Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. 2012
Times Cited: 32
Times Cited: 32
Times Cited
Times Co-cited
Similarity
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet. Med. 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet. Med. 2010
34
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
25
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
21
Two large-scale surveys on community attitudes toward an opt-out biobank.
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am. J. Med. Genet. A 2011
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am. J. Med. Genet. A 2011
18
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
18
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur. J. Hum. Genet. 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur. J. Hum. Genet. 2013
18
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
18
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet. Med. 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet. Med. 2008
18
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
18
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
15
To share or not to share: a randomized trial of consent for data sharing in genome research.
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet. Med. 2011
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet. Med. 2011
15
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
15
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur. J. Hum. Genet. 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur. J. Hum. Genet. 2013
15
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
12
Public perspectives regarding data-sharing practices in genomics research.
S B Haga, J O'Daniel. Public Health Genomics 2011
S B Haga, J O'Daniel. Public Health Genomics 2011
16
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat. Rev. Genet. 2012
12
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
12
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol. 2006
12
Patients, privacy and trust: patients' willingness to allow researchers to access their medical records.
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
12
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet. Med. 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet. Med. 2016
12
Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
12
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
9
From genetic privacy to open consent.
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
Jeantine E Lunshof, Ruth Chadwick, Daniel B Vorhaus, George M Church. Nat. Rev. Genet. 2008
9
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
9
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
9
Practical implementation issues and challenges for biobanks in the return of individual research results.
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet. Med. 2012
9
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet. 2008
9
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
9
Tailoring the process of informed consent in genetic and genomic research.
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
Charles N Rotimi, Patricia A Marshall. Genome Med 2010
9
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
9
Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience.
Geraldine M McQuillan, Qiyuan Pan, Kathryn S Porter. Genet. Med. 2006
Geraldine M McQuillan, Qiyuan Pan, Kathryn S Porter. Genet. Med. 2006
9
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
9
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. 2013
9
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
9
Hypothetical and factual willingness to participate in biobank research.
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur. J. Hum. Genet. 2010
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur. J. Hum. Genet. 2010
9
Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank.
Catherine A McCarty, Ann Garber, Jonathan C Reeser, Norman C Fost. Am. J. Med. Genet. A 2011
Catherine A McCarty, Ann Garber, Jonathan C Reeser, Norman C Fost. Am. J. Med. Genet. A 2011
10
Pediatric data sharing in genomic research: attitudes and preferences of parents.
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
Matthew D Burstein, Jill Oliver Robinson, Susan G Hilsenbeck, Amy L McGuire, Ching C Lau. Pediatrics 2014
16
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol. Biomarkers Prev. 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol. Biomarkers Prev. 2008
9
Patients' views on identifiability of samples and informed consent for genetic research.
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
9
Parental Perspectives on a Pediatric Human Non-Subjects Biobank.
Kyle B Brothers, Ellen Wright Clayton. 2012
Kyle B Brothers, Ellen Wright Clayton. 2012
16
Research with stored biological samples: what do research participants want?
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch. Intern. Med. 2005
Donna T Chen, Donald L Rosenstein, Palaniappan Muthappan, Susan G Hilsenbeck, Franklin G Miller, Ezekiel J Emanuel, David Wendler. Arch. Intern. Med. 2005
9
Informed consent for genetic research on blood stored for more than a decade: a population based study.
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
Birgitta Stegmayr, Kjell Asplund. BMJ 2002
9
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
9
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
9
Patients' attitudes to informed consent for genomic research with donated samples.
J Ignacio Valle-Mansilla, Miguel Ruiz-Canela, Daniel P Sulmasy. Cancer Invest. 2010
J Ignacio Valle-Mansilla, Miguel Ruiz-Canela, Daniel P Sulmasy. Cancer Invest. 2010
23
Attitudes and beliefs of African Americans toward participation in medical research.
G Corbie-Smith, S B Thomas, M V Williams, S Moody-Ayers. J Gen Intern Med 1999
G Corbie-Smith, S B Thomas, M V Williams, S Moody-Ayers. J Gen Intern Med 1999
9
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
9
"It's my blood": ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants.
Keymanthri Moodley, Nomathemba Sibanda, Kelsey February, Theresa Rossouw. BMC Med Ethics 2014
Keymanthri Moodley, Nomathemba Sibanda, Kelsey February, Theresa Rossouw. BMC Med Ethics 2014
12
"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
9
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.