Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Times Cited: 78
Times Cited: 78
Times Cited
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From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
14
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
14
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
14
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
12
Simplifying informed consent for biorepositories: stakeholder perspectives.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet. Med. 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet. Med. 2010
28
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
12
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
12
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
12
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur. J. Hum. Genet. 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur. J. Hum. Genet. 2013
12
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
12
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
11
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
11
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
11
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
11
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
10
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
10
Tailoring the process of informed consent in genetic and genomic research.
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
21
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
10
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
10
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
8
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
10
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N. Engl. J. Med. 2010
Michelle M Mello, Leslie E Wolf. N. Engl. J. Med. 2010
8
Quality of informed consent in cancer clinical trials: a cross-sectional survey.
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. Lancet 2001
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. Lancet 2001
8
Ethical and practical challenges surrounding genetic and genomic research in developing countries.
Aceme Nyika. Acta Trop. 2009
Aceme Nyika. Acta Trop. 2009
21
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am. J. Med. Genet. A 2011
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am. J. Med. Genet. A 2011
8
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
8
Developing a simplified consent form for biobanking.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS ONE 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS ONE 2010
12
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat. Rev. Genet. 2008
8
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
8
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
7
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
7
Ethical issues in human genomics research in developing countries.
Jantina de Vries, Susan J Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2011
Jantina de Vries, Susan J Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2011
8
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
7
Charting a course for genomic medicine from base pairs to bedside.
Eric D Green, Mark S Guyer. Nature 2011
Eric D Green, Mark S Guyer. Nature 2011
7
To share or not to share: a randomized trial of consent for data sharing in genome research.
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet. Med. 2011
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet. Med. 2011
10
Public preferences regarding informed consent models for participation in population-based genomic research.
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet. Med. 2014
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet. Med. 2014
12
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
7
7
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
6
Structuring public engagement for effective input in policy development on human tissue biobanking.
Kieran C O'Doherty, A Hawkins. Public Health Genomics 2010
Kieran C O'Doherty, A Hawkins. Public Health Genomics 2010
11
Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur. Respir. J. 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur. Respir. J. 2007
6
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
6
Three approaches to qualitative content analysis.
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
6
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
6
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
6
Informed consent in the genomics era.
Deborah Mascalzoni, Andrew Hicks, Peter Pramstaller, Matthias Wjst. PLoS Med. 2008
Deborah Mascalzoni, Andrew Hicks, Peter Pramstaller, Matthias Wjst. PLoS Med. 2008
10
Ethical, legal, and social implications of biobanks for genetics research.
Susanne B Haga, Laura M Beskow. Adv. Genet. 2008
Susanne B Haga, Laura M Beskow. Adv. Genet. 2008
6
International ethical guidelines for biomedical research involving human subjects.
. Bull Med Ethics 2002
. Bull Med Ethics 2002
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.