Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet. Med. 2013
Times Cited: 67
Times Cited: 67
Times Cited
Citation Count
Similarity
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet. Med. 2013
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Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am. J. Hum. Genet. 2014
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet. Med. 2012
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Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am. J. Epidemiol. 2014
Christine Weiner. Am. J. Epidemiol. 2014
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Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur. J. Hum. Genet. 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur. J. Hum. Genet. 2016
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Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet. Med. 2012
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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet. Med. 2011
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Disclosing individual genetic results to research participants.
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
Vardit Ravitsky, Benjamin S Wilfond. Am J Bioeth 2006
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Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium.
Jonathan S Berg, Laura M Amendola, Christine Eng, Eliezer Van Allen, Stacy W Gray, Nikhil Wagle, Heidi L Rehm, Elizabeth T DeChene, Matthew C Dulik, Fuki M Hisama,[...]. Genet. Med. 2013
Jonathan S Berg, Laura M Amendola, Christine Eng, Eliezer Van Allen, Stacy W Gray, Nikhil Wagle, Heidi L Rehm, Elizabeth T DeChene, Matthew C Dulik, Fuki M Hisama,[...]. Genet. Med. 2013
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Experiences and attitudes of genome investigators regarding return of individual genetic test results.
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet. Med. 2013
Rachel B Ramoni, Amy L McGuire, Jill Oliver Robinson, Debra S Morley, Sharon E Plon, Steven Joffe. Genet. Med. 2013
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Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet. Med. 2013
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Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Hum. Genet. 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am. J. Hum. Genet. 2014
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Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
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Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
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Point-counterpoint. Ethics and genomic incidental findings.
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
Amy L McGuire, Steven Joffe, Barbara A Koenig, Barbara B Biesecker, Laurence B McCullough, Jennifer S Blumenthal-Barby, Timothy Caulfield, Sharon F Terry, Robert C Green. Science 2013
16
Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet. Med. 2012
16
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet. Med. 2015
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Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin. Genet. 2013
A A Lemke, D Bick, D Dimmock, P Simpson, R Veith. Clin. Genet. 2013
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Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet. Med. 2008
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Processes and factors involved in decisions regarding return of incidental genomic findings in research.
Robert Klitzman, Brigitte Buquez, Paul S Appelbaum, Abby Fyer, Wendy K Chung. Genet. Med. 2014
Robert Klitzman, Brigitte Buquez, Paul S Appelbaum, Abby Fyer, Wendy K Chung. Genet. Med. 2014
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Informed consent for return of incidental findings in genomic research.
Paul S Appelbaum, Cameron R Waldman, Abby Fyer, Robert Klitzman, Erik Parens, Josue Martinez, W Nicholson Price, Wendy K Chung. Genet. Med. 2014
Paul S Appelbaum, Cameron R Waldman, Abby Fyer, Robert Klitzman, Erik Parens, Josue Martinez, W Nicholson Price, Wendy K Chung. Genet. Med. 2014
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Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting.
Conrad V Fernandez, Caron Strahlendorf, Denise Avard, Bartha M Knoppers, Colleen O'Connell, Eric Bouffet, David Malkin, Nada Jabado, Kym Boycott, Poul H Sorensen. Genet. Med. 2013
Conrad V Fernandez, Caron Strahlendorf, Denise Avard, Bartha M Knoppers, Colleen O'Connell, Eric Bouffet, David Malkin, Nada Jabado, Kym Boycott, Poul H Sorensen. Genet. Med. 2013
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"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am. J. Med. Genet. A 2012
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Disclosing individual results of clinical research: implications of respect for participants.
David I Shalowitz, Franklin G Miller. JAMA 2005
David I Shalowitz, Franklin G Miller. JAMA 2005
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Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am. J. Med. Genet. A 2006
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The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
Ellen Wright Clayton, Amy L McGuire. Genet. Med. 2012
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Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur. J. Hum. Genet. 2013
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur. J. Hum. Genet. 2013
13
Return of results: ethical and legal distinctions between research and clinical care.
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
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Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet. Med. 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet. Med. 2017
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Researcher perspectives on disclosure of incidental findings in genetic research.
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
Meredith C Meacham, Helene Starks, Wylie Burke, Kelly Edwards. J Empir Res Hum Res Ethics 2010
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The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur. J. Hum. Genet. 2006
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Return of secondary genomic findings vs patient autonomy: implications for medical care.
Robert Klitzman, Paul S Appelbaum, Wendy Chung. JAMA 2013
Robert Klitzman, Paul S Appelbaum, Wendy Chung. JAMA 2013
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Reporting genomic sequencing results to ordering clinicians: incidental, but not exceptional.
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
Robert C Green, James R Lupski, Leslie G Biesecker. JAMA 2013
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Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
12
Clinical whole-exome sequencing for the diagnosis of mendelian disorders.
Yaping Yang, Donna M Muzny, Jeffrey G Reid, Matthew N Bainbridge, Alecia Willis, Patricia A Ward, Alicia Braxton, Joke Beuten, Fan Xia, Zhiyv Niu,[...]. N. Engl. J. Med. 2013
Yaping Yang, Donna M Muzny, Jeffrey G Reid, Matthew N Bainbridge, Alecia Willis, Patricia A Ward, Alicia Braxton, Joke Beuten, Fan Xia, Zhiyv Niu,[...]. N. Engl. J. Med. 2013
11
The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res. 2012
Christopher A Cassa, Sarah K Savage, Patrick L Taylor, Robert C Green, Amy L McGuire, Kenneth D Mandl. Genome Res. 2012
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Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing.
Megan Allyse, Marsha Michie. Trends Biotechnol. 2013
Megan Allyse, Marsha Michie. Trends Biotechnol. 2013
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Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
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Incidental findings in the era of whole genome sequencing?
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
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To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur. J. Hum. Genet. 2013
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Informing study participants of research results: an ethical imperative.
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
Conrad V Fernandez, Eric Kodish, Charles Weijer. IRB 2003
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Models of consent to return of incidental findings in genomic research.
Paul S Appelbaum, Erik Parens, Cameron R Waldman, Robert Klitzman, Abby Fyer, Josue Martinez, W Nicholson Price, Wendy K Chung. Hastings Cent Rep 2014
Paul S Appelbaum, Erik Parens, Cameron R Waldman, Robert Klitzman, Abby Fyer, Josue Martinez, W Nicholson Price, Wendy K Chung. Hastings Cent Rep 2014
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Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur. J. Hum. Genet. 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur. J. Hum. Genet. 2013
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Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS ONE 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS ONE 2014
41
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