Megan E Grove, Maya N Wolpert, Mildred K Cho, Sandra Soo-Jin Lee, Kelly E Ormond. J Genet Couns 2014
Times Cited: 35
Times Cited: 35
Times Cited
Times Co-cited
Similarity
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
74
Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin Genet 2013
34
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
31
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
31
Genetics professionals' perspectives on reporting incidental findings from clinical genome-wide sequencing.
Zoe Lohn, Shelin Adam, Patricia Birch, Anne Townsend, Jan Friedman. Am J Med Genet A 2013
Zoe Lohn, Shelin Adam, Patricia Birch, Anne Townsend, Jan Friedman. Am J Med Genet A 2013
31
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
28
"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
28
Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
28
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
25
Reporting genomic sequencing results to ordering clinicians: incidental, but not exceptional.
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
25
Point-counterpoint. Ethics and genomic incidental findings.
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
25
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
25
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
22
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
22
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
22
A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs.
Debra S Brandt, Laura Shinkunas, Stephen L Hillis, Sandra E Daack-Hirsch, Martha Driessnack, Nancy R Downing, Megan F Liu, Lisa L Shah, Janet K Williams, Christian M Simon. J Genet Couns 2013
Debra S Brandt, Laura Shinkunas, Stephen L Hillis, Sandra E Daack-Hirsch, Martha Driessnack, Nancy R Downing, Megan F Liu, Lisa L Shah, Janet K Williams, Christian M Simon. J Genet Couns 2013
31
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
20
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
. Genet Med 2015
20
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
20
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
17
Self-guided management of exome and whole-genome sequencing results: changing the results return model.
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet Med 2013
Joon-Ho Yu, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Genet Med 2013
17
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
17
Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.
Brooke L Levenseller, Danielle J Soucier, Victoria A Miller, Diana Harris, Laura Conway, Barbara A Bernhardt. J Genet Couns 2014
Brooke L Levenseller, Danielle J Soucier, Victoria A Miller, Diana Harris, Laura Conway, Barbara A Bernhardt. J Genet Couns 2014
17
Return of secondary genomic findings vs patient autonomy: implications for medical care.
Robert Klitzman, Paul S Appelbaum, Wendy Chung. JAMA 2013
Robert Klitzman, Paul S Appelbaum, Wendy Chung. JAMA 2013
17
Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.
Nancy R Downing, Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Christian M Simon. Patient Educ Couns 2013
Nancy R Downing, Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Christian M Simon. Patient Educ Couns 2013
17
Views of primary care providers regarding the return of genome sequencing incidental findings.
K A Strong, K L Zusevics, D Bick, R Veith. Clin Genet 2014
K A Strong, K L Zusevics, D Bick, R Veith. Clin Genet 2014
26
Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.
Layla Shahmirzadi, Elizabeth C Chao, Erika Palmaer, Melissa C Parra, Sha Tang, Kelly D Farwell Gonzalez. Genet Med 2014
Layla Shahmirzadi, Elizabeth C Chao, Erika Palmaer, Melissa C Parra, Sha Tang, Kelly D Farwell Gonzalez. Genet Med 2014
17
Reporting genomic secondary findings: ACMG members weigh in.
Maren T Scheuner, Jane Peredo, Judith Benkendorf, Bruce Bowdish, Gerald Feldman, Lynn Fleisher, John J Mulvihill, Michael Watson, Gail E Herman, James Evans. Genet Med 2015
Maren T Scheuner, Jane Peredo, Judith Benkendorf, Bruce Bowdish, Gerald Feldman, Lynn Fleisher, John J Mulvihill, Michael Watson, Gail E Herman, James Evans. Genet Med 2015
17
Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
17
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
14
Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
14
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
14
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
14
'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.
S Daack-Hirsch, M Driessnack, A Hanish, V A Johnson, L L Shah, C M Simon, J K Williams. Clin Genet 2013
S Daack-Hirsch, M Driessnack, A Hanish, V A Johnson, L L Shah, C M Simon, J K Williams. Clin Genet 2013
14
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
14
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
14
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
14
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am J Med Genet A 2011
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am J Med Genet A 2011
14
Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
14
Challenges in the clinical application of whole-genome sequencing.
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
Kelly E Ormond, Matthew T Wheeler, Louanne Hudgins, Teri E Klein, Atul J Butte, Russ B Altman, Euan A Ashley, Henry T Greely. Lancet 2010
14
ACMG recommendations on incidental findings are flawed scientifically and ethically.
Neil A Holtzman. Genet Med 2013
Neil A Holtzman. Genet Med 2013
14
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
14
Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
14
Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
14
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
11
Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
11
Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting.
Conrad V Fernandez, Caron Strahlendorf, Denise Avard, Bartha M Knoppers, Colleen O'Connell, Eric Bouffet, David Malkin, Nada Jabado, Kym Boycott, Poul H Sorensen. Genet Med 2013
Conrad V Fernandez, Caron Strahlendorf, Denise Avard, Bartha M Knoppers, Colleen O'Connell, Eric Bouffet, David Malkin, Nada Jabado, Kym Boycott, Poul H Sorensen. Genet Med 2013
11
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
11
Processes and factors involved in decisions regarding return of incidental genomic findings in research.
Robert Klitzman, Brigitte Buquez, Paul S Appelbaum, Abby Fyer, Wendy K Chung. Genet Med 2014
Robert Klitzman, Brigitte Buquez, Paul S Appelbaum, Abby Fyer, Wendy K Chung. Genet Med 2014
18
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