Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Times Cited: 198
Times Cited: 198
Times Cited
Times Co-cited
Similarity
Moving forward: breaking the cycle of mistrust between American Indians and researchers.
Christina M Pacheco, Sean M Daley, Travis Brown, Melissa Filippi, K Allen Greiner, Christine M Daley. Am J Public Health 2013
Christina M Pacheco, Sean M Daley, Travis Brown, Melissa Filippi, K Allen Greiner, Christine M Daley. Am J Public Health 2013
16
Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.
Nanibaa' A Garrison. Sci Technol Human Values 2013
Nanibaa' A Garrison. Sci Technol Human Values 2013
16
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
10
Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues.
Anna Harding, Barbara Harper, Dave Stone, Catherine O'Neill, Patricia Berger, Stuart Harris, Jamie Donatuto. Environ Health Perspect 2012
Anna Harding, Barbara Harper, Dave Stone, Catherine O'Neill, Patricia Berger, Stuart Harris, Jamie Donatuto. Environ Health Perspect 2012
13
Alaska native people's perceptions, understandings, and expectations for research involving biological specimens.
Vanessa Y Hiratsuka, Jennifer K Brown, Theresa J Hoeft, Denise A Dillard. Int J Circumpolar Health 2012
Vanessa Y Hiratsuka, Jennifer K Brown, Theresa J Hoeft, Denise A Dillard. Int J Circumpolar Health 2012
27
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
9
Public preferences regarding informed consent models for participation in population-based genomic research.
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet Med 2014
Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet Med 2014
14
Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation.
Vanessa Y Hiratsuka, Julie A Beans, Renee F Robinson, Jennifer L Shaw, Ileen Sylvester, Denise A Dillard. Int J Environ Res Public Health 2017
Vanessa Y Hiratsuka, Julie A Beans, Renee F Robinson, Jennifer L Shaw, Ileen Sylvester, Denise A Dillard. Int J Environ Res Public Health 2017
32
Exploring pathways to trust: a tribal perspective on data sharing.
Rosalina James, Rebecca Tsosie, Puneet Sahota, Myra Parker, Denise Dillard, Ileen Sylvester, John Lewis, Joseph Klejka, LeeAnna Muzquiz, Polly Olsen,[...]. Genet Med 2014
Rosalina James, Rebecca Tsosie, Puneet Sahota, Myra Parker, Denise Dillard, Ileen Sylvester, John Lewis, Joseph Klejka, LeeAnna Muzquiz, Polly Olsen,[...]. Genet Med 2014
21
A framework for enhancing ethical genomic research with Indigenous communities.
Katrina G Claw, Matthew Z Anderson, Rene L Begay, Krystal S Tsosie, Keolu Fox, Nanibaa' A Garrison. Nat Commun 2018
Katrina G Claw, Matthew Z Anderson, Rene L Begay, Krystal S Tsosie, Keolu Fox, Nanibaa' A Garrison. Nat Commun 2018
8
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
7
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
7
7
Views of biobanking research among Alaska native people: the role of community context.
Vanessa Hiratsuka, Jennifer Brown, Denise Dillard. Prog Community Health Partnersh 2012
Vanessa Hiratsuka, Jennifer Brown, Denise Dillard. Prog Community Health Partnersh 2012
24
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
6
The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.
. J Am Coll Dent 2014
. J Am Coll Dent 2014
6
Bridging the divide between genomic science and indigenous peoples.
Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett, Charles H Evans. J Law Med Ethics 2010
Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett, Charles H Evans. J Law Med Ethics 2010
21
Research ethics and indigenous communities.
Allyson Kelley, Annie Belcourt-Dittloff, Cheryl Belcourt, Gordon Belcourt. Am J Public Health 2013
Allyson Kelley, Annie Belcourt-Dittloff, Cheryl Belcourt, Gordon Belcourt. Am J Public Health 2013
15
American Indian health policy: historical trends and contemporary issues.
Donald Warne, Linda Bane Frizzell. Am J Public Health 2014
Donald Warne, Linda Bane Frizzell. Am J Public Health 2014
6
Creating research capacity through a tribally based institutional review board.
Deborah J Morton, Joely Proudfit, Daniel Calac, Martina Portillo, Geneva Lofton-Fitzsimmons, Theda Molina, Raymond Flores, Barbara Lawson-Risso, Romelle Majel-McCauley. Am J Public Health 2013
Deborah J Morton, Joely Proudfit, Daniel Calac, Martina Portillo, Geneva Lofton-Fitzsimmons, Theda Molina, Raymond Flores, Barbara Lawson-Risso, Romelle Majel-McCauley. Am J Public Health 2013
24
13
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
6
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
6
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
6
Risk, reward, and the double-edged sword: perspectives on pharmacogenetic research and clinical testing among Alaska Native people.
Jennifer L Shaw, Renee Robinson, Helene Starks, Wylie Burke, Denise A Dillard. Am J Public Health 2013
Jennifer L Shaw, Renee Robinson, Helene Starks, Wylie Burke, Denise A Dillard. Am J Public Health 2013
20
15
Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit.
Nanibaa' A Garrison, Mildred K Cho. AJOB Prim Res 2013
Nanibaa' A Garrison, Mildred K Cho. AJOB Prim Res 2013
27
Characterizing biobank organizations in the U.S.: results from a national survey.
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
5
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
5
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
5
Research ethics. The complexities of genomic identifiability.
Laura L Rodriguez, Lisa D Brooks, Judith H Greenberg, Eric D Green. Science 2013
Laura L Rodriguez, Lisa D Brooks, Judith H Greenberg, Eric D Green. Science 2013
6
Tribal participatory research: mechanisms of a collaborative model.
Philip A Fisher, Thomas J Ball. Am J Community Psychol 2003
Philip A Fisher, Thomas J Ball. Am J Community Psychol 2003
5
Lessons learned from community-based participatory research in Indian country.
Linda Burhansstipanov, Suzanne Christopher, Sister Ann Schumacher. Cancer Control 2005
Linda Burhansstipanov, Suzanne Christopher, Sister Ann Schumacher. Cancer Control 2005
5
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
5
Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity.
Nina Wallerstein, Bonnie Duran. Am J Public Health 2010
Nina Wallerstein, Bonnie Duran. Am J Public Health 2010
5
Review of community-based research: assessing partnership approaches to improve public health.
B A Israel, A J Schulz, E A Parker, A B Becker. Annu Rev Public Health 1998
B A Israel, A J Schulz, E A Parker, A B Becker. Annu Rev Public Health 1998
5
The Nuka System of Care: improving health through ownership and relationships.
Katherine Gottlieb. Int J Circumpolar Health 2013
Katherine Gottlieb. Int J Circumpolar Health 2013
7
Pharmacogenetic research in partnership with American Indian and Alaska Native communities.
Erica L Woodahl, Lawrence J Lesko, Scarlett Hopkins, Renee F Robinson, Kenneth E Thummel, Wylie Burke. Pharmacogenomics 2014
Erica L Woodahl, Lawrence J Lesko, Scarlett Hopkins, Renee F Robinson, Kenneth E Thummel, Wylie Burke. Pharmacogenomics 2014
19
The Precision Medicine Initiative's All of Us Research Program: an agenda for research on its ethical, legal, and social issues.
Pamela L Sankar, Lisa S Parker. Genet Med 2017
Pamela L Sankar, Lisa S Parker. Genet Med 2017
5
Cultural issues in genetic research with American Indian and Alaskan Native people.
Malcolm B Bowekaty, Dena S Davis. IRB 2003
Malcolm B Bowekaty, Dena S Davis. IRB 2003
20
Community-based participatory research: policy recommendations for promoting a partnership approach in health research.
B A Israel, A J Schulz, E A Parker, A B Becker. Educ Health (Abingdon) 2001
B A Israel, A J Schulz, E A Parker, A B Becker. Educ Health (Abingdon) 2001
5
Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.
Lisa G Dirks, Jennifer L Shaw, Vanessa Y Hiratsuka, Julie A Beans, Janet J Kelly, Denise A Dillard. J Community Genet 2019
Lisa G Dirks, Jennifer L Shaw, Vanessa Y Hiratsuka, Julie A Beans, Janet J Kelly, Denise A Dillard. J Community Genet 2019
55
"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.
Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
13
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
4
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
4
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
7
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
10
Developing a simplified consent form for biobanking.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS One 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS One 2010
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.