Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Times Cited: 190
Times Cited: 190
Times Cited
Times Co-cited
Similarity
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
50
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
39
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
36
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
32
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
29
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
26
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
26
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
24
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
23
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
22
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
21
Understanding incidental findings in the context of genetics and genomics.
Mildred K Cho. J Law Med Ethics 2008
Mildred K Cho. J Law Med Ethics 2008
25
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
20
Multidimensional results reporting to participants in genomic studies: getting it right.
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
34
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
17
Duty to disclose what? Querying the putative obligation to return research results to participants.
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
19
Medicine. Reestablishing the researcher-patient compact.
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
16
Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
15
The return of individual research findings in paediatric genetic research.
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
32
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am. J. Epidemiol. 2014
Christine Weiner. Am. J. Epidemiol. 2014
15
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
14
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
17
Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
21
Disclosure of research results from cancer genomic studies: state of the science.
Lynn G Dressler. Clin. Cancer Res. 2009
Lynn G Dressler. Clin. Cancer Res. 2009
26
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet. Med. 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet. Med. 2013
19
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
13
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
13
Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am. J. Med. Genet. A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am. J. Med. Genet. A 2010
21
Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
37
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am. J. Med. Genet. A 2011
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am. J. Med. Genet. A 2011
13
Personal genome research : what should the participant be told?
Amy L McGuire, James R Lupski. Trends Genet. 2010
Amy L McGuire, James R Lupski. Trends Genet. 2010
23
Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med. 2008
David I Shalowitz, Franklin G Miller. PLoS Med. 2008
11
Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
24
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
23
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
11
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
11
The law of incidental findings in human subjects research: establishing researchers' duties.
Susan M Wolf, Jordan Paradise, Charlisse Caga-anan. J Law Med Ethics 2008
Susan M Wolf, Jordan Paradise, Charlisse Caga-anan. J Law Med Ethics 2008
16
The incidentalome: a threat to genomic medicine.
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
10
Evaluating the utility of personal genomic information.
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet. Med. 2009
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet. Med. 2009
10
Undesirable implications of disclosing individual genetic results to research participants.
Leslie A Meltzer. Am J Bioeth 2006
Leslie A Meltzer. Am J Bioeth 2006
20
Incidental findings in human subjects research: what do investigators owe research participants?
Franklin G Miller, Michelle M Mello, Steven Joffe. J Law Med Ethics 2008
Franklin G Miller, Michelle M Mello, Steven Joffe. J Law Med Ethics 2008
16
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet. Med. 2012
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet. Med. 2012
13
Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res. 2012
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res. 2012
15
Practical implementation issues and challenges for biobanks in the return of individual research results.
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
25
Incidental findings in genetics research using archived DNA.
Ellen Wright Clayton. J Law Med Ethics 2008
Ellen Wright Clayton. J Law Med Ethics 2008
22
The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet. Med. 2012
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet. Med. 2012
26
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
14
Is it ethical to deny genetic research participants individualised results?
P Affleck. J Med Ethics 2009
P Affleck. J Med Ethics 2009
29
Charting a course for genomic medicine from base pairs to bedside.
Eric D Green, Mark S Guyer. Nature 2011
Eric D Green, Mark S Guyer. Nature 2011
8
Clinical utility and full disclosure of genetic results to research participants.
Richard R Sharp, Morris W Foster. Am J Bioeth 2006
Richard R Sharp, Morris W Foster. Am J Bioeth 2006
32
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.