Kristi D Graves, Pamela S Sinicrope, Mary Jane Esplen, Susan K Peterson, Christi A Patten, Jan Lowery, Frank A Sinicrope, Sandra K Nigon, Joyce Borgen, Sherri Sheinfeld Gorin, Louise A Keogh, Noralane M Lindor. Genet Med 2014
Times Cited: 26
Times Cited: 26
Times Cited
Times Co-cited
Similarity
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
30
Preparing individuals to communicate genetic test results to their relatives: report of a randomized control trial.
Susan V Montgomery, Andrea M Barsevick, Brian L Egleston, Ruth Bingler, Karen Ruth, Suzanne M Miller, John Malick, Terrence P Cescon, Mary B Daly. Fam Cancer 2013
Susan V Montgomery, Andrea M Barsevick, Brian L Egleston, Ruth Bingler, Karen Ruth, Suzanne M Miller, John Malick, Terrence P Cescon, Mary B Daly. Fam Cancer 2013
23
Return of results: ethical and legal distinctions between research and clinical care.
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
Wylie Burke, Barbara J Evans, Gail P Jarvik. Am J Med Genet C Semin Med Genet 2014
23
Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
28
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
23
Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers.
Kurt D Christensen, J Scott Roberts, David I Shalowitz, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. Cancer Epidemiol Biomarkers Prev 2011
Kurt D Christensen, J Scott Roberts, David I Shalowitz, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. Cancer Epidemiol Biomarkers Prev 2011
23
Sharing genetic test results in Lynch syndrome: communication with close and distant relatives.
Elena M Stoffel, Beth Ford, Rowena C Mercado, Darashana Punglia, Wendy Kohlmann, Peggy Conrad, Amie Blanco, Kristen M Shannon, Mark Powell, Stephen B Gruber,[...]. Clin Gastroenterol Hepatol 2008
Elena M Stoffel, Beth Ford, Rowena C Mercado, Darashana Punglia, Wendy Kohlmann, Peggy Conrad, Amie Blanco, Kristen M Shannon, Mark Powell, Stephen B Gruber,[...]. Clin Gastroenterol Hepatol 2008
19
Family communication of BRCA1/2 results and family uptake of BRCA1/2 testing in a diverse population of BRCA1/2 carriers.
Julia Fehniger, Feng Lin, Mary S Beattie, Galen Joseph, Celia Kaplan. J Genet Couns 2013
Julia Fehniger, Feng Lin, Mary S Beattie, Galen Joseph, Celia Kaplan. J Genet Couns 2013
19
Offering individual genetic research results: context matters.
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
Laura M Beskow, Wylie Burke. Sci Transl Med 2010
19
Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
19
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
19
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
19
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
19
How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry.
Louise A Keogh, Douglass Fisher, Sherri Sheinfeld Gorin, Sheri D Schully, Jan T Lowery, Dennis J Ahnen, Judith A Maskiell, Noralane M Lindor, John L Hopper, Terrilea Burnett,[...]. J Community Genet 2014
Louise A Keogh, Douglass Fisher, Sherri Sheinfeld Gorin, Sheri D Schully, Jan T Lowery, Dennis J Ahnen, Judith A Maskiell, Noralane M Lindor, John L Hopper, Terrilea Burnett,[...]. J Community Genet 2014
33
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
19
Factors determining dissemination of results and uptake of genetic testing in families with known BRCA1/2 mutations.
Esme Finlay, Jill E Stopfer, Eric Burlingame, Katherine Goldfeder Evans, Katherine L Nathanson, Barbara L Weber, Katrina Armstrong, Timothy R Rebbeck, Susan M Domchek. Genet Test 2008
Esme Finlay, Jill E Stopfer, Eric Burlingame, Katherine Goldfeder Evans, Katherine L Nathanson, Barbara L Weber, Katrina Armstrong, Timothy R Rebbeck, Susan M Domchek. Genet Test 2008
15
Communication of BRCA results and family testing in 1,103 high-risk women.
Eleanor L Cheung, Ashley D Olson, Tina M Yu, Pamela Z Han, Mary S Beattie. Cancer Epidemiol Biomarkers Prev 2010
Eleanor L Cheung, Ashley D Olson, Tina M Yu, Pamela Z Han, Mary S Beattie. Cancer Epidemiol Biomarkers Prev 2010
15
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
15
Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
15
Communicating genetic information in families--a review of guidelines and position papers.
Laura E Forrest, Martin B Delatycki, Loane Skene, MaryAnne Aitken. Eur J Hum Genet 2007
Laura E Forrest, Martin B Delatycki, Loane Skene, MaryAnne Aitken. Eur J Hum Genet 2007
15
Technical report: Ethical and policy issues in genetic testing and screening of children.
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson. Genet Med 2013
15
The legal risks of returning results of genomics research.
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
Ellen Wright Clayton, Amy L McGuire. Genet Med 2012
15
Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
15
Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.
Laura M Amendola, Martha Horike-Pyne, Susan B Trinidad, Stephanie M Fullerton, Barbara J Evans, Wylie Burke, Gail P Jarvik. J Law Med Ethics 2015
Laura M Amendola, Martha Horike-Pyne, Susan B Trinidad, Stephanie M Fullerton, Barbara J Evans, Wylie Burke, Gail P Jarvik. J Law Med Ethics 2015
28
Return of individual research results and incidental findings: facing the challenges of translational science.
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
Susan M Wolf. Annu Rev Genomics Hum Genet 2013
15
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
Ebony B Bookman, Aleisha A Langehorne, John H Eckfeldt, Kathleen C Glass, Gail P Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A Manolio,[...]. Am J Med Genet A 2006
15
Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
15
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
15
Research Participants' Preferences for Hypothetical Secondary Results from Genomic Research.
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
15
Communicating genetic test results within the family: Is it lost in translation? A survey of relatives in the randomized six-step study.
Mary B Daly, Susan Montgomery, Ruth Bingler, Karen Ruth. Fam Cancer 2016
Mary B Daly, Susan Montgomery, Ruth Bingler, Karen Ruth. Fam Cancer 2016
15
Participant use and communication of findings from exome sequencing: a mixed-methods study.
Katie L Lewis, Gillian W Hooker, Philip D Connors, Travis C Hyams, Martha F Wright, Samantha Caldwell, Leslie G Biesecker, Barbara B Biesecker. Genet Med 2016
Katie L Lewis, Gillian W Hooker, Philip D Connors, Travis C Hyams, Martha F Wright, Samantha Caldwell, Leslie G Biesecker, Barbara B Biesecker. Genet Med 2016
15
Psychological and behavioural impact of returning personal results from whole-genome sequencing: the HealthSeq project.
Saskia C Sanderson, Michael D Linderman, Sabrina A Suckiel, Randi Zinberg, Melissa Wasserstein, Andrew Kasarskis, George A Diaz, Eric E Schadt. Eur J Hum Genet 2017
Saskia C Sanderson, Michael D Linderman, Sabrina A Suckiel, Randi Zinberg, Melissa Wasserstein, Andrew Kasarskis, George A Diaz, Eric E Schadt. Eur J Hum Genet 2017
15
Process and outcome in communication of genetic information within families: a systematic review.
Clara L Gaff, Angus J Clarke, Paul Atkinson, Stephanie Sivell, Glyn Elwyn, Rachel Iredale, Hazel Thornton, Joanna Dundon, Chris Shaw, Adrian Edwards. Eur J Hum Genet 2007
Clara L Gaff, Angus J Clarke, Paul Atkinson, Stephanie Sivell, Glyn Elwyn, Rachel Iredale, Hazel Thornton, Joanna Dundon, Chris Shaw, Adrian Edwards. Eur J Hum Genet 2007
11
Family communication following BRCA1/2 genetic testing: a close look at the process.
Darquise Lafrenière, Karine Bouchard, Béatrice Godard, Jacques Simard, Michel Dorval. J Genet Couns 2013
Darquise Lafrenière, Karine Bouchard, Béatrice Godard, Jacques Simard, Michel Dorval. J Genet Couns 2013
12
Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients.
Erna Claes, Gerry Evers-Kiebooms, Andrea Boogaerts, Marleen Decruyenaere, Lieve Denayer, Eric Legius. Am J Med Genet A 2003
Erna Claes, Gerry Evers-Kiebooms, Andrea Boogaerts, Marleen Decruyenaere, Lieve Denayer, Eric Legius. Am J Med Genet A 2003
11
Family communication about genetic risk: the little that is known.
Brenda J Wilson, Karen Forrest, Edwin R van Teijlingen, Lorna McKee, Neva Haites, Eric Matthews, Sheila A Simpson. Community Genet 2004
Brenda J Wilson, Karen Forrest, Edwin R van Teijlingen, Lorna McKee, Neva Haites, Eric Matthews, Sheila A Simpson. Community Genet 2004
11
Communicating BRCA1/2 genetic test results within the family: a qualitative analysis.
Caroline Dancyger, Mel Wiseman, Chris Jacobs, Jonathan A Smith, Melissa Wallace, Susan Michie. Psychol Health 2011
Caroline Dancyger, Mel Wiseman, Chris Jacobs, Jonathan A Smith, Melissa Wallace, Susan Michie. Psychol Health 2011
11
Practical implementation issues and challenges for biobanks in the return of individual research results.
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet Med 2012
Marianna J Bledsoe, William E Grizzle, Brian J Clark, Nikolajs Zeps. Genet Med 2012
11
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
11
Addressing the ethical challenges in genetic testing and sequencing of children.
Ellen Wright Clayton, Laurence B McCullough, Leslie G Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M Wolf. Am J Bioeth 2014
Ellen Wright Clayton, Laurence B McCullough, Leslie G Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M Wolf. Am J Bioeth 2014
11
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.
Ben Chan, Flavia M Facio, Haley Eidem, Sara Chandros Hull, Leslie G Biesecker, Benjamin E Berkman. Am J Bioeth 2012
Ben Chan, Flavia M Facio, Haley Eidem, Sara Chandros Hull, Leslie G Biesecker, Benjamin E Berkman. Am J Bioeth 2012
11
The "duty to warn" a patient's family members about hereditary disease risks.
Kenneth Offit, Elizabeth Groeger, Sam Turner, Eve A Wadsworth, Mary A Weiser. JAMA 2004
Kenneth Offit, Elizabeth Groeger, Sam Turner, Eve A Wadsworth, Mary A Weiser. JAMA 2004
11
Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
12
Motivators for participation in a whole-genome sequencing study: implications for translational genomics research.
Flavia M Facio, Stephanie Brooks, Johanna Loewenstein, Susannah Green, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2011
Flavia M Facio, Stephanie Brooks, Johanna Loewenstein, Susannah Green, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2011
11
Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.
Nicole L Allen, Elizabeth W Karlson, Susan Malspeis, Bing Lu, Christine E Seidman, Lisa Soleymani Lehmann. Mayo Clin Proc 2014
Nicole L Allen, Elizabeth W Karlson, Susan Malspeis, Bing Lu, Christine E Seidman, Lisa Soleymani Lehmann. Mayo Clin Proc 2014
11
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
11
Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.
Ingrid A Holm, Sarah K Savage, Robert C Green, Eric Juengst, Amy McGuire, Susan Kornetsky, Stephanie J Brewster, Steven Joffe, Patrick Taylor. Genet Med 2014
Ingrid A Holm, Sarah K Savage, Robert C Green, Eric Juengst, Amy McGuire, Susan Kornetsky, Stephanie J Brewster, Steven Joffe, Patrick Taylor. Genet Med 2014
11
The return of unexpected research results in a biobank study and referral to health care for heritable long QT syndrome.
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
12
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
Stephanie M Fullerton, Wendy A Wolf, Kyle B Brothers, Ellen Wright Clayton, Dana C Crawford, Joshua C Denny, Philip Greenland, Barbara A Koenig, Kathleen A Leppig, Noralane M Lindor,[...]. Genet Med 2012
11
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
11
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.