Jane Kaye, Nadja Kanellopoulou, Naomi Hawkins, Heather Gowans, Liam Curren, Karen Melham. Med Law Rev 2014
Times Cited: 15
Times Cited: 15
Times Cited
Times Co-cited
Similarity
Potential research participants support the return of raw sequence data.
Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker. J Med Genet 2015
Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker. J Med Genet 2015
46
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
40
Disclosure of individual genetic data to research participants: the debate reconsidered.
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
Annelien L Bredenoord, Hester Y Kroes, Edwin Cuppen, Michael Parker, Johannes J M van Delden. Trends Genet 2011
33
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
26
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
26
You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative.
Misha Angrist. Per Med 2011
Misha Angrist. Per Med 2011
26
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
26
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
26
Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data.
Caroline F Wright, Tomas W Fitzgerald, Wendy D Jones, Stephen Clayton, Jeremy F McRae, Margriet van Kogelenberg, Daniel A King, Kirsty Ambridge, Daniel M Barrett, Tanya Bayzetinova,[...]. Lancet 2015
Caroline F Wright, Tomas W Fitzgerald, Wendy D Jones, Stephen Clayton, Jeremy F McRae, Margriet van Kogelenberg, Daniel A King, Kirsty Ambridge, Daniel M Barrett, Tanya Bayzetinova,[...]. Lancet 2015
20
Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research.
A Middleton, E Bragin, M Parker. J Community Genet 2014
A Middleton, E Bragin, M Parker. J Community Genet 2014
23
The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
20
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
20
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
Nils Homer, Szabolcs Szelinger, Margot Redman, David Duggan, Waibhav Tembe, Jill Muehling, John V Pearson, Dietrich A Stephan, Stanley F Nelson, David W Craig. PLoS Genet 2008
20
The tension between data sharing and the protection of privacy in genomics research.
Jane Kaye. Annu Rev Genomics Hum Genet 2012
Jane Kaye. Annu Rev Genomics Hum Genet 2012
20
Routes for breaching and protecting genetic privacy.
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
20
Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
20
Returning genome sequences to research participants: Policy and practice.
Caroline F Wright, Anna Middleton, Jeffrey C Barrett, Helen V Firth, David R FitzPatrick, Matthew E Hurles, Michael Parker. Wellcome Open Res 2017
Caroline F Wright, Anna Middleton, Jeffrey C Barrett, Helen V Firth, David R FitzPatrick, Matthew E Hurles, Michael Parker. Wellcome Open Res 2017
27
Information access. Raw personal data: providing access.
Jeantine E Lunshof, George M Church, Barbara Prainsack. Science 2014
Jeantine E Lunshof, George M Church, Barbara Prainsack. Science 2014
20
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
13
No expectation to share incidental findings in genomic research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Lancet 2015
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Lancet 2015
13
Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data.
A Middleton, E Bragin, K I Morley, M Parker. Soc Sci Res 2014
A Middleton, E Bragin, K I Morley, M Parker. Soc Sci Res 2014
15
Open window: when easily identifiable genomes and traits are in the public domain.
Misha Angrist. PLoS One 2014
Misha Angrist. PLoS One 2014
50
Evolving approaches to the ethical management of genomic data.
Jean E McEwen, Joy T Boyer, Kathie Y Sun. Trends Genet 2013
Jean E McEwen, Joy T Boyer, Kathie Y Sun. Trends Genet 2013
13
Share and share alike: deciding how to distribute the scientific and social benefits of genomic data.
Morris W Foster, Richard R Sharp. Nat Rev Genet 2007
Morris W Foster, Richard R Sharp. Nat Rev Genet 2007
13
13
Data sharing in genomics--re-shaping scientific practice.
Jane Kaye, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington. Nat Rev Genet 2009
Jane Kaye, Catherine Heeney, Naomi Hawkins, Jantina de Vries, Paula Boddington. Nat Rev Genet 2009
13
Toward a roadmap in global biobanking for health.
Jennifer R Harris, Paul Burton, Bartha Maria Knoppers, Klaus Lindpaintner, Marianna Bledsoe, Anthony J Brookes, Isabelle Budin-Ljøsne, Rex Chisholm, David Cox, Mylène Deschênes,[...]. Eur J Hum Genet 2012
Jennifer R Harris, Paul Burton, Bartha Maria Knoppers, Klaus Lindpaintner, Marianna Bledsoe, Anthony J Brookes, Isabelle Budin-Ljøsne, Rex Chisholm, David Cox, Mylène Deschênes,[...]. Eur J Hum Genet 2012
13
Towards a data sharing Code of Conduct for international genomic research.
Bartha Maria Knoppers, Jennifer R Harris, Anne Marie Tassé, Isabelle Budin-Ljøsne, Jane Kaye, Mylène Deschênes, Ma'n H Zawati. Genome Med 2011
Bartha Maria Knoppers, Jennifer R Harris, Anne Marie Tassé, Isabelle Budin-Ljøsne, Jane Kaye, Mylène Deschênes, Ma'n H Zawati. Genome Med 2011
13
On Jim Watson's APOE status: genetic information is hard to hide.
Dale R Nyholt, Chang-En Yu, Peter M Visscher. Eur J Hum Genet 2009
Dale R Nyholt, Chang-En Yu, Peter M Visscher. Eur J Hum Genet 2009
13
Genetics. Genomic research and human subject privacy.
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
Zhen Lin, Art B Owen, Russ B Altman. Science 2004
13
The Cancer Genome Atlas Pan-Cancer analysis project.
John N Weinstein, Eric A Collisson, Gordon B Mills, Kenna R Mills Shaw, Brad A Ozenberger, Kyle Ellrott, Ilya Shmulevich, Chris Sander, Joshua M Stuart. Nat Genet 2013
John N Weinstein, Eric A Collisson, Gordon B Mills, Kenna R Mills Shaw, Brad A Ozenberger, Kyle Ellrott, Ilya Shmulevich, Chris Sander, Joshua M Stuart. Nat Genet 2013
13
Genetic discrimination and life insurance: a systematic review of the evidence.
Yann Joly, Ida Ngueng Feze, Jacques Simard. BMC Med 2013
Yann Joly, Ida Ngueng Feze, Jacques Simard. BMC Med 2013
13
Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
Yann Joly, Edward S Dove, Bartha M Knoppers, Martin Bobrow, Don Chalmers. PLoS Comput Biol 2012
Yann Joly, Edward S Dove, Bartha M Knoppers, Martin Bobrow, Don Chalmers. PLoS Comput Biol 2012
13
From genomic databases to translation: a call to action.
Bartha Maria Knoppers, Jennifer R Harris, Paul R Burton, Madeleine Murtagh, David Cox, Mylène Deschênes, Isabel Fortier, Thomas J Hudson, Jane Kaye, Klaus Lindpaintner. J Med Ethics 2011
Bartha Maria Knoppers, Jennifer R Harris, Paul R Burton, Madeleine Murtagh, David Cox, Mylène Deschênes, Isabel Fortier, Thomas J Hudson, Jane Kaye, Klaus Lindpaintner. J Med Ethics 2011
28
Framework for responsible sharing of genomic and health-related data.
Bartha Maria Knoppers. Hugo J 2014
Bartha Maria Knoppers. Hugo J 2014
13
Return of genetic testing results in the era of whole-genome sequencing.
Bartha Maria Knoppers, Ma'n H Zawati, Karine Sénécal. Nat Rev Genet 2015
Bartha Maria Knoppers, Ma'n H Zawati, Karine Sénécal. Nat Rev Genet 2015
13
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
13
Principle of proportionality in genomic data sharing.
Caroline F Wright, Matthew E Hurles, Helen V Firth. Nat Rev Genet 2016
Caroline F Wright, Matthew E Hurles, Helen V Firth. Nat Rev Genet 2016
16
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
13
The past, present, and future of the debate over return of research results and incidental findings.
Susan M Wolf. Genet Med 2012
Susan M Wolf. Genet Med 2012
13
Do researchers have an obligation to actively look for genetic incidental findings?
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
Catherine Gliwa, Benjamin E Berkman. Am J Bioeth 2013
13
Public's Views toward Return of Secondary Results in Genomic Sequencing: It's (Almost) All about the Choice.
Kerry A Ryan, Raymond G De Vries, Wendy R Uhlmann, J Scott Roberts, Michele C Gornick. J Genet Couns 2017
Kerry A Ryan, Raymond G De Vries, Wendy R Uhlmann, J Scott Roberts, Michele C Gornick. J Genet Couns 2017
16
13
Incidental findings in the era of whole genome sequencing?
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
13
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
13
Personal genome research : what should the participant be told?
Amy L McGuire, James R Lupski. Trends Genet 2010
Amy L McGuire, James R Lupski. Trends Genet 2010
13
The promise of whole-exome sequencing in medical genetics.
Bahareh Rabbani, Mustafa Tekin, Nejat Mahdieh. J Hum Genet 2014
Bahareh Rabbani, Mustafa Tekin, Nejat Mahdieh. J Hum Genet 2014
13
Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
13
The Danish Blood Donor Study: a large, prospective cohort and biobank for medical research.
O B Pedersen, C Erikstrup, S R Kotzé, E Sørensen, M S Petersen, K Grau, H Ullum. Vox Sang 2012
O B Pedersen, C Erikstrup, S R Kotzé, E Sørensen, M S Petersen, K Grau, H Ullum. Vox Sang 2012
13
Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
13
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.