Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge, Benjamin S Wilfond. Am J Bioeth 2008
Times Cited: 81
Times Cited: 81
Times Cited
Times Co-cited
Similarity
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
23
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
20
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
19
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
18
Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
16
Pediatric biobanks: approaching informed consent for continuing research after children grow up.
Aaron J Goldenberg, Sara Chandros Hull, Jeffrey R Botkin, Benjamin S Wilfond. J Pediatr 2009
Aaron J Goldenberg, Sara Chandros Hull, Jeffrey R Botkin, Benjamin S Wilfond. J Pediatr 2009
23
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
13
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
13
12
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
12
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
12
Genetics. Genomic research and human subject privacy.
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
11
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
11
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
11
Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.
K A Kaphingst, J M Janoff, L N Harris, K M Emmons. Clin Genet 2006
K A Kaphingst, J M Janoff, L N Harris, K M Emmons. Clin Genet 2006
17
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
11
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
11
Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion.
David Kaufman, Gail Geller, Lisa Leroy, Juli Murphy, Joan Scott, Kathy Hudson. Am J Med Genet C Semin Med Genet 2008
David Kaufman, Gail Geller, Lisa Leroy, Juli Murphy, Joan Scott, Kathy Hudson. Am J Med Genet C Semin Med Genet 2008
13
Informed consent for genetic research on stored tissue samples.
E W Clayton, K K Steinberg, M J Khoury, E Thomson, L Andrews, M J Kahn, L M Kopelman, J O Weiss. JAMA 1995
E W Clayton, K K Steinberg, M J Khoury, E Thomson, L Andrews, M J Kahn, L M Kopelman, J O Weiss. JAMA 1995
9
Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project.
Béatrice Godard, Jennifer Marshall, Claude Laberge. Community Genet 2007
Béatrice Godard, Jennifer Marshall, Claude Laberge. Community Genet 2007
9
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
9
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
9
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
9
Obtaining 'fresh' consent for genetic research with biological samples archived 10 years ago.
Eric Vermeulen, Marjanka K Schmidt, Neil K Aaronson, Marianne Kuenen, Flora E van Leeuwen. Eur J Cancer 2009
Eric Vermeulen, Marjanka K Schmidt, Neil K Aaronson, Marianne Kuenen, Flora E van Leeuwen. Eur J Cancer 2009
29
Attitudes and beliefs of African Americans toward participation in medical research.
G Corbie-Smith, S B Thomas, M V Williams, S Moody-Ayers. J Gen Intern Med 1999
G Corbie-Smith, S B Thomas, M V Williams, S Moody-Ayers. J Gen Intern Med 1999
9
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
11
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
9
Two large-scale surveys on community attitudes toward an opt-out biobank.
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
15
Consent to the use of stored DNA for genetics research: a survey of attitudes in the Jewish population.
M D Schwartz, K Rothenberg, L Joseph, J Benkendorf, C Lerman. Am J Med Genet 2001
M D Schwartz, K Rothenberg, L Joseph, J Benkendorf, C Lerman. Am J Med Genet 2001
14
Development of a large-scale de-identified DNA biobank to enable personalized medicine.
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
8
Genetic testing of stored biological samples: views of 570 U.S. workers.
Jinger G Hoop, Laura Weiss Roberts, Katherine A Green Hammond. Genet Test Mol Biomarkers 2009
Jinger G Hoop, Laura Weiss Roberts, Katherine A Green Hammond. Genet Test Mol Biomarkers 2009
58
Health-information altruists--a potentially critical resource.
Isaac S Kohane, Russ B Altman. N Engl J Med 2005
Isaac S Kohane, Russ B Altman. N Engl J Med 2005
9
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
17
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
8
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
8
Attitudes and perceptions of patients towards methods of establishing a DNA biobank.
Jill M Pulley, Margaret M Brace, Gordon R Bernard, Dan R Masys. Cell Tissue Bank 2008
Jill M Pulley, Margaret M Brace, Gordon R Bernard, Dan R Masys. Cell Tissue Bank 2008
8
Informed consent for genetic research on blood stored for more than a decade: a population based study.
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
8
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
7
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
7
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
7
Research on stored biological samples: views of African American and White American cancer patients.
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
9
Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research.
Benjamin R Bates, John A Lynch, Jennifer L Bevan, Celeste M Condit. Soc Sci Med 2005
Benjamin R Bates, John A Lynch, Jennifer L Bevan, Celeste M Condit. Soc Sci Med 2005
7
Research with stored biological samples: what do research participants want?
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch Intern Med 2005
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch Intern Med 2005
6
Public attitudes regarding the donation and storage of blood specimens for genetic research.
S S Wang, F Fridinger, K M Sheedy, M J Khoury. Community Genet 2001
S S Wang, F Fridinger, K M Sheedy, M J Khoury. Community Genet 2001
6
Patients, privacy and trust: patients' willingness to allow researchers to access their medical records.
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
6
Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes.
Josh W Joseph, Alon B Neidich, Carole Ober, Lainie Friedman Ross. Am J Med Genet A 2008
Josh W Joseph, Alon B Neidich, Carole Ober, Lainie Friedman Ross. Am J Med Genet A 2008
17
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
6
Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain.
M Ruiz-Canela, J I Valle-Mansilla, D P Sulmasy. J Med Ethics 2009
M Ruiz-Canela, J I Valle-Mansilla, D P Sulmasy. J Med Ethics 2009
29
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.