option involving an authorization model.
Timothy Caulfield, Ross E G Upshur, Abdallah Daar. BMC Med Ethics 2003
Timothy Caulfield, Ross E G Upshur, Abdallah Daar. BMC Med Ethics 2003
6
Broad versus blanket consent for research with human biological samples.
David Wendler. Hastings Cent Rep 2013
David Wendler. Hastings Cent Rep 2013
23
Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. 2012
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. 2012
6
Women's experiences receiving abnormal prenatal chromosomal microarray testing results.
Barbara A Bernhardt, Danielle Soucier, Karen Hanson, Melissa S Savage, Laird Jackson, Ronald J Wapner. Genet. Med. 2013
Barbara A Bernhardt, Danielle Soucier, Karen Hanson, Melissa S Savage, Laird Jackson, Ronald J Wapner. Genet. Med. 2013
4
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Med. Genet. A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Med. Genet. A 2013
4
Patients' understanding of and responses to multiplex genetic susceptibility test results.
Kimberly A Kaphingst, Colleen M McBride, Christopher Wade, Sharon Hensley Alford, Robert Reid, Eric Larson, Andreas D Baxevanis, Lawrence C Brody. Genet. Med. 2012
Kimberly A Kaphingst, Colleen M McBride, Christopher Wade, Sharon Hensley Alford, Robert Reid, Eric Larson, Andreas D Baxevanis, Lawrence C Brody. Genet. Med. 2012
4
Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.
Lisa Soleymani Lehmann, David J Kaufman, Richard R Sharp, Tanya A Moreno, Joanna L Mountain, J Scott Roberts, Robert C Green. Genet. Med. 2012
Lisa Soleymani Lehmann, David J Kaufman, Richard R Sharp, Tanya A Moreno, Joanna L Mountain, J Scott Roberts, Robert C Green. Genet. Med. 2012
10
Impact of direct-to-consumer genomic testing at long term follow-up.
Cinnamon S Bloss, Nathan E Wineinger, Burcu F Darst, Nicholas J Schork, Eric J Topol. J. Med. Genet. 2013
Cinnamon S Bloss, Nathan E Wineinger, Burcu F Darst, Nicholas J Schork, Eric J Topol. J. Med. Genet. 2013
4
Effect of direct-to-consumer genetic tests on health behaviour and anxiety: a survey of consumers and potential consumers.
Corin Egglestone, Anne Morris, Ann O'Brien. J Genet Couns 2013
Corin Egglestone, Anne Morris, Ann O'Brien. J Genet Couns 2013
9
"It's not like judgment day": public understanding of and reactions to personalized genomic risk information.
Erynn S Gordon, Georgia Griffin, Lisa Wawak, Hauchie Pang, Sarah E Gollust, Barbara A Bernhardt. J Genet Couns 2012
Erynn S Gordon, Georgia Griffin, Lisa Wawak, Hauchie Pang, Sarah E Gollust, Barbara A Bernhardt. J Genet Couns 2012
5
Impact of direct-to-consumer predictive genomic testing on risk perception and worry among patients receiving routine care in a preventive health clinic.
Katherine M James, Clayton T Cowl, Jon C Tilburt, Pamela S Sinicrope, Marguerite E Robinson, Katrin R Frimannsdottir, Kristina Tiedje, Barbara A Koenig. Mayo Clin. Proc. 2011
Katherine M James, Clayton T Cowl, Jon C Tilburt, Pamela S Sinicrope, Marguerite E Robinson, Katrin R Frimannsdottir, Kristina Tiedje, Barbara A Koenig. Mayo Clin. Proc. 2011
7
Effect of direct-to-consumer genomewide profiling to assess disease risk.
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N. Engl. J. Med. 2011
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N. Engl. J. Med. 2011
4
Informed choice in direct-to-consumer genetic testing (DTCGT) websites: a content analysis of benefits, risks, and limitations.
Amanda Singleton, Lori Hamby Erby, Kathryn V Foisie, Kimberly A Kaphingst. J Genet Couns 2012
Amanda Singleton, Lori Hamby Erby, Kathryn V Foisie, Kimberly A Kaphingst. J Genet Couns 2012
6
Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants.
S E Gollust, E S Gordon, C Zayac, G Griffin, M F Christman, R E Pyeritz, L Wawak, B A Bernhardt. Public Health Genomics 2012
S E Gollust, E S Gordon, C Zayac, G Griffin, M F Christman, R E Pyeritz, L Wawak, B A Bernhardt. Public Health Genomics 2012
4
Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study.
E Vayena, E Gourna, J Streuli, E Hafen, B Prainsack. Public Health Genomics 2012
E Vayena, E Gourna, J Streuli, E Hafen, B Prainsack. Public Health Genomics 2012
6
4
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
4
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
4
Incidental findings of therapeutic misconception in biobank-based research.
Colin M E Halverson, Lainie Friedman Ross. Genet. Med. 2012
Colin M E Halverson, Lainie Friedman Ross. Genet. Med. 2012
7
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
4
Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project.
Leslie G Biesecker. Genet. Med. 2012
Leslie G Biesecker. Genet. Med. 2012
4
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
4
The evolution of consent forms for research: a quarter century of changes.
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
5
Incidental genetic findings in randomized clinical trials: recommendations from the Genomics and Randomized Trials Network (GARNET).
Ebony B Bookman, Corina Din-Lovinescu, Bradford B Worrall, Teri A Manolio, Siiri N Bennett, Cathy Laurie, Daniel B Mirel, Kimberly F Doheny, Garnet L Anderson, Kate Wehr,[...]. Genome Med 2013
Ebony B Bookman, Corina Din-Lovinescu, Bradford B Worrall, Teri A Manolio, Siiri N Bennett, Cathy Laurie, Daniel B Mirel, Kimberly F Doheny, Garnet L Anderson, Kate Wehr,[...]. Genome Med 2013
20
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
4
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
4
Assessment of the content and process of genetic counseling: a critical review of empirical studies.
Bettina Meiser, Jennifer Irle, Elizabeth Lobb, Kristine Barlow-Stewart. J Genet Couns 2008
Bettina Meiser, Jennifer Irle, Elizabeth Lobb, Kristine Barlow-Stewart. J Genet Couns 2008
4
What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report.
Belen Hurle, Toby Citrin, Jean F Jenkins, Kimberly A Kaphingst, Neil Lamb, Jo Ellen Roseman, Vence L Bonham. Genet. Med. 2013
Belen Hurle, Toby Citrin, Jean F Jenkins, Kimberly A Kaphingst, Neil Lamb, Jo Ellen Roseman, Vence L Bonham. Genet. Med. 2013
4
A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
4
Computerized prenatal genetic testing decision-assisting tool: a randomized controlled trial.
Miriam Kuppermann, Mary E Norton, Elena Gates, Steven E Gregorich, Lee A Learman, Sanae Nakagawa, Vickie A Feldstein, James Lewis, A Eugene Washington, Robert F Nease. Obstet Gynecol 2009
Miriam Kuppermann, Mary E Norton, Elena Gates, Steven E Gregorich, Lee A Learman, Sanae Nakagawa, Vickie A Feldstein, James Lewis, A Eugene Washington, Robert F Nease. Obstet Gynecol 2009
4
The multi-dimensional measure of informed choice: a validation study.
Susan Michie, Elizabeth Dormandy, Theresa M Marteau. Patient Educ Couns 2002
Susan Michie, Elizabeth Dormandy, Theresa M Marteau. Patient Educ Couns 2002
4
Knowledge of prenatal screening and psychological management of test decisions.
K Dahl, L Hvidman, F S Jørgensen, U S Kesmodel. Ultrasound Obstet Gynecol 2011
K Dahl, L Hvidman, F S Jørgensen, U S Kesmodel. Ultrasound Obstet Gynecol 2011
7
Development of a measure of informed choice suitable for use in low literacy populations.
Elizabeth Dormandy, Elaine Y L Tsui, Theresa M Marteau. Patient Educ Couns 2007
Elizabeth Dormandy, Elaine Y L Tsui, Theresa M Marteau. Patient Educ Couns 2007
8
Risk and uncertainty: shifting decision making for aneuploidy screening to the first trimester of pregnancy.
Ruth M Farrell, Natasha Dolgin, Susan A Flocke, Victoria Winbush, Mary Beth Mercer, Christian Simon. Genet. Med. 2011
Ruth M Farrell, Natasha Dolgin, Susan A Flocke, Victoria Winbush, Mary Beth Mercer, Christian Simon. Genet. Med. 2011
11
Informed decision making in the context of prenatal screening.
Matthijs van den Berg, Danielle R M Timmermans, Leo P ten Kate, John M G van Vugt, Gerrit van der Wal. Patient Educ Couns 2006
Matthijs van den Berg, Danielle R M Timmermans, Leo P ten Kate, John M G van Vugt, Gerrit van der Wal. Patient Educ Couns 2006
4
Are pregnant Australian women well informed about prenatal genetic screening? A systematic investigation using the Multidimensional Measure of Informed Choice.
Heather J Rowe, Jane R W Fisher, Julie A Quinlivan. Aust N Z J Obstet Gynaecol 2006
Heather J Rowe, Jane R W Fisher, Julie A Quinlivan. Aust N Z J Obstet Gynaecol 2006
4
Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.
Nadine A Kasparian, Claire E Wakefield, Bettina Meiser. J Genet Couns 2007
Nadine A Kasparian, Claire E Wakefield, Bettina Meiser. J Genet Couns 2007
4
Informed decision making: an annotated bibliography and systematic review.
H Bekker, J G Thornton, C M Airey, J B Connelly, J Hewison, M B Robinson, J Lilleyman, M MacIntosh, A J Maule, S Michie,[...]. Health Technol Assess 1999
H Bekker, J G Thornton, C M Airey, J B Connelly, J Hewison, M B Robinson, J Lilleyman, M MacIntosh, A J Maule, S Michie,[...]. Health Technol Assess 1999
4
Challenges in the clinical application of whole-genome sequencing.
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
4
Views of genetics health professionals on the return of genomic results.
Megan E Grove, Maya N Wolpert, Mildred K Cho, Sandra Soo-Jin Lee, Kelly E Ormond. J Genet Couns 2014
Megan E Grove, Maya N Wolpert, Mildred K Cho, Sandra Soo-Jin Lee, Kelly E Ormond. J Genet Couns 2014
6
New challenges for informed consent through whole genome array testing.
C Netzer, C Klein, J Kohlhase, C Kubisch. J. Med. Genet. 2009
C Netzer, C Klein, J Kohlhase, C Kubisch. J. Med. Genet. 2009
6
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
4
Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
6
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
4
Incidental findings in genetics research using archived DNA.
Ellen Wright Clayton. J Law Med Ethics 2008
Ellen Wright Clayton. J Law Med Ethics 2008
4
5
Association of risk-reducing surgery in BRCA1 or BRCA2 mutation carriers with cancer risk and mortality.
Susan M Domchek, Tara M Friebel, Christian F Singer, D Gareth Evans, Henry T Lynch, Claudine Isaacs, Judy E Garber, Susan L Neuhausen, Ellen Matloff, Rosalind Eeles,[...]. JAMA 2010
Susan M Domchek, Tara M Friebel, Christian F Singer, D Gareth Evans, Henry T Lynch, Claudine Isaacs, Judy E Garber, Susan L Neuhausen, Ellen Matloff, Rosalind Eeles,[...]. JAMA 2010
4
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