Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Times Cited: 94
Times Cited: 94
Times Cited
Times Co-cited
Similarity
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
31
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
31
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
28
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
25
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
25
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
22
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
21
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
21
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
20
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
19
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
19
The incidentalome: a threat to genomic medicine.
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
18
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
17
Multidimensional results reporting to participants in genomic studies: getting it right.
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
Isaac S Kohane, Patrick L Taylor. Sci Transl Med 2010
30
Tiered disclosure options promote the autonomy and well-being of research subjects.
Mark A Rothstein. Am J Bioeth 2006
Mark A Rothstein. Am J Bioeth 2006
42
Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
23
Informed consent for population-based research involving genetics.
L M Beskow, W Burke, J F Merz, P A Barr, S Terry, V B Penchaszadeh, L O Gostin, M Gwinn, M J Khoury. JAMA 2001
L M Beskow, W Burke, J F Merz, P A Barr, S Terry, V B Penchaszadeh, L O Gostin, M Gwinn, M J Khoury. JAMA 2001
13
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
12
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
12
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
11
Development of a large-scale de-identified DNA biobank to enable personalized medicine.
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
10
Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med 2008
David I Shalowitz, Franklin G Miller. PLoS Med 2008
10
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
10
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
12
Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
9
Undesirable implications of disclosing individual genetic results to research participants.
Leslie A Meltzer. Am J Bioeth 2006
Leslie A Meltzer. Am J Bioeth 2006
17
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
9
Health-information altruists--a potentially critical resource.
Isaac S Kohane, Russ B Altman. N Engl J Med 2005
Isaac S Kohane, Russ B Altman. N Engl J Med 2005
12
Genetics. Genomic research and human subject privacy.
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
8
The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
18
The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects.
Henry S Richardson, Leah Belsky. Hastings Cent Rep 2004
Henry S Richardson, Leah Belsky. Hastings Cent Rep 2004
8
Understanding incidental findings in the context of genetics and genomics.
Mildred K Cho. J Law Med Ethics 2008
Mildred K Cho. J Law Med Ethics 2008
9
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
8
Incidental findings in genetics research using archived DNA.
Ellen Wright Clayton. J Law Med Ethics 2008
Ellen Wright Clayton. J Law Med Ethics 2008
19
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
8
Evaluating the utility of personal genomic information.
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet Med 2009
Morris W Foster, John J Mulvihill, Richard R Sharp. Genet Med 2009
8
Self-guided management of exome and whole-genome sequencing results: changing the results return model.
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet Med 2013
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet Med 2013
14
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
10
Returning genetic research results to individuals: points-to-consider.
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
Gaile Renegar, Christopher J Webster, Steffen Stuerzebecher, Lea Harty, Susan E Ide, Beth Balkite, Taryn A Rogalski-Salter, Nadine Cohen, Brian B Spear, Diane M Barnes,[...]. Bioethics 2006
11
7
Ethics. Incidental findings in brain imaging research.
Judy Illes, Matthew P Kirschen, Emmeline Edwards, L R Stanford, Peter Bandettini, Mildred K Cho, Paul J Ford, Gary H Glover, Jennifer Kulynych, Ruth Macklin,[...]. Science 2006
Judy Illes, Matthew P Kirschen, Emmeline Edwards, L R Stanford, Peter Bandettini, Mildred K Cho, Paul J Ford, Gary H Glover, Jennifer Kulynych, Ruth Macklin,[...]. Science 2006
7
7
Obligations in offering to disclose genetic research results.
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
Conrad V Fernandez, Charles Weijer. Am J Bioeth 2006
28
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
7
Charting a course for genomic medicine from base pairs to bedside.
Eric D Green, Mark S Guyer. Nature 2011
Eric D Green, Mark S Guyer. Nature 2011
7
Disclosure of research results from cancer genomic studies: state of the science.
Lynn G Dressler. Clin Cancer Res 2009
Lynn G Dressler. Clin Cancer Res 2009
13
Personal utility and genomic information: look before you leap.
Scott D Grosse, Colleen M McBride, James P Evans, Muin J Khoury. Genet Med 2009
Scott D Grosse, Colleen M McBride, James P Evans, Muin J Khoury. Genet Med 2009
13
The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop.
Muin J Khoury, Colleen M McBride, Sheri D Schully, John P A Ioannidis, W Gregory Feero, A Cecile J W Janssens, Marta Gwinn, Denise G Simons-Morton, Jay M Bernhardt, Michele Cargill,[...]. Genet Med 2009
Muin J Khoury, Colleen M McBride, Sheri D Schully, John P A Ioannidis, W Gregory Feero, A Cecile J W Janssens, Marta Gwinn, Denise G Simons-Morton, Jay M Bernhardt, Michele Cargill,[...]. Genet Med 2009
7
Evaluation of the validity and utility of genetic testing for rare diseases.
Scott D Grosse, Lisa Kalman, Muin J Khoury. Adv Exp Med Biol 2010
Scott D Grosse, Lisa Kalman, Muin J Khoury. Adv Exp Med Biol 2010
18
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
7
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.