Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Times Cited: 133
Times Cited: 133
Times Cited
Times Co-cited
Similarity
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
41
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
26
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
25
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
19
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
21
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
11
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
11
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
10
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
10
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research.
Thomas Ploug, Søren Holm. BMJ 2015
Thomas Ploug, Søren Holm. BMJ 2015
27
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
11
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
9
Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants.
Harriet Ja Teare, Michael Morrison, Edgar A Whitley, Jane Kaye. Digit Health 2015
Harriet Ja Teare, Michael Morrison, Edgar A Whitley, Jane Kaye. Digit Health 2015
34
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat Methods 2012
14
Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
Dorit T Stein, Sharon F Terry. Genet Test Mol Biomarkers 2013
27
8
Testing an online, dynamic consent portal for large population biobank research.
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
26
Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data.
Thomas Ploug, Søren Holm. Bioethics 2016
Thomas Ploug, Søren Holm. Bioethics 2016
19
Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach.
Megan Prictor, Harriet J A Teare, Jane Kaye. Front Public Health 2018
Megan Prictor, Harriet J A Teare, Jane Kaye. Front Public Health 2018
33
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
7
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.
Carlo Petrini. Soc Sci Med 2010
Carlo Petrini. Soc Sci Med 2010
10
Reconsidering the value of consent in biobank research.
Judy Allen, Beverley McNamara. Bioethics 2011
Judy Allen, Beverley McNamara. Bioethics 2011
14
Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience.
Paulina Tindana, Susan Bull, Lucas Amenga-Etego, Jantina de Vries, Raymond Aborigo, Kwadwo Koram, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2012
Paulina Tindana, Susan Bull, Lucas Amenga-Etego, Jantina de Vries, Raymond Aborigo, Kwadwo Koram, Dominic Kwiatkowski, Michael Parker. BMC Med Ethics 2012
9
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
25
Scientists' perspectives on consent in the context of biobanking research.
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur J Hum Genet 2015
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur J Hum Genet 2015
30
Dynamic Consent: An Evaluation and Reporting Framework.
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
38
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
6
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
6
6
Ethical endgames: broad consent for narrow interests; open consent for closed minds.
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm. Camb Q Healthc Ethics 2011
33
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
6
Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.
Flavio D'Abramo, Jan Schildmann, Jochen Vollmann. BMC Med Ethics 2015
Flavio D'Abramo, Jan Schildmann, Jochen Vollmann. BMC Med Ethics 2015
14
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
6
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
6
The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results.
Cristian Pattaro, Martin Gögele, Deborah Mascalzoni, Roberto Melotti, Christine Schwienbacher, Alessandro De Grandi, Luisa Foco, Yuri D'Elia, Barbara Linder, Christian Fuchsberger,[...]. J Transl Med 2015
Cristian Pattaro, Martin Gögele, Deborah Mascalzoni, Roberto Melotti, Christine Schwienbacher, Alessandro De Grandi, Luisa Foco, Yuri D'Elia, Barbara Linder, Christian Fuchsberger,[...]. J Transl Med 2015
15
The RUDY study platform - a novel approach to patient driven research in rare musculoskeletal diseases.
M K Javaid, L Forestier-Zhang, L Watts, A Turner, C Ponte, H Teare, D Gray, N Gray, R Popert, J Hogg,[...]. Orphanet J Rare Dis 2016
M K Javaid, L Forestier-Zhang, L Watts, A Turner, C Ponte, H Teare, D Gray, N Gray, R Popert, J Hogg,[...]. Orphanet J Rare Dis 2016
20
Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
6
Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur J Hum Genet 2016
Menno Mostert, Annelien L Bredenoord, Monique C I H Biesaart, Johannes J M van Delden. Eur J Hum Genet 2016
13
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
8
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
5
A solidarity-based approach to the governance of research biobanks.
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
12
Why do participants enroll in population biobank studies? A systematic literature review.
Hélène Nobile, Eric Vermeulen, Kristof Thys, Manuela M Bergmann, Pascal Borry. Expert Rev Mol Diagn 2013
Hélène Nobile, Eric Vermeulen, Kristof Thys, Manuela M Bergmann, Pascal Borry. Expert Rev Mol Diagn 2013
13
Coding and consent: moral challenges of the database project in Iceland.
Vilhjalmur Arnason. Bioethics 2004
Vilhjalmur Arnason. Bioethics 2004
6
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
5
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.