Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur. J. Hum. Genet. 2013
Times Cited: 88
Times Cited: 88
Times Cited
Times Co-cited
Similarity
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
32
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
28
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
22
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
14
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
13
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
11
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
21
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
11
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
12
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
18
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.
Carlo Petrini. Soc Sci Med 2010
Carlo Petrini. Soc Sci Med 2010
14
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
9
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
9
From single biobanks to international networks: developing e-governance.
Jane Kaye. Hum. Genet. 2011
Jane Kaye. Hum. Genet. 2011
15
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
9
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. 2015
18
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research.
Thomas Ploug, Søren Holm. BMJ 2015
Thomas Ploug, Søren Holm. BMJ 2015
32
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
7
Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur. Respir. J. 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur. Respir. J. 2007
7
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
7
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
6
Consent and research governance in biobanks: evidence from focus groups with medical researchers.
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
27
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
6
Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.
Bernice S Elger, Arthur L Caplan. EMBO Rep. 2006
Bernice S Elger, Arthur L Caplan. EMBO Rep. 2006
6
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
9
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
8
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
7
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur. J. Hum. Genet. 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur. J. Hum. Genet. 2013
13
Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. 2012
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. 2012
18
Hypothetical and factual willingness to participate in biobank research.
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur. J. Hum. Genet. 2010
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur. J. Hum. Genet. 2010
11
A dynamic model of patient consent to sharing of medical record data.
William G Dixon, Karen Spencer, Hawys Williams, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye. BMJ 2014
William G Dixon, Karen Spencer, Hawys Williams, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye. BMJ 2014
60
Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
27
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
7
Ethical endgames: broad consent for narrow interests; open consent for closed minds.
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
37
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
26
Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur. J. Hum. Genet. 2016
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur. J. Hum. Genet. 2016
21
Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
5
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
5
Banking together. A unified model of informed consent for biobanking.
Elena Salvaterra, Lucilla Lecchi, Silvia Giovanelli, Barbara Butti, Maria Teresa Bardella, Pier Alberto Bertazzi, Silvano Bosari, Guido Coggi, Domenico A Coviello, Faustina Lalatta,[...]. EMBO Rep. 2008
Elena Salvaterra, Lucilla Lecchi, Silvia Giovanelli, Barbara Butti, Maria Teresa Bardella, Pier Alberto Bertazzi, Silvano Bosari, Guido Coggi, Domenico A Coviello, Faustina Lalatta,[...]. EMBO Rep. 2008
9
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N. Engl. J. Med. 2010
Michelle M Mello, Leslie E Wolf. N. Engl. J. Med. 2010
5
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
5
A solidarity-based approach to the governance of research biobanks.
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
18
Reconsidering the value of consent in biobank research.
Judy Allen, Beverley McNamara. Bioethics 2011
Judy Allen, Beverley McNamara. Bioethics 2011
13
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am. J. Med. Genet. A 2009
5
Scientists' perspectives on consent in the context of biobanking research.
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur. J. Hum. Genet. 2015
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur. J. Hum. Genet. 2015
35
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.