Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall, Judy Illes, Moira Keane, Bartha M Knoppers, Barbara A Koenig, Isaac S Kohane, Bonnie Leroy, Karen J Maschke, William McGeveran, Pilar Ossorio, Lisa S Parker, Gloria M Petersen, Henry S Richardson, Joan A Scott, Sharon F Terry, Benjamin S Wilfond, Wendy A Wolf. Genet. Med. 2012
Times Cited: 266
Times Cited: 266
Times Cited
Times Co-cited
Similarity
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
51
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
46
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
35
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet. Med. 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet. Med. 2017
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Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am. J. Epidemiol. 2014
Christine Weiner. Am. J. Epidemiol. 2014
20
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur. J. Hum. Genet. 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur. J. Hum. Genet. 2013
27
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet. Med. 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet. Med. 2015
17
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
15
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
Susan M Wolf, Rebecca Branum, Barbara A Koenig, Gloria M Petersen, Susan A Berry, Laura M Beskow, Mary B Daly, Conrad V Fernandez, Robert C Green, Bonnie S LeRoy,[...]. J Law Med Ethics 2015
Susan M Wolf, Rebecca Branum, Barbara A Koenig, Gloria M Petersen, Susan A Berry, Laura M Beskow, Mary B Daly, Conrad V Fernandez, Robert C Green, Bonnie S LeRoy,[...]. J Law Med Ethics 2015
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Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
14
Actionable, pathogenic incidental findings in 1,000 participants' exomes.
Michael O Dorschner, Laura M Amendola, Emily H Turner, Peggy D Robertson, Brian H Shirts, Carlos J Gallego, Robin L Bennett, Kelly L Jones, Mari J Tokita, James T Bennett,[...]. Am. J. Hum. Genet. 2013
Michael O Dorschner, Laura M Amendola, Emily H Turner, Peggy D Robertson, Brian H Shirts, Carlos J Gallego, Robin L Bennett, Kelly L Jones, Mari J Tokita, James T Bennett,[...]. Am. J. Hum. Genet. 2013
14
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
13
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet. Med. 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet. Med. 2013
18
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
18
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet. 2011
13
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet. Med. 2015
. Genet. Med. 2015
13
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
12
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
15
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
11
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
11
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur. J. Hum. Genet. 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur. J. Hum. Genet. 2016
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Return of genetic testing results in the era of whole-genome sequencing.
Bartha Maria Knoppers, Ma'n H Zawati, Karine Sénécal. Nat. Rev. Genet. 2015
Bartha Maria Knoppers, Ma'n H Zawati, Karine Sénécal. Nat. Rev. Genet. 2015
14
Return of results: ethical and legal distinctions between research and clinical care.
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
18
Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
10
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
10
Practical implementation issues and challenges for biobanks in the return of individual research results.
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
23
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
9
Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
9
Actionable exomic incidental findings in 6503 participants: challenges of variant classification.
Laura M Amendola, Michael O Dorschner, Peggy D Robertson, Joseph S Salama, Ragan Hart, Brian H Shirts, Mitzi L Murray, Mari J Tokita, Carlos J Gallego, Daniel Seung Kim,[...]. Genome Res. 2015
Laura M Amendola, Michael O Dorschner, Peggy D Robertson, Joseph S Salama, Ragan Hart, Brian H Shirts, Mitzi L Murray, Mari J Tokita, Carlos J Gallego, Daniel Seung Kim,[...]. Genome Res. 2015
9
Reporting genomic sequencing results to ordering clinicians: incidental, but not exceptional.
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
14
Return of research results from genomic biobanks: cost matters.
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet. Med. 2013
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet. Med. 2013
26
Offering aggregate results to participants in genomic research: opportunities and challenges.
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet. Med. 2012
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet. Med. 2012
26
Point-counterpoint. Ethics and genomic incidental findings.
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
8
Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Hum. Genet. 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Hum. Genet. 2014
10
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
8
8
Public preferences for the return of research results in genetic research: a conjoint analysis.
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet. Med. 2014
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet. Med. 2014
25
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
11
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur. J. Hum. Genet. 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur. J. Hum. Genet. 2013
7
ClinGen--the Clinical Genome Resource.
Heidi L Rehm, Jonathan S Berg, Lisa D Brooks, Carlos D Bustamante, James P Evans, Melissa J Landrum, David H Ledbetter, Donna R Maglott, Christa Lese Martin, Robert L Nussbaum,[...]. N. Engl. J. Med. 2015
Heidi L Rehm, Jonathan S Berg, Lisa D Brooks, Carlos D Bustamante, James P Evans, Melissa J Landrum, David H Ledbetter, Donna R Maglott, Christa Lese Martin, Robert L Nussbaum,[...]. N. Engl. J. Med. 2015
7
Diagnostic clinical genome and exome sequencing.
Leslie G Biesecker, Robert C Green. N. Engl. J. Med. 2014
Leslie G Biesecker, Robert C Green. N. Engl. J. Med. 2014
7
Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.
Jeffrey R Botkin, John W Belmont, Jonathan S Berg, Benjamin E Berkman, Yvonne Bombard, Ingrid A Holm, Howard P Levy, Kelly E Ormond, Howard M Saal, Nancy B Spinner,[...]. Am. J. Hum. Genet. 2015
Jeffrey R Botkin, John W Belmont, Jonathan S Berg, Benjamin E Berkman, Yvonne Bombard, Ingrid A Holm, Howard P Levy, Kelly E Ormond, Howard M Saal, Nancy B Spinner,[...]. Am. J. Hum. Genet. 2015
7
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet. Med. 2013
7
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet. Med. 2012
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet. Med. 2012
7
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.
Ma'n H Zawati, Bartha Maria Knoppers. Genet. Med. 2012
Ma'n H Zawati, Bartha Maria Knoppers. Genet. Med. 2012
18
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
6
Medicine. Reestablishing the researcher-patient compact.
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
Isaac S Kohane, Kenneth D Mandl, Patrick L Taylor, Ingrid A Holm, Daniel J Nigrin, Louis M Kunkel. Science 2007
6
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
6
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