Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Times Cited: 91
Times Cited: 91
Times Cited
Times Co-cited
Similarity
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
30
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
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Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
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The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
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Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
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Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
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Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
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The incidentalome: a threat to genomic medicine.
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
17
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
17
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
16
Multidimensional results reporting to participants in genomic studies: getting it right.
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
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Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
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Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
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Informed consent for population-based research involving genetics.
L M Beskow, W Burke, J F Merz, P A Barr, S Terry, V B Penchaszadeh, L O Gostin, M Gwinn, M J Khoury. JAMA 2001
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13
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
13
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
12
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
Dave Wendler, Ezekiel Emanuel. Arch. Intern. Med. 2002
10
Development of a large-scale de-identified DNA biobank to enable personalized medicine.
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin. Pharmacol. Ther. 2008
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin. Pharmacol. Ther. 2008
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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
10
Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
9
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
11
Health-information altruists--a potentially critical resource.
Isaac S Kohane, Russ B Altman. N. Engl. J. Med. 2005
Isaac S Kohane, Russ B Altman. N. Engl. J. Med. 2005
13
Genetics. Genomic research and human subject privacy.
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
8
The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects.
Henry S Richardson, Leah Belsky. Hastings Cent Rep 2004
Henry S Richardson, Leah Belsky. Hastings Cent Rep 2004
8
Understanding incidental findings in the context of genetics and genomics.
Mildred K Cho. J Law Med Ethics 2008
Mildred K Cho. J Law Med Ethics 2008
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Incidental findings in genetics research using archived DNA.
Ellen Wright Clayton. J Law Med Ethics 2008
Ellen Wright Clayton. J Law Med Ethics 2008
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From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
8
Undesirable implications of disclosing individual genetic results to research participants.
Leslie A Meltzer. Am J Bioeth 2006
Leslie A Meltzer. Am J Bioeth 2006
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Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med. 2008
David I Shalowitz, Franklin G Miller. PLoS Med. 2008
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The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
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Returning genetic research results to individuals: points-to-consider.
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
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Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors.
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Ethics. Incidental findings in brain imaging research.
Judy Illes, Matthew P Kirschen, Emmeline Edwards, L R Stanford, Peter Bandettini, Mildred K Cho, Paul J Ford, Gary H Glover, Jennifer Kulynych, Ruth Macklin,[...]. Science 2006
Judy Illes, Matthew P Kirschen, Emmeline Edwards, L R Stanford, Peter Bandettini, Mildred K Cho, Paul J Ford, Gary H Glover, Jennifer Kulynych, Ruth Macklin,[...]. Science 2006
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Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
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Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
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Charting a course for genomic medicine from base pairs to bedside.
Eric D Green, Mark S Guyer. Nature 2011
Eric D Green, Mark S Guyer. Nature 2011
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Personal utility and genomic information: look before you leap.
Scott D Grosse, Colleen M McBride, James P Evans, Muin J Khoury. Genet. Med. 2009
Scott D Grosse, Colleen M McBride, James P Evans, Muin J Khoury. Genet. Med. 2009
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The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop.
Muin J Khoury, Colleen M McBride, Sheri D Schully, John P A Ioannidis, W Gregory Feero, A Cecile J W Janssens, Marta Gwinn, Denise G Simons-Morton, Jay M Bernhardt, Michele Cargill,[...]. Genet. Med. 2009
Muin J Khoury, Colleen M McBride, Sheri D Schully, John P A Ioannidis, W Gregory Feero, A Cecile J W Janssens, Marta Gwinn, Denise G Simons-Morton, Jay M Bernhardt, Michele Cargill,[...]. Genet. Med. 2009
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Evaluating the utility of personal genomic information.
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet. Med. 2009
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet. Med. 2009
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The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet. Med. 2012
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet. Med. 2012
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The Informed Cohort Oversight Board: From Values to Architecture.
Ingrid A Holm, Patrick L Taylor. 2012
Ingrid A Holm, Patrick L Taylor. 2012
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Self-guided management of exome and whole-genome sequencing results: changing the results return model.
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet. Med. 2013
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet. Med. 2013
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Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
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Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.
Bernice S Elger, Arthur L Caplan. EMBO Rep. 2006
Bernice S Elger, Arthur L Caplan. EMBO Rep. 2006
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Obligations in offering to disclose genetic research results.
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
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The complete genome of an individual by massively parallel DNA sequencing.
David A Wheeler, Maithreyan Srinivasan, Michael Egholm, Yufeng Shen, Lei Chen, Amy McGuire, Wen He, Yi-Ju Chen, Vinod Makhijani, G Thomas Roth,[...]. Nature 2008
David A Wheeler, Maithreyan Srinivasan, Michael Egholm, Yufeng Shen, Lei Chen, Amy McGuire, Wen He, Yi-Ju Chen, Vinod Makhijani, G Thomas Roth,[...]. Nature 2008
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.