Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Times Cited: 138
Times Cited: 138
Times Cited
Times Co-cited
Similarity
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
36
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
30
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
22
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
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Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
19
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
18
Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review.
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
41
To share or not to share: a randomized trial of consent for data sharing in genome research.
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
21
Public perspectives regarding data-sharing practices in genomics research.
S B Haga, J O'Daniel. Public Health Genomics 2011
S B Haga, J O'Daniel. Public Health Genomics 2011
42
Patients' views on identifiability of samples and informed consent for genetic research.
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
16
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
13
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
12
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.
Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, Simon Woods. Eur J Hum Genet 2016
Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, Simon Woods. Eur J Hum Genet 2016
29
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies.
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
12
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
11
Research participants' attitudes towards the confidentiality of genomic sequence information.
Leila Jamal, Julie C Sapp, Katie Lewis, Tatiane Yanes, Flavia M Facio, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2014
Leila Jamal, Julie C Sapp, Katie Lewis, Tatiane Yanes, Flavia M Facio, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2014
35
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
11
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
11
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
10
De-identified genomic data sharing: the research participant perspective.
Deborah Goodman, Catherine O Johnson, Deborah Bowen, Megan Smith, Lari Wenzel, Karen Edwards. J Community Genet 2017
Deborah Goodman, Catherine O Johnson, Deborah Bowen, Megan Smith, Lari Wenzel, Karen Edwards. J Community Genet 2017
38
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
16
Public preferences regarding informed consent models for participation in population-based genomic research.
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet Med 2014
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet Med 2014
16
The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research.
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
23
9
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
11
A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
17
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
11
Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
12
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
8
Public preferences about secondary uses of electronic health information.
David Grande, Nandita Mitra, Anand Shah, Fei Wan, David A Asch. JAMA Intern Med 2013
David Grande, Nandita Mitra, Anand Shah, Fei Wan, David A Asch. JAMA Intern Med 2013
8
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
13
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
7
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
12
Routes for breaching and protecting genetic privacy.
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
7
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
7
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
8
Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. AJOB Prim Res 2012
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. AJOB Prim Res 2012
19
The social licence for research: why care.data ran into trouble.
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
7
Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.
Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten,[...]. Genet Med 2019
Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten,[...]. Genet Med 2019
43
Data sharing in genomics--re-shaping scientific practice.
Jane Kaye, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington. Nat Rev Genet 2009
Jane Kaye, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington. Nat Rev Genet 2009
6
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
6
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
15
Biobanking, consent, and control: a survey of Albertans on key research ethics issues.
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
15
Two large-scale surveys on community attitudes toward an opt-out biobank.
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
11
Pediatric data sharing in genomic research: attitudes and preferences of parents.
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
27
Data sharing in large research consortia: experiences and recommendations from ENGAGE.
Isabelle Budin-Ljøsne, Julia Isaeva, Bartha Maria Knoppers, Anne Marie Tassé, Huei-yi Shen, Mark I McCarthy, Jennifer R Harris. Eur J Hum Genet 2014
Isabelle Budin-Ljøsne, Julia Isaeva, Bartha Maria Knoppers, Anne Marie Tassé, Huei-yi Shen, Mark I McCarthy, Jennifer R Harris. Eur J Hum Genet 2014
16
Research on stored biological samples: views of African American and White American cancer patients.
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
9
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.