Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. AJOB Prim Res 2012
Times Cited: 36
Times Cited: 36
Times Cited
Times Co-cited
Similarity
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
33
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
25
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
25
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
19
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
19
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
16
Two large-scale surveys on community attitudes toward an opt-out biobank.
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
16
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
16
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
16
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
16
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
13
To share or not to share: a randomized trial of consent for data sharing in genome research.
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
13
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
13
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
13
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
13
Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
13
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
13
Public perspectives regarding data-sharing practices in genomics research.
S B Haga, J O'Daniel. Public Health Genomics 2011
S B Haga, J O'Daniel. Public Health Genomics 2011
11
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
11
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
11
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
11
Patients, privacy and trust: patients' willingness to allow researchers to access their medical records.
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
11
"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
11
The social licence for research: why care.data ran into trouble.
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
11
The acceptability of conducting data linkage research without obtaining consent: lay people's views and justifications.
Vicki Xafis. BMC Med Ethics 2015
Vicki Xafis. BMC Med Ethics 2015
12
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
8
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat Rev Genet 2008
8
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
8
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
8
Practical implementation issues and challenges for biobanks in the return of individual research results.
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet Med 2012
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet Med 2012
8
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
8
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
8
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
8
Tailoring the process of informed consent in genetic and genomic research.
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
8
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
8
Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience.
Geraldine M McQuillan, Qiyuan Pan, Kathryn S Porter. Genet Med 2006
Geraldine M McQuillan, Qiyuan Pan, Kathryn S Porter. Genet Med 2006
8
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
8
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
8
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
8
Hypothetical and factual willingness to participate in biobank research.
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
8
Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank.
Catherine A McCarty, Ann Garber, Jonathan C Reeser, Norman C Fost. Am J Med Genet A 2011
Catherine A McCarty, Ann Garber, Jonathan C Reeser, Norman C Fost. Am J Med Genet A 2011
9
Pediatric data sharing in genomic research: attitudes and preferences of parents.
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
13
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
8
Patients' views on identifiability of samples and informed consent for genetic research.
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
8
Parental Perspectives on a Pediatric Human Non-Subjects Biobank.
Kyle B Brothers, Ellen Wright Clayton. AJOB Prim Res 2012
Kyle B Brothers, Ellen Wright Clayton. AJOB Prim Res 2012
15
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
8
Research with stored biological samples: what do research participants want?
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch Intern Med 2005
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch Intern Med 2005
8
Informed consent for genetic research on blood stored for more than a decade: a population based study.
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
8
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
8
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
8
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.