David M Secko, Nina Preto, Simon Niemeyer, Michael M Burgess. Soc Sci Med 2009
Times Cited: 79
Times Cited: 79
Times Cited
Times Co-cited
Similarity
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
25
Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
17
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
17
Structuring public engagement for effective input in policy development on human tissue biobanking.
Kieran C O'Doherty, A Hawkins. Public Health Genomics 2010
Kieran C O'Doherty, A Hawkins. Public Health Genomics 2010
26
Engaging the public on biobanks: outcomes of the BC biobank deliberation.
K C O'Doherty, M M Burgess. Public Health Genomics 2009
K C O'Doherty, M M Burgess. Public Health Genomics 2009
20
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
12
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.
Carlo Petrini. Soc Sci Med 2010
Carlo Petrini. Soc Sci Med 2010
15
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
11
Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement.
Michael Burgess, Kieran O'Doherty, David Secko. Per Med 2008
Michael Burgess, Kieran O'Doherty, David Secko. Per Med 2008
19
Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project.
Béatrice Godard, Jennifer Marshall, Claude Laberge. Community Genet 2007
Béatrice Godard, Jennifer Marshall, Claude Laberge. Community Genet 2007
13
Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation.
Kieran C O'Doherty, Alice K Hawkins, Michael M Burgess. Soc Sci Med 2012
Kieran C O'Doherty, Alice K Hawkins, Michael M Burgess. Soc Sci Med 2012
19
DNA databanks and consent: a suggested policy option involving an authorization model.
Timothy Caulfield, Ross E G Upshur, Abdallah Daar. BMC Med Ethics 2003
Timothy Caulfield, Ross E G Upshur, Abdallah Daar. BMC Med Ethics 2003
11
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
10
The social and ethical issues of post-genomic human biobanks.
Anne Cambon-Thomsen. Nat Rev Genet 2004
Anne Cambon-Thomsen. Nat Rev Genet 2004
8
Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.
Bernice S Elger, Arthur L Caplan. EMBO Rep 2006
Bernice S Elger, Arthur L Caplan. EMBO Rep 2006
8
The charitable trust as a model for genomic biobanks.
David E Winickoff, Richard N Winickoff. N Engl J Med 2003
David E Winickoff, Richard N Winickoff. N Engl J Med 2003
8
Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project.
Catherine A McCarty, Donna Chapman-Stone, Teresa Derfus, Philip F Giampietro, Norman Fost. Am J Med Genet A 2008
Catherine A McCarty, Donna Chapman-Stone, Teresa Derfus, Philip F Giampietro, Norman Fost. Am J Med Genet A 2008
12
Potential harms, anonymization, and the right to withdraw consent to biobank research.
Stefan Eriksson, Gert Helgesson. Eur J Hum Genet 2005
Stefan Eriksson, Gert Helgesson. Eur J Hum Genet 2005
12
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
8
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
14
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
8
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
8
Patients' refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study.
Linus Johnsson, Mats G Hansson, Stefan Eriksson, Gert Helgesson. BMJ 2008
Linus Johnsson, Mats G Hansson, Stefan Eriksson, Gert Helgesson. BMJ 2008
18
Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey.
Alaa Abou-Zeid, Henry Silverman, Magdi Shehata, Mohamed Shams, Mervat Elshabrawy, Tamer Hifnawy, Safa Abdel Rahman, Bahiga Galal, Hany Sleem, Nabiel Mikhail,[...]. J Med Ethics 2010
Alaa Abou-Zeid, Henry Silverman, Magdi Shehata, Mohamed Shams, Mervat Elshabrawy, Tamer Hifnawy, Safa Abdel Rahman, Bahiga Galal, Hany Sleem, Nabiel Mikhail,[...]. J Med Ethics 2010
29
Making policy decisions about population screening for breast cancer: the role of citizens' deliberation.
Charlotte Paul, Rachel Nicholls, Patricia Priest, Rob McGee. Health Policy 2008
Charlotte Paul, Rachel Nicholls, Patricia Priest, Rob McGee. Health Policy 2008
15
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
7
Development of a large-scale de-identified DNA biobank to enable personalized medicine.
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
D M Roden, J M Pulley, M A Basford, G R Bernard, E W Clayton, J R Balser, D R Masys. Clin Pharmacol Ther 2008
7
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
7
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
7
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
7
Ethical, legal, and social implications of biobanks for genetics research.
Susanne B Haga, Laura M Beskow. Adv Genet 2008
Susanne B Haga, Laura M Beskow. Adv Genet 2008
7
Deliberations about deliberative methods: issues in the design and evaluation of public participation processes.
Julia Abelson, Pierre-Gerlier Forest, John Eyles, Patricia Smith, Elisabeth Martin, Francois-Pierre Gauvin. Soc Sci Med 2003
Julia Abelson, Pierre-Gerlier Forest, John Eyles, Patricia Smith, Elisabeth Martin, Francois-Pierre Gauvin. Soc Sci Med 2003
7
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
7
Reconsidering the value of consent in biobank research.
Judy Allen, Beverley McNamara. Bioethics 2011
Judy Allen, Beverley McNamara. Bioethics 2011
15
Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?
K Hoeyer. Public Health Genomics 2010
K Hoeyer. Public Health Genomics 2010
12
Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
7
The debate over research on stored biological samples: what do sources think?
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
Dave Wendler, Ezekiel Emanuel. Arch Intern Med 2002
7
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
7
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
11
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
7
Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks.
Elaine Gibson, Kevin Brazil, Michael D Coughlin, Claudia Emerson, Francois Fournier, Lisa Schwartz, Karen V Szala-Meneok, Karen M Weisbaum, Donald J Willison. BMC Med Ethics 2008
Elaine Gibson, Kevin Brazil, Michael D Coughlin, Claudia Emerson, Francois Fournier, Lisa Schwartz, Karen V Szala-Meneok, Karen M Weisbaum, Donald J Willison. BMC Med Ethics 2008
71
Public participation in health care priority setting: A scoping review.
Craig Mitton, Neale Smith, Stuart Peacock, Brian Evoy, Julia Abelson. Health Policy 2009
Craig Mitton, Neale Smith, Stuart Peacock, Brian Evoy, Julia Abelson. Health Policy 2009
6
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
7
Assessing the public's views in research ethics controversies: deliberative democracy and bioethics as natural allies.
Scott Y H Kim, Ian F Wall, Aimee Stanczyk, Raymond De Vries. J Empir Res Hum Res Ethics 2009
Scott Y H Kim, Ian F Wall, Aimee Stanczyk, Raymond De Vries. J Empir Res Hum Res Ethics 2009
12
The emergence of epidemiology in the genomics age.
Muin J Khoury, Robert Millikan, Julian Little, Marta Gwinn. Int J Epidemiol 2004
Muin J Khoury, Robert Millikan, Julian Little, Marta Gwinn. Int J Epidemiol 2004
9
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.