Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Times Cited: 102
Times Cited: 102
Times Cited
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Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
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Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
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Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
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Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
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Henry T Greely. Annu Rev Genomics Hum Genet 2007
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Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
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Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
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Research ethics recommendations for whole-genome research: consensus statement.
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Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
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From consent to institutions: designing adaptive governance for genomic biobanks.
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Tailoring the process of informed consent in genetic and genomic research.
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
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The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
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James Flory, Ezekiel Emanuel. JAMA 2004
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Simplifying informed consent for biorepositories: stakeholder perspectives.
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
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Ethical and practical challenges surrounding genetic and genomic research in developing countries.
Aceme Nyika. Acta Trop 2009
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From patients to partners: participant-centric initiatives in biomedical research.
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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am J Med Genet A 2011
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
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Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
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Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
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Informed consent in the genomics era.
Deborah Mascalzoni, Andrew Hicks, Peter Pramstaller, Matthias Wjst. PLoS Med 2008
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Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
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Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
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Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
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Ethical issues in human genomics research in developing countries.
Jantina de Vries, Susan J Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2011
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Charting a course for genomic medicine from base pairs to bedside.
Eric D Green, Mark S Guyer. Nature 2011
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The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
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Quality of informed consent in cancer clinical trials: a cross-sectional survey.
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. Lancet 2001
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Developing a simplified consent form for biobanking.
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Research ethics and the challenge of whole-genome sequencing.
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Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
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A tiered-layered-staged model for informed consent in personal genome testing.
Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
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The emergence of an ethical duty to disclose genetic research results: international perspectives.
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Trends in ethical and legal frameworks for the use of human biobanks.
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Solidarity and equity: new ethical frameworks for genetic databases.
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Assessing the understanding of biobank participants.
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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
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Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience.
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Paulina Tindana, Susan Bull, Lucas Amenga-Etego, Jantina de Vries, Raymond Aborigo, Kwadwo Koram, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2012
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Quality of informed consent: a new measure of understanding among research subjects.
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. J Natl Cancer Inst 2001
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Reconsidering the value of consent in biobank research.
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Public preferences regarding informed consent models for participation in population-based genomic research.
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Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.
Nchangwi Syntia Munung, Patricia Marshall, Megan Campbell, Katherine Littler, Francis Masiye, Odile Ouwe-Missi-Oukem-Boyer, Janet Seeley, D J Stein, Paulina Tindana, Jantina de Vries. J Med Ethics 2016
Nchangwi Syntia Munung, Patricia Marshall, Megan Campbell, Katherine Littler, Francis Masiye, Odile Ouwe-Missi-Oukem-Boyer, Janet Seeley, D J Stein, Paulina Tindana, Jantina de Vries. J Med Ethics 2016
17
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