Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Times Cited: 201
Times Cited: 201
Times Cited
Times Co-cited
Similarity
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
37
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
35
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
30
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
27
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
23
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
22
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
22
Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
33
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
34
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
17
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
15
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
15
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
15
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
14
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
14
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
13
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
12
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
12
Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med 2008
David I Shalowitz, Franklin G Miller. PLoS Med 2008
12
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
14
Public preferences for the return of research results in genetic research: a conjoint analysis.
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
36
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
11
The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet Med 2012
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet Med 2012
28
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
15
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
11
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
20
Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.
Nicole L Allen, Elizabeth W Karlson, Susan Malspeis, Bing Lu, Christine E Seidman, Lisa Soleymani Lehmann. Mayo Clin Proc 2014
Nicole L Allen, Elizabeth W Karlson, Susan Malspeis, Bing Lu, Christine E Seidman, Lisa Soleymani Lehmann. Mayo Clin Proc 2014
31
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
10
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
10
Experiences and attitudes of genome investigators regarding return of individual genetic test results.
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet Med 2013
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet Med 2013
27
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
11
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
9
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
9
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
13
Duty to disclose what? Querying the putative obligation to return research results to participants.
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
F A Miller, R Christensen, M Giacomini, J S Robert. J Med Ethics 2008
10
Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
14
Return of results: ethical and legal distinctions between research and clinical care.
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
12
Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
8
Return of research results from genomic biobanks: cost matters.
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
19
Undesirable implications of disclosing individual genetic results to research participants.
Leslie A Meltzer. Am J Bioeth 2006
Leslie A Meltzer. Am J Bioeth 2006
14
The past, present, and future of the debate over return of research results and incidental findings.
Susan M Wolf. Genet Med 2012
Susan M Wolf. Genet Med 2012
15
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
8
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
9
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
8
Point-counterpoint. Ethics and genomic incidental findings.
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
8
The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
17
Parents' preferences for return of results in pediatric genomic research.
S I Ziniel, S K Savage, N Huntington, J Amatruda, R C Green, E R Weitzman, P Taylor, I A Holm. Public Health Genomics 2014
S I Ziniel, S K Savage, N Huntington, J Amatruda, R C Green, E R Weitzman, P Taylor, I A Holm. Public Health Genomics 2014
38
Research Participants' Preferences for Hypothetical Secondary Results from Genomic Research.
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
34
A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment.
David J Kaufman, Rebecca Baker, Lauren C Milner, Stephanie Devaney, Kathy L Hudson. PLoS One 2016
David J Kaufman, Rebecca Baker, Lauren C Milner, Stephanie Devaney, Kathy L Hudson. PLoS One 2016
15
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.