Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Times Cited: 99
Times Cited: 99
Times Cited
Times Co-cited
Similarity
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
35
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
26
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
22
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
18
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
24
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
13
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
24
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
11
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
22
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
11
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
13
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.
Carlo Petrini. Soc Sci Med 2010
Carlo Petrini. Soc Sci Med 2010
15
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
10
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
8
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
8
15
Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
8
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
8
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research.
Thomas Ploug, Søren Holm. BMJ 2015
Thomas Ploug, Søren Holm. BMJ 2015
29
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
7
Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
7
Consent and research governance in biobanks: evidence from focus groups with medical researchers.
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
29
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
7
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
7
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
9
Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
29
Testing an online, dynamic consent portal for large population biobank research.
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
30
Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.
Bernice S Elger, Arthur L Caplan. EMBO Rep 2006
Bernice S Elger, Arthur L Caplan. EMBO Rep 2006
6
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
9
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
13
Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. AJOB Prim Res 2012
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. AJOB Prim Res 2012
17
Hypothetical and factual willingness to participate in biobank research.
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
11
A dynamic model of patient consent to sharing of medical record data.
William G Dixon, Karen Spencer, Hawys Williams, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye. BMJ 2014
William G Dixon, Karen Spencer, Hawys Williams, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye. BMJ 2014
60
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
7
Reconsidering the value of consent in biobank research.
Judy Allen, Beverley McNamara. Bioethics 2011
Judy Allen, Beverley McNamara. Bioethics 2011
15
Scientists' perspectives on consent in the context of biobanking research.
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur J Hum Genet 2015
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur J Hum Genet 2015
37
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
6
Ethical endgames: broad consent for narrow interests; open consent for closed minds.
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
35
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
8
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
6
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
25
6
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
10
Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur J Hum Genet 2016
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur J Hum Genet 2016
18
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.