David I Shalowitz, Franklin G Miller. PLoS Med 2008
Times Cited: 152
Times Cited: 152
Times Cited
Times Co-cited
Similarity
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
23
Feedback of trial results to participants: a survey of clinicians' and patients' attitudes and experiences.
Karen Cox, Nima Moghaddam, Lydia Bird, Ruth Elkan. Eur J Oncol Nurs 2011
Karen Cox, Nima Moghaddam, Lydia Bird, Ruth Elkan. Eur J Oncol Nurs 2011
56
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
17
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
17
Offering participants results of a clinical trial: sharing results of a negative study.
Ann H Partridge, Julia S Wong, Katherine Knudsen, Rebecca Gelman, Ebonie Sampson, Michele Gadd, Karyn L Bishop, Jay R Harris, Eric P Winer. Lancet 2005
Ann H Partridge, Julia S Wong, Katherine Knudsen, Rebecca Gelman, Ebonie Sampson, Michele Gadd, Karyn L Bishop, Jay R Harris, Eric P Winer. Lancet 2005
24
Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer.
Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer, Eric Kodish. J Clin Oncol 2009
Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer, Eric Kodish. J Clin Oncol 2009
27
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
16
16
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
16
Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
16
Receiving a summary of the results of a trial: qualitative study of participants' views.
Mary Dixon-Woods, Clare Jackson, Kate C Windridge, Sara Kenyon. BMJ 2006
Mary Dixon-Woods, Clare Jackson, Kate C Windridge, Sara Kenyon. BMJ 2006
19
Health research participants' preferences for receiving research results.
Christopher R Long, M Kathryn Stewart, Thomas V Cunningham, T Scott Warmack, Pearl A McElfish. Clin Trials 2016
Christopher R Long, M Kathryn Stewart, Thomas V Cunningham, T Scott Warmack, Pearl A McElfish. Clin Trials 2016
44
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
13
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
22
Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting.
Heather Rigby, Conrad V Fernandez. Blood 2005
Heather Rigby, Conrad V Fernandez. Blood 2005
26
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
12
Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants.
Ann H Partridge, Nadia Hackett, Emily Blood, Rebecca Gelman, Steven Joffe, Susan Bauer-Wu, Katherine Knudsen, Karen Emmons, Deborah Collyar, Richard L Schilsky,[...]. J Natl Cancer Inst 2004
Ann H Partridge, Nadia Hackett, Emily Blood, Rebecca Gelman, Steven Joffe, Susan Bauer-Wu, Katherine Knudsen, Karen Emmons, Deborah Collyar, Richard L Schilsky,[...]. J Natl Cancer Inst 2004
23
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
11
Considerations and costs of disclosing study findings to research participants.
Conrad V Fernandez, Chris Skedgel, Charles Weijer. CMAJ 2004
Conrad V Fernandez, Chris Skedgel, Charles Weijer. CMAJ 2004
17
Duty to disclose what? Querying the putative obligation to return research results to participants.
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
11
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
11
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
11
Dissemination of results in community-based participatory research.
Peggy G Chen, Nitza Diaz, Georgina Lucas, Marjorie S Rosenthal. Am J Prev Med 2010
Peggy G Chen, Nitza Diaz, Georgina Lucas, Marjorie S Rosenthal. Am J Prev Med 2010
11
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
10
Qualitative study of participants' perceptions and preferences regarding research dissemination.
Rachel S Purvis, Traci H Abraham, Christopher R Long, M Kathryn Stewart, T Scott Warmack, Pearl Anna McElfish. AJOB Empir Bioeth 2017
Rachel S Purvis, Traci H Abraham, Christopher R Long, M Kathryn Stewart, T Scott Warmack, Pearl Anna McElfish. AJOB Empir Bioeth 2017
41
Do patients participating in clinical trials want to know study results?
Ann H Partridge, Harold J Burstein, Rebecca S Gelman, P Kelly Marcom, Eric P Winer. J Natl Cancer Inst 2003
Ann H Partridge, Harold J Burstein, Rebecca S Gelman, P Kelly Marcom, Eric P Winer. J Natl Cancer Inst 2003
13
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
9
The search for clarity in communicating research results to study participants.
D I Shalowitz, F G Miller. J Med Ethics 2008
D I Shalowitz, F G Miller. J Med Ethics 2008
32
Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group.
Conrad V Fernandez, Eric Kodish, Susan Shurin, Charles Weijer. J Pediatr Hematol Oncol 2003
Conrad V Fernandez, Eric Kodish, Susan Shurin, Charles Weijer. J Pediatr Hematol Oncol 2003
19
Reactions of participants to the results of a randomised controlled trial: exploratory study.
C Snowdon, J Garcia, D Elbourne. BMJ 1998
C Snowdon, J Garcia, D Elbourne. BMJ 1998
13
Meeting the obligation to communicate clinical trial results to study volunteers.
Kenneth Getz, Zachary Hallinan, Diane Simmons, Marla Jo Brickman, Zhanna Jumadilova, Lynne Pauer, Marc Wilenzick, Briggs Morrison. Expert Rev Clin Pharmacol 2012
Kenneth Getz, Zachary Hallinan, Diane Simmons, Marla Jo Brickman, Zhanna Jumadilova, Lynne Pauer, Marc Wilenzick, Briggs Morrison. Expert Rev Clin Pharmacol 2012
75
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
8
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
9
Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.
Conrad V Fernandez, Kathleen Ruccione, Robert J Wells, Jay B Long, Wendy Pelletier, Mary C Hooke, Rebecca D Pentz, Robert B Noll, Justin N Baker, Maura O'Leary,[...]. J Clin Oncol 2012
Conrad V Fernandez, Kathleen Ruccione, Robert J Wells, Jay B Long, Wendy Pelletier, Mary C Hooke, Rebecca D Pentz, Robert B Noll, Justin N Baker, Maura O'Leary,[...]. J Clin Oncol 2012
40
Dissemination of research findings to research participants living with HIV in rural Uganda: challenges and rewards.
Anna Baylor, Conrad Muzoora, Mwebsa Bwana, Annet Kembabazi, Jessica E Haberer, Lynn T Matthews, Alexander C Tsai, Peter W Hunt, Jeffrey N Martin, David R Bangsberg. PLoS Med 2013
Anna Baylor, Conrad Muzoora, Mwebsa Bwana, Annet Kembabazi, Jessica E Haberer, Lynn T Matthews, Alexander C Tsai, Peter W Hunt, Jeffrey N Martin, David R Bangsberg. PLoS Med 2013
44
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
7
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
7
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
8
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
7
Participants' uptake of clinical trial results: a randomised experiment.
J Mancini, D Genre, F Dalenc, J-M Ferrero, P Kerbrat, A-L Martin, H Roché, F Maylevin, C Tarpin, P Viens,[...]. Br J Cancer 2010
J Mancini, D Genre, F Dalenc, J-M Ferrero, P Kerbrat, A-L Martin, H Roché, F Maylevin, C Tarpin, P Viens,[...]. Br J Cancer 2010
43
The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer.
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
C V Fernandez, D Santor, C Weijer, C Strahlendorf, A Moghrabi, R Pentz, J Gao, E Kodish. Pediatr Blood Cancer 2007
13
Providing research participants with findings from completed cancer-related clinical trials: not quite as simple as it sounds.
Maurie Markman. Cancer 2006
Maurie Markman. Cancer 2006
33
Community dissemination and genetic research: moving beyond results reporting.
Susan Brown Trinidad, Evette J Ludman, Scarlett Hopkins, Rosalina D James, Theresa J Hoeft, Annie Kinegak, Henry Lupie, Ralph Kinegak, Bert B Boyer, Wylie Burke. Am J Med Genet A 2015
Susan Brown Trinidad, Evette J Ludman, Scarlett Hopkins, Rosalina D James, Theresa J Hoeft, Annie Kinegak, Henry Lupie, Ralph Kinegak, Bert B Boyer, Wylie Burke. Am J Med Genet A 2015
35
Health researchers' experiences, perceptions and barriers related to sharing study results with participants.
Christopher R Long, Rachel S Purvis, Elizabeth Flood-Grady, Kim S Kimminau, Robert L Rhyne, Mark R Burge, M Kathryn Stewart, Amy J Jenkins, Laura P James, Pearl A McElfish. Health Res Policy Syst 2019
Christopher R Long, Rachel S Purvis, Elizabeth Flood-Grady, Kim S Kimminau, Robert L Rhyne, Mark R Burge, M Kathryn Stewart, Amy J Jenkins, Laura P James, Pearl A McElfish. Health Res Policy Syst 2019
35
Providing the results of research to participants: a mixed-method study of the benefits and challenges of a consultative approach.
Mary Dixon-Woods, Carolyn Tarrant, Clare J Jackson, David R Jones, Sara Kenyon. Clin Trials 2011
Mary Dixon-Woods, Carolyn Tarrant, Clare J Jackson, David R Jones, Sara Kenyon. Clin Trials 2011
42
Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
11
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
6
Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
8
Communicating clinical trial results to research participants.
E Ray Dorsey, Christopher A Beck, Mary Adams, Gary Chadwick, Elisabeth A de Blieck, Colleen McCallum, Leslie Briner, Lisa Deuel, Anthony Clarke, Rick Stewart,[...]. Arch Neurol 2008
E Ray Dorsey, Christopher A Beck, Mary Adams, Gary Chadwick, Elisabeth A de Blieck, Colleen McCallum, Leslie Briner, Lisa Deuel, Anthony Clarke, Rick Stewart,[...]. Arch Neurol 2008
27
IRB perspectives on the return of individual results from genomic research.
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
11
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.