Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio, Richard R Fabsitz, Russell V Luepker. Am J Med Genet A 2006
Times Cited: 149
Times Cited: 149
Times Cited
Times Co-cited
Similarity
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
66
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
37
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
37
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
31
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
29
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
28
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
26
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
25
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
25
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
23
Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
20
Duty to disclose what? Querying the putative obligation to return research results to participants.
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
24
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
18
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
18
Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med 2008
David I Shalowitz, Franklin G Miller. PLoS Med 2008
17
Multidimensional results reporting to participants in genomic studies: getting it right.
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
32
Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
24
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
16
Undesirable implications of disclosing individual genetic results to research participants.
Leslie A Meltzer. Am J Bioeth 2006
Leslie A Meltzer. Am J Bioeth 2006
29
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
18
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
14
Medicine. Reestablishing the researcher-patient compact.
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
14
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
14
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
14
Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
36
Understanding incidental findings in the context of genetics and genomics.
Mildred K Cho. J Law Med Ethics 2008
Mildred K Cho. J Law Med Ethics 2008
15
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
13
Returning genetic research results to individuals: points-to-consider.
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
19
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
15
Disclosure of research results from cancer genomic studies: state of the science.
Lynn G Dressler. Clin Cancer Res 2009
Lynn G Dressler. Clin Cancer Res 2009
21
Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
22
Considerations and costs of disclosing study findings to research participants.
Conrad V Fernandez, Chris Skedgel, Charles Weijer. CMAJ 2004
Conrad V Fernandez, Chris Skedgel, Charles Weijer. CMAJ 2004
18
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
11
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
11
The incidentalome: a threat to genomic medicine.
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
10
Obligations in offering to disclose genetic research results.
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
40
Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.
Joanna Stjernschantz Forsberg, Mats G Hansson, Stefan Eriksson. Eur J Hum Genet 2009
Joanna Stjernschantz Forsberg, Mats G Hansson, Stefan Eriksson. Eur J Hum Genet 2009
18
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
10
Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.
Annelien L Bredenoord, N Charlotte Onland-Moret, Johannes J M Van Delden. Hum Mutat 2011
Annelien L Bredenoord, N Charlotte Onland-Moret, Johannes J M Van Delden. Hum Mutat 2011
12
Receiving a summary of the results of a trial: qualitative study of participants' views.
Mary Dixon-Woods, Clare Jackson, Kate C Windridge, Sara Kenyon. BMJ 2006
Mary Dixon-Woods, Clare Jackson, Kate C Windridge, Sara Kenyon. BMJ 2006
13
Clinical utility and full disclosure of genetic results to research participants.
Richard R Sharp, Morris W Foster. Am J Bioeth 2006
Richard R Sharp, Morris W Foster. Am J Bioeth 2006
33
Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
9
The return of individual research findings in paediatric genetic research.
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
19
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
11
Ethical, legal, and social implications of biobanks for genetics research.
Susanne B Haga, Laura M Beskow. Adv Genet 2008
Susanne B Haga, Laura M Beskow. Adv Genet 2008
10
Letting the gene out of the bottle: a comment on returning individual research results to participants.
Pilar N Ossorio. Am J Bioeth 2006
Pilar N Ossorio. Am J Bioeth 2006
29
What is a meaningful result? Disclosing the results of genomic research in autism to research participants.
Fiona Alice Miller, Robin Zoe Hayeems, Jessica Peace Bytautas. Eur J Hum Genet 2010
Fiona Alice Miller, Robin Zoe Hayeems, Jessica Peace Bytautas. Eur J Hum Genet 2010
20
The law of incidental findings in human subjects research: establishing researchers' duties.
Susan M Wolf, Jordan Paradise, Charlisse Caga-anan. J Law Med Ethics 2008
Susan M Wolf, Jordan Paradise, Charlisse Caga-anan. J Law Med Ethics 2008
12
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
8
Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res 2012
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res 2012
11
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.