Kurt D Christensen, J Scott Roberts, David I Shalowitz, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. Cancer Epidemiol Biomarkers Prev 2011
Times Cited: 38
Times Cited: 38
Times Cited
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
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Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
39
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
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Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
26
Offering individual genetic research results: context matters.
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Laura M Beskow, Wylie Burke. Sci Transl Med 2010
23
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
23
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
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Subjects matter: a survey of public opinions about a large genetic cohort study.
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David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
23
Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
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Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
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Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
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Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
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Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
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Genetic testing for melanoma risk: a prospective cohort study of uptake and outcomes among Australian families.
Nadine A Kasparian, Bettina Meiser, Phyllis N Butow, Judy M Simpson, Graham J Mann. Genet Med 2009
Nadine A Kasparian, Bettina Meiser, Phyllis N Butow, Judy M Simpson, Graham J Mann. Genet Med 2009
18
Melanoma genetic testing, counseling, and adherence to skin cancer prevention and detection behaviors.
Karen Glanz, Kathryn Volpicelli, Peter A Kanetsky, Michael E Ming, Lynn M Schuchter, Christopher Jepson, Susan M Domchek, Katrina Armstrong. Cancer Epidemiol Biomarkers Prev 2013
Karen Glanz, Kathryn Volpicelli, Peter A Kanetsky, Michael E Ming, Lynn M Schuchter, Christopher Jepson, Susan M Domchek, Katrina Armstrong. Cancer Epidemiol Biomarkers Prev 2013
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
18
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
15
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
15
Disclosure of research results from cancer genomic studies: state of the science.
Lynn G Dressler. Clin Cancer Res 2009
Lynn G Dressler. Clin Cancer Res 2009
15
Implications of disclosing individual results of clinical research.
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
Ellen Wright Clayton, Lainie Friedman Ross. JAMA 2006
15
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
15
Returning individual research results: development of a cancer genetics education and risk communication protocol.
J Scott Roberts, David I Shalowitz, Kurt D Christensen, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. J Empir Res Hum Res Ethics 2010
J Scott Roberts, David I Shalowitz, Kurt D Christensen, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. J Empir Res Hum Res Ethics 2010
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Medicine. Reestablishing the researcher-patient compact.
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
15
Emotional distress following genetic testing for hereditary breast and ovarian cancer: a meta-analytic review.
Jada G Hamilton, Marci Lobel, Anne Moyer. Health Psychol 2009
Jada G Hamilton, Marci Lobel, Anne Moyer. Health Psychol 2009
15
CDKN2A/p16 genetic test reporting improves early detection intentions and practices in high-risk melanoma families.
Lisa G Aspinwall, Samantha L Leaf, Erin R Dola, Wendy Kohlmann, Sancy A Leachman. Cancer Epidemiol Biomarkers Prev 2008
Lisa G Aspinwall, Samantha L Leaf, Erin R Dola, Wendy Kohlmann, Sancy A Leachman. Cancer Epidemiol Biomarkers Prev 2008
15
A brief assessment of concerns associated with genetic testing for cancer: the Multidimensional Impact of Cancer Risk Assessment (MICRA) questionnaire.
David Cella, Chanita Hughes, Amy Peterman, Chih-Hung Chang, Beth N Peshkin, Marc D Schwartz, Lari Wenzel, Amy Lemke, Alfred C Marcus, Caryn Lerman. Health Psychol 2002
David Cella, Chanita Hughes, Amy Peterman, Chih-Hung Chang, Beth N Peshkin, Marc D Schwartz, Lari Wenzel, Amy Lemke, Alfred C Marcus, Caryn Lerman. Health Psychol 2002
15
Disclosure of APOE genotype for risk of Alzheimer's disease.
Robert C Green, J Scott Roberts, L Adrienne Cupples, Norman R Relkin, Peter J Whitehouse, Tamsen Brown, Susan LaRusse Eckert, Melissa Butson, A Dessa Sadovnick, Kimberly A Quaid,[...]. N Engl J Med 2009
Robert C Green, J Scott Roberts, L Adrienne Cupples, Norman R Relkin, Peter J Whitehouse, Tamsen Brown, Susan LaRusse Eckert, Melissa Butson, A Dessa Sadovnick, Kimberly A Quaid,[...]. N Engl J Med 2009
15
Communication of genetic test results to family and health-care providers following disclosure of research results.
Kristi D Graves, Pamela S Sinicrope, Mary Jane Esplen, Susan K Peterson, Christi A Patten, Jan Lowery, Frank A Sinicrope, Sandra K Nigon, Joyce Borgen, Sherri Sheinfeld Gorin,[...]. Genet Med 2014
Kristi D Graves, Pamela S Sinicrope, Mary Jane Esplen, Susan K Peterson, Christi A Patten, Jan Lowery, Frank A Sinicrope, Sandra K Nigon, Joyce Borgen, Sherri Sheinfeld Gorin,[...]. Genet Med 2014
23
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
13
Communicating the results of clinical research to participants: attitudes, practices, and future directions.
David I Shalowitz, Franklin G Miller. PLoS Med 2008
David I Shalowitz, Franklin G Miller. PLoS Med 2008
13
13
Better the devil you know? High-risk individuals' anticipated psychological responses to genetic testing for melanoma susceptibility.
Nadine A Kasparian, Bettina Meiser, Phyllis N Butow, R F Soames Job, Graham J Mann. J Genet Couns 2006
Nadine A Kasparian, Bettina Meiser, Phyllis N Butow, R F Soames Job, Graham J Mann. J Genet Couns 2006
23
Genetic testing for melanoma.
Richard Kefford, Julia Newton Bishop, Margaret Tucker, Brigitte Bressac-de Paillerets, Giovanna Bianchi-Scarrá, Wilma Bergman, Alisa Goldstein, Susana Puig, Rona Mackie, David Elder,[...]. Lancet Oncol 2002
Richard Kefford, Julia Newton Bishop, Margaret Tucker, Brigitte Bressac-de Paillerets, Giovanna Bianchi-Scarrá, Wilma Bergman, Alisa Goldstein, Susana Puig, Rona Mackie, David Elder,[...]. Lancet Oncol 2002
13
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
13
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
13
Randomized comparison of phone versus in-person BRCA1/2 predisposition genetic test result disclosure counseling.
Jean Jenkins, Kathleen A Calzone, Eileen Dimond, David J Liewehr, Seth M Steinberg, Oxana Jourkiv, Pam Klein, Peter W Soballe, Sheila A Prindiville, Ilan R Kirsch. Genet Med 2007
Jean Jenkins, Kathleen A Calzone, Eileen Dimond, David J Liewehr, Seth M Steinberg, Oxana Jourkiv, Pam Klein, Peter W Soballe, Sheila A Prindiville, Ilan R Kirsch. Genet Med 2007
13
Effect of direct-to-consumer genomewide profiling to assess disease risk.
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N Engl J Med 2011
Cinnamon S Bloss, Nicholas J Schork, Eric J Topol. N Engl J Med 2011
13
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
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How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry.
Louise A Keogh, Douglass Fisher, Sherri Sheinfeld Gorin, Sheri D Schully, Jan T Lowery, Dennis J Ahnen, Judith A Maskiell, Noralane M Lindor, John L Hopper, Terrilea Burnett,[...]. J Community Genet 2014
Louise A Keogh, Douglass Fisher, Sherri Sheinfeld Gorin, Sheri D Schully, Jan T Lowery, Dennis J Ahnen, Judith A Maskiell, Noralane M Lindor, John L Hopper, Terrilea Burnett,[...]. J Community Genet 2014
33
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
13
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
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Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
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Randomized noninferiority trial of telephone versus in-person genetic counseling for hereditary breast and ovarian cancer.
Marc D Schwartz, Heiddis B Valdimarsdottir, Beth N Peshkin, Jeanne Mandelblatt, Rachel Nusbaum, An-Tsun Huang, Yaojen Chang, Kristi Graves, Claudine Isaacs, Marie Wood,[...]. J Clin Oncol 2014
Marc D Schwartz, Heiddis B Valdimarsdottir, Beth N Peshkin, Jeanne Mandelblatt, Rachel Nusbaum, An-Tsun Huang, Yaojen Chang, Kristi Graves, Claudine Isaacs, Marie Wood,[...]. J Clin Oncol 2014
13
A systematic review of perceived risks, psychological and behavioral impacts of genetic testing.
Jodi T Heshka, Crystal Palleschi, Heather Howley, Brenda Wilson, Philip S Wells. Genet Med 2008
Jodi T Heshka, Crystal Palleschi, Heather Howley, Brenda Wilson, Philip S Wells. Genet Med 2008
13
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
13
Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
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Three approaches to qualitative content analysis.
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
10
Researcher practices on returning genetic research results.
Christopher Heaney, Genevieve Tindall, Joe Lucas, Susanne B Haga. Genet Test Mol Biomarkers 2010
Christopher Heaney, Genevieve Tindall, Joe Lucas, Susanne B Haga. Genet Test Mol Biomarkers 2010
15
Patterns of photoprotection following CDKN2A/p16 genetic test reporting and counseling.
Lisa G Aspinwall, Samantha L Leaf, Wendy Kohlmann, Erin R Dola, Sancy A Leachman. J Am Acad Dermatol 2009
Lisa G Aspinwall, Samantha L Leaf, Wendy Kohlmann, Erin R Dola, Sancy A Leachman. J Am Acad Dermatol 2009
15
Geographical variation in the penetrance of CDKN2A mutations for melanoma.
D Timothy Bishop, Florence Demenais, Alisa M Goldstein, Wilma Bergman, Julia Newton Bishop, Brigitte Bressac-de Paillerets, Agnès Chompret, Paola Ghiorzo, Nelleke Gruis, Johan Hansson,[...]. J Natl Cancer Inst 2002
D Timothy Bishop, Florence Demenais, Alisa M Goldstein, Wilma Bergman, Julia Newton Bishop, Brigitte Bressac-de Paillerets, Agnès Chompret, Paola Ghiorzo, Nelleke Gruis, Johan Hansson,[...]. J Natl Cancer Inst 2002
10
Selection criteria for genetic assessment of patients with familial melanoma.
Sancy A Leachman, John Carucci, Wendy Kohlmann, Kimberly C Banks, Maryam M Asgari, Wilma Bergman, Giovanna Bianchi-Scarrà, Teresa Brentnall, Brigitte Bressac-de Paillerets, William Bruno,[...]. J Am Acad Dermatol 2009
Sancy A Leachman, John Carucci, Wendy Kohlmann, Kimberly C Banks, Maryam M Asgari, Wilma Bergman, Giovanna Bianchi-Scarrà, Teresa Brentnall, Brigitte Bressac-de Paillerets, William Bruno,[...]. J Am Acad Dermatol 2009
10
Genetic testing for hereditary melanoma and pancreatic cancer: a longitudinal study of psychological outcome.
Lisa G Aspinwall, Jennifer M Taber, Samantha L Leaf, Wendy Kohlmann, Sancy A Leachman. Psychooncology 2013
Lisa G Aspinwall, Jennifer M Taber, Samantha L Leaf, Wendy Kohlmann, Sancy A Leachman. Psychooncology 2013
14
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