Conrad V Fernandez, Caron Strahlendorf, Denise Avard, Bartha M Knoppers, Colleen O'Connell, Eric Bouffet, David Malkin, Nada Jabado, Kym Boycott, Poul H Sorensen. Genet Med 2013
Times Cited: 32
Times Cited: 32
Times Cited
Times Co-cited
Similarity
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
62
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
43
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
37
Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.
Nancy R Downing, Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Christian M Simon. Patient Educ Couns 2013
Nancy R Downing, Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Christian M Simon. Patient Educ Couns 2013
31
Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
31
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
31
Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
28
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
28
Informed consent and genomic incidental findings: IRB chair perspectives.
Christian M Simon, Janet K Williams, Laura Shinkunas, Debra Brandt, Sandra Daack-Hirsch, Martha Driessnack. J Empir Res Hum Res Ethics 2011
Christian M Simon, Janet K Williams, Laura Shinkunas, Debra Brandt, Sandra Daack-Hirsch, Martha Driessnack. J Empir Res Hum Res Ethics 2011
29
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
28
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
25
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
25
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
25
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
25
Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
25
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
21
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
21
'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.
S Daack-Hirsch, M Driessnack, A Hanish, V A Johnson, L L Shah, C M Simon, J K Williams. Clin Genet 2013
S Daack-Hirsch, M Driessnack, A Hanish, V A Johnson, L L Shah, C M Simon, J K Williams. Clin Genet 2013
21
Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
21
Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.
Ruqayyah Abdul-Karim, Benjamin E Berkman, David Wendler, Annette Rid, Javed Khan, Tom Badgett, Sara Chandros Hull. Pediatrics 2013
Ruqayyah Abdul-Karim, Benjamin E Berkman, David Wendler, Annette Rid, Javed Khan, Tom Badgett, Sara Chandros Hull. Pediatrics 2013
18
Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing.
Zoe Lohn, Shelin Adam, Patricia Birch, Anne Townsend, Jan Friedman. Am J Med Genet A 2013
Zoe Lohn, Shelin Adam, Patricia Birch, Anne Townsend, Jan Friedman. Am J Med Genet A 2013
18
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
18
IRB perspectives on the return of individual results from genomic research.
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
18
Point-counterpoint. Ethics and genomic incidental findings.
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
18
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
18
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
18
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.
Ma'n H Zawati, Bartha Maria Knoppers. Genet Med 2012
Ma'n H Zawati, Bartha Maria Knoppers. Genet Med 2012
15
Researcher and institutional review board chair perspectives on incidental findings in genomic research.
Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Nancy Downing, Laura Shinkunas, Debra Brandt, Christian Simon. Genet Test Mol Biomarkers 2012
Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Nancy Downing, Laura Shinkunas, Debra Brandt, Christian Simon. Genet Test Mol Biomarkers 2012
20
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
15
Public perspectives about pharmacogenetic testing and managing ancillary findings.
Susanne B Haga, Genevieve Tindall, Julianne M O'Daniel. Genet Test Mol Biomarkers 2012
Susanne B Haga, Genevieve Tindall, Julianne M O'Daniel. Genet Test Mol Biomarkers 2012
15
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
15
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol 2008
15
Experiences and attitudes of genome investigators regarding return of individual genetic test results.
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet Med 2013
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet Med 2013
15
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
15
Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.
Layla Shahmirzadi, Elizabeth C Chao, Erika Palmaer, Melissa C Parra, Sha Tang, Kelly D Farwell Gonzalez. Genet Med 2014
Layla Shahmirzadi, Elizabeth C Chao, Erika Palmaer, Melissa C Parra, Sha Tang, Kelly D Farwell Gonzalez. Genet Med 2014
15
Informed consent for return of incidental findings in genomic research.
Paul S Appelbaum, Cameron R Waldman, Abby Fyer, Robert Klitzman, Erik Parens, Josue Martinez, W Nicholson Price, Wendy K Chung. Genet Med 2014
Paul S Appelbaum, Cameron R Waldman, Abby Fyer, Robert Klitzman, Erik Parens, Josue Martinez, W Nicholson Price, Wendy K Chung. Genet Med 2014
15
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
15
The incidentalome: a threat to genomic medicine.
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
Isaac S Kohane, Daniel R Masys, Russ B Altman. JAMA 2006
12
Secondary variants in individuals undergoing exome sequencing: screening of 572 individuals identifies high-penetrance mutations in cancer-susceptibility genes.
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
12
Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.
Christian Simon, Laura A Shinkunas, Debra Brandt, Janet K Williams. J Med Ethics 2012
Christian Simon, Laura A Shinkunas, Debra Brandt, Janet K Williams. J Med Ethics 2012
25
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
12
Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
12
Pediatric research and the return of individual research results.
Denise Avard, Karine Sénécal, Parvaz Madadi, Daniel Sinnett. J Law Med Ethics 2011
Denise Avard, Karine Sénécal, Parvaz Madadi, Daniel Sinnett. J Law Med Ethics 2011
15
Incidental findings in genetic research and clinical diagnostic tests: a systematic review.
Leigh Jackson, Lesley Goldsmith, Anita O'Connor, Heather Skirton. Am J Med Genet A 2012
Leigh Jackson, Lesley Goldsmith, Anita O'Connor, Heather Skirton. Am J Med Genet A 2012
12
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process.
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
12
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
12
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
12
Research ethics and the challenge of whole-genome sequencing.
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
Amy L McGuire, Timothy Caulfield, Mildred K Cho. Nat Rev Genet 2008
12
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
12
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
12
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.