Pascal Borry, Gerry Evers-Kiebooms, Martina C Cornel, Angus Clarke, Kris Dierickx. Eur J Hum Genet 2009
Times Cited: 118
Times Cited: 118
Times Cited
Times Co-cited
Similarity
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
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Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.
Jeffrey R Botkin, John W Belmont, Jonathan S Berg, Benjamin E Berkman, Yvonne Bombard, Ingrid A Holm, Howard P Levy, Kelly E Ormond, Howard M Saal, Nancy B Spinner,[...]. Am J Hum Genet 2015
Jeffrey R Botkin, John W Belmont, Jonathan S Berg, Benjamin E Berkman, Yvonne Bombard, Ingrid A Holm, Howard P Levy, Kelly E Ormond, Howard M Saal, Nancy B Spinner,[...]. Am J Hum Genet 2015
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Genetic testing in asymptomatic minors: Recommendations of the European Society of Human Genetics.
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P Borry, L Stultiens, H Nys, J-J Cassiman, K Dierickx. Clin Genet 2006
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Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
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"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Am J Med Genet C Semin Med Genet 2008
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Am J Med Genet C Semin Med Genet 2008
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Predictive genetic testing in children and adults: a study of emotional impact.
S Michie, M Bobrow, T M Marteau. J Med Genet 2001
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Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature.
Christopher H Wade, Benjamin S Wilfond, Colleen M McBride. Genet Med 2010
Christopher H Wade, Benjamin S Wilfond, Colleen M McBride. Genet Med 2010
9
"Holding your breath": interviews with young people who have undergone predictive genetic testing for Huntington disease.
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Am J Med Genet A 2007
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Am J Med Genet A 2007
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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
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The return of individual research findings in paediatric genetic research.
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
Kristien Hens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx. J Med Ethics 2011
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Genetic testing for hereditary colorectal cancer in children: long-term psychological effects.
Ann-Marie Codori, Kristin L Zawacki, Gloria M Petersen, Diana L Miglioretti, Judith A Bacon, Jill D Trimbath, Susan V Booker, Kimberly Picarello, Francis M Giardiello. Am J Med Genet A 2003
Ann-Marie Codori, Kristin L Zawacki, Gloria M Petersen, Diana L Miglioretti, Judith A Bacon, Jill D Trimbath, Susan V Booker, Kimberly Picarello, Francis M Giardiello. Am J Med Genet A 2003
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Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.
Annelien L Bredenoord, N Charlotte Onland-Moret, Johannes J M Van Delden. Hum Mutat 2011
Annelien L Bredenoord, N Charlotte Onland-Moret, Johannes J M Van Delden. Hum Mutat 2011
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Is there a case in favour of predictive genetic testing in young children?
S Robertson, J Savulescu. Bioethics 2001
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Recommendations for the predictive genetic test in Huntington's disease.
R MacLeod, A Tibben, M Frontali, G Evers-Kiebooms, A Jones, A Martinez-Descales, R A Roos. Clin Genet 2013
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Predictive genetic testing in minors for late-onset conditions: a chronological and analytical review of the ethical arguments.
Cara Mand, Lynn Gillam, Martin B Delatycki, Rony E Duncan. J Med Ethics 2012
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Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
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Whole-genome sequencing for identification of Mendelian disorders in critically ill infants: a retrospective analysis of diagnostic and clinical findings.
Laurel K Willig, Josh E Petrikin, Laurie D Smith, Carol J Saunders, Isabelle Thiffault, Neil A Miller, Sarah E Soden, Julie A Cakici, Suzanne M Herd, Greyson Twist,[...]. Lancet Respir Med 2015
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7
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
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Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
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The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis.
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Fam Cancer 2010
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki. Fam Cancer 2010
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Predictive genetic testing in young people for adult-onset conditions: where is the empirical evidence?
R E Duncan, M B Delatycki. Clin Genet 2006
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Professional ambivalence: accounts of ethical practice in childhood genetic testing.
Michael Arribas-Ayllon, Srikant Sarangi, Angus Clarke. J Genet Couns 2009
Michael Arribas-Ayllon, Srikant Sarangi, Angus Clarke. J Genet Couns 2009
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From genetics to genomics: ethics, policy, and parental decision-making.
Benjamin Wilfond, Lainie Friedman Ross. J Pediatr Psychol 2009
Benjamin Wilfond, Lainie Friedman Ross. J Pediatr Psychol 2009
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An international survey of predictive genetic testing in children for adult onset conditions.
Rony E Duncan, Julian Savulescu, Lynn Gillam, Robert Williamson, Martin B Delatycki. Genet Med 2005
Rony E Duncan, Julian Savulescu, Lynn Gillam, Robert Williamson, Martin B Delatycki. Genet Med 2005
10
Arrays in postnatal and prenatal diagnosis: An exploration of the ethics of consent.
Wybo Dondorp, Birgit Sikkema-Raddatz, Christine de Die-Smulders, Guido de Wert. Hum Mutat 2012
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Addressing the ethical challenges in genetic testing and sequencing of children.
Ellen Wright Clayton, Laurence B McCullough, Leslie G Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M Wolf. Am J Bioeth 2014
Ellen Wright Clayton, Laurence B McCullough, Leslie G Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M Wolf. Am J Bioeth 2014
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"It was the missing piece": adolescent experiences of predictive genetic testing for adult-onset conditions.
Cara Mand, Lynn Gillam, Rony E Duncan, Martin B Delatycki. Genet Med 2013
Cara Mand, Lynn Gillam, Rony E Duncan, Martin B Delatycki. Genet Med 2013
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How often do BRCA mutation carriers tell their young children of the family's risk for cancer? A study of parental disclosure of BRCA mutations to minors and young adults.
Angela R Bradbury, James J Dignam, Comfort N Ibe, Sogyong L Auh, Fay J Hlubocky, Shelly A Cummings, Melody White, Olufunmilayo I Olopade, Christopher K Daugherty. J Clin Oncol 2007
Angela R Bradbury, James J Dignam, Comfort N Ibe, Sogyong L Auh, Fay J Hlubocky, Shelly A Cummings, Melody White, Olufunmilayo I Olopade, Christopher K Daugherty. J Clin Oncol 2007
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Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder.
G K Suthers, J Armstrong, J McCormack, D Trott. J Med Genet 2006
G K Suthers, J Armstrong, J McCormack, D Trott. J Med Genet 2006
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Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research.
Alison Metcalfe, Jane Coad, Gill M Plumridge, Paramjit Gill, Peter Farndon. Eur J Hum Genet 2008
Alison Metcalfe, Jane Coad, Gill M Plumridge, Paramjit Gill, Peter Farndon. Eur J Hum Genet 2008
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Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
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"Family matters": a conceptual framework for genetic testing in children.
Allyn McConkie-Rosell, Gail A Spiridigliozzi. J Genet Couns 2004
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Predictive DNA-testing for Huntington's disease and reproductive decision making: a European collaborative study.
Gerry Evers-Kiebooms, Kurt Nys, Peter Harper, Moniek Zoeteweij, Alexandra Dürr, Gioia Jacopini, Christos Yapijakis, Sheila Simpson. Eur J Hum Genet 2002
Gerry Evers-Kiebooms, Kurt Nys, Peter Harper, Moniek Zoeteweij, Alexandra Dürr, Gioia Jacopini, Christos Yapijakis, Sheila Simpson. Eur J Hum Genet 2002
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Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticists.
Pascal Borry, Tom Goffin, Herman Nys, Kris Dierickx. Eur J Hum Genet 2007
Pascal Borry, Tom Goffin, Herman Nys, Kris Dierickx. Eur J Hum Genet 2007
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Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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Biochemical and imaging surveillance in germline TP53 mutation carriers with Li-Fraumeni syndrome: a prospective observational study.
Anita Villani, Uri Tabori, Joshua Schiffman, Adam Shlien, Joseph Beyene, Harriet Druker, Ana Novokmet, Jonathan Finlay, David Malkin. Lancet Oncol 2011
Anita Villani, Uri Tabori, Joshua Schiffman, Adam Shlien, Joseph Beyene, Harriet Druker, Ana Novokmet, Jonathan Finlay, David Malkin. Lancet Oncol 2011
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Carrier testing in minors: a systematic review of guidelines and position papers.
Pascal Borry, Jean-Pierre Fryns, Paul Schotsmans, Kris Dierickx. Eur J Hum Genet 2006
Pascal Borry, Jean-Pierre Fryns, Paul Schotsmans, Kris Dierickx. Eur J Hum Genet 2006
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Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases.
Ellen M A Smets, Marinka M H Stam, Tineke M Meulenkamp, Irene M van Langen, Arthur A M Wilde, Albert Wiegman, Guido M de Wert, Aad Tibben. Am J Med Genet A 2008
Ellen M A Smets, Marinka M H Stam, Tineke M Meulenkamp, Irene M van Langen, Arthur A M Wilde, Albert Wiegman, Guido M de Wert, Aad Tibben. Am J Med Genet A 2008
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Constructing "best interests": genetic testing of children in families with hypertrophic cardiomyopathy.
Els Geelen, Ine Van Hoyweghen, Pieter A Doevendans, Carlo L M Marcelis, Klasien Horstman. Am J Med Genet A 2011
Els Geelen, Ine Van Hoyweghen, Pieter A Doevendans, Carlo L M Marcelis, Klasien Horstman. Am J Med Genet A 2011
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Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
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Secondary variants in individuals undergoing exome sequencing: screening of 572 individuals identifies high-penetrance mutations in cancer-susceptibility genes.
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
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Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.
Ruqayyah Abdul-Karim, Benjamin E Berkman, David Wendler, Annette Rid, Javed Khan, Tom Badgett, Sara Chandros Hull. Pediatrics 2013
Ruqayyah Abdul-Karim, Benjamin E Berkman, David Wendler, Annette Rid, Javed Khan, Tom Badgett, Sara Chandros Hull. Pediatrics 2013
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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
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Next-generation sequencing: does the next generation still have a right to an open future?
Annelien L Bredenoord, Martine C de Vries, Johannes J M van Delden. Nat Rev Genet 2013
Annelien L Bredenoord, Martine C de Vries, Johannes J M van Delden. Nat Rev Genet 2013
15
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