Jodyn Platt, Juli Bollinger, Rachel Dvoskin, Sharon L R Kardia, David Kaufman. Genet Med 2014
Times Cited: 55
Times Cited: 55
Times Cited
Times Co-cited
Similarity
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
27
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet Med 2011
25
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
21
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
21
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.
Carlo Petrini. Soc Sci Med 2010
Carlo Petrini. Soc Sci Med 2010
18
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
18
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
18
Demographic differences in willingness to provide broad and narrow consent for biobank research.
Altovise T Ewing, Lori A H Erby, Juli Bollinger, Eva Tetteyfio, Luisel J Ricks-Santi, David Kaufman. Biopreserv Biobank 2015
Altovise T Ewing, Lori A H Erby, Juli Bollinger, Eva Tetteyfio, Luisel J Ricks-Santi, David Kaufman. Biopreserv Biobank 2015
37
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
18
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
16
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
16
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
16
16
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
14
DNA data sharing: research participants' perspectives.
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
Amy L McGuire, Jennifer A Hamilton, Rebecca Lunstroth, Laurence B McCullough, Alica Goldman. Genet Med 2008
14
Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study.
Samantha M Kerath, Gila Klein, Marlena Kern, Iuliana Shapira, Jennifer Witthuhn, Nicole Norohna, Myriam Kline, Farisha Baksh, Peter Gregersen, Emanuela Taioli. BMC Public Health 2013
Samantha M Kerath, Gila Klein, Marlena Kern, Iuliana Shapira, Jennifer Witthuhn, Nicole Norohna, Myriam Kline, Farisha Baksh, Peter Gregersen, Emanuela Taioli. BMC Public Health 2013
14
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
12
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
12
Research ethics. Research practice and participant preferences: the growing gulf.
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
S B Trinidad, S M Fullerton, E J Ludman, G P Jarvik, E B Larson, W Burke. Science 2011
12
Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
12
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
12
To share or not to share: a randomized trial of consent for data sharing in genome research.
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
Amy L McGuire, Jill M Oliver, Melody J Slashinski, Jennifer L Graves, Tao Wang, P Adam Kelly, William Fisher, Ching C Lau, John Goss, Mehmet Okcu,[...]. Genet Med 2011
12
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
28
Formative research on perceptions of biobanking: what community members think.
John S Luque, Gwendolyn P Quinn, Francisco A Montel-Ishino, Mariana Arevalo, Shalanda A Bynum, Shalewa Noel-Thomas, Kristen J Wells, Clement K Gwede, Cathy D Meade. J Cancer Educ 2012
John S Luque, Gwendolyn P Quinn, Francisco A Montel-Ishino, Mariana Arevalo, Shalanda A Bynum, Shalewa Noel-Thomas, Kristen J Wells, Clement K Gwede, Cathy D Meade. J Cancer Educ 2012
10
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
10
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
10
Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.
David Kaufman, Juli Bollinger, Rachel Dvoskin, Joan Scott. Genet Med 2012
David Kaufman, Juli Bollinger, Rachel Dvoskin, Joan Scott. Genet Med 2012
17
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
10
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
9
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
9
Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.
Daniel B Thiel, Tevah Platt, Jodyn Platt, Susan B King, Sharon L R Kardia. J Community Genet 2014
Daniel B Thiel, Tevah Platt, Jodyn Platt, Susan B King, Sharon L R Kardia. J Community Genet 2014
20
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
9
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
9
Hypothetical and factual willingness to participate in biobank research.
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
Linus Johnsson, Gert Helgesson, Thorunn Rafnar, Ingibjorg Halldorsdottir, Kee-Seng Chia, Stefan Eriksson, Mats G Hansson. Eur J Hum Genet 2010
9
Two large-scale surveys on community attitudes toward an opt-out biobank.
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
Kyle B Brothers, Daniel R Morrison, Ellen W Clayton. Am J Med Genet A 2011
9
Cancer patients' attitudes toward future research uses of stored human biological materials.
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
Paul R Helft, Victoria L Champion, Rachael Eckles, Cynthia S Johnson, Eric M Meslin. J Empir Res Hum Res Ethics 2007
12
Patients' views on identifiability of samples and informed consent for genetic research.
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
Sara Chandros Hull, Richard R Sharp, Jeffrey R Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian R Clarridge,[...]. Am J Bioeth 2008
9
Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
9
"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
Elizabeth M Hill, Emma L Turner, Richard M Martin, Jenny L Donovan. BMC Med Res Methodol 2013
9
Research participants' attitudes towards the confidentiality of genomic sequence information.
Leila Jamal, Julie C Sapp, Katie Lewis, Tatiane Yanes, Flavia M Facio, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2014
Leila Jamal, Julie C Sapp, Katie Lewis, Tatiane Yanes, Flavia M Facio, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2014
16
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
9
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
J M Oliver, M J Slashinski, T Wang, P A Kelly, S G Hilsenbeck, A L McGuire. Public Health Genomics 2012
9
De-identified genomic data sharing: the research participant perspective.
Deborah Goodman, Catherine O Johnson, Deborah Bowen, Megan Smith, Lari Wenzel, Karen Edwards. J Community Genet 2017
Deborah Goodman, Catherine O Johnson, Deborah Bowen, Megan Smith, Lari Wenzel, Karen Edwards. J Community Genet 2017
20
10
Motivators for participation in a whole-genome sequencing study: implications for translational genomics research.
Flavia M Facio, Stephanie Brooks, Johanna Loewenstein, Susannah Green, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2011
Flavia M Facio, Stephanie Brooks, Johanna Loewenstein, Susannah Green, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2011
7
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
7
Meeting the governance challenges of next-generation biorepository research.
Stephanie M Fullerton, Nicholas R Anderson, Greg Guzauskas, Dena Freeman, Kelly Fryer-Edwards. Sci Transl Med 2010
Stephanie M Fullerton, Nicholas R Anderson, Greg Guzauskas, Dena Freeman, Kelly Fryer-Edwards. Sci Transl Med 2010
8
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
7
What research participants want to know about genetic research results: the impact of "genetic exceptionalism".
Miguel Ruiz-Canela, J Ignacio Valle-Mansilla, Daniel P Sulmasy. J Empir Res Hum Res Ethics 2011
Miguel Ruiz-Canela, J Ignacio Valle-Mansilla, Daniel P Sulmasy. J Empir Res Hum Res Ethics 2011
20
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.