Corinna Porteri, Patrizio Pasqualetti, Elena Togni, Michael Parker. BMC Med Ethics 2014
Times Cited: 35
Times Cited: 35
Times Cited
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Factors influencing public participation in biobanking.
Mamoun Ahram, Areej Othman, Manal Shahrouri, Ebtihal Mustafa. Eur J Hum Genet 2014
Mamoun Ahram, Areej Othman, Manal Shahrouri, Ebtihal Mustafa. Eur J Hum Genet 2014
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Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
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Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
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Biobanking for research: a survey of patient population attitudes and understanding.
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Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
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Communication of biobanks' research results: what do (potential) participants want?
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Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study.
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20
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Willingness to donate blood samples for genetic research: a survey from a community in Singapore.
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Predicting intention to biobank: a national survey.
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Cancer patient perceptions on the ethical and legal issues related to biobanking.
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Hypothetical and factual willingness to participate in biobank research.
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Public perception towards biobanking in jordan.
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Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review.
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
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Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
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Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens.
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Cancer patient perceptions about biobanking and preferred timing of consent.
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Biobank Recruitment: Motivations for Nonparticipation.
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Katrina A B Goddard, K Sabina Smith, Chuhe Chen, Carmit McMullen, Cheryl Johnson. Biopreserv Biobank 2009
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Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
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Subjects matter: a survey of public opinions about a large genetic cohort study.
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14
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.
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Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
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Attitudes and perceptions of patients towards methods of establishing a DNA biobank.
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Jill M Pulley, Margaret M Brace, Gordon R Bernard, Dan R Masys. Cell Tissue Bank 2008
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Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain.
M Ruiz-Canela, J I Valle-Mansilla, D P Sulmasy. J Med Ethics 2009
M Ruiz-Canela, J I Valle-Mansilla, D P Sulmasy. J Med Ethics 2009
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Public attitudes regarding the donation and storage of blood specimens for genetic research.
S S Wang, F Fridinger, K M Sheedy, M J Khoury. Community Genet 2001
S S Wang, F Fridinger, K M Sheedy, M J Khoury. Community Genet 2001
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The Lausanne Institutional Biobank: a new resource to catalyse research in personalised medicine and pharmaceutical sciences.
Vincent Mooser, Christine Currat. Swiss Med Wkly 2014
Vincent Mooser, Christine Currat. Swiss Med Wkly 2014
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Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?
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J L Ridgeway, L C Han, J E Olson, K A Lackore, B A Koenig, T J Beebe, J Y Ziegenfuss. Public Health Genomics 2013
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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
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Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
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Factors associated with willingness to participate in biospecimen research among Chinese Americans.
Wanzhen Gao, Grace X Ma, Yin Tan, Carolyn Fang, JoEllen Weaver, Ming Jin, Philip Lai. Biopreserv Biobank 2014
Wanzhen Gao, Grace X Ma, Yin Tan, Carolyn Fang, JoEllen Weaver, Ming Jin, Philip Lai. Biopreserv Biobank 2014
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The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research.
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Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
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Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
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Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
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Public preferences for the return of research results in genetic research: a conjoint analysis.
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
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Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
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Understanding public reactions to commercialization of biobanks and use of biobank resources.
Dianne Nicol, Christine Critchley, Rebekah McWhirter, Tess Whitton. Soc Sci Med 2016
Dianne Nicol, Christine Critchley, Rebekah McWhirter, Tess Whitton. Soc Sci Med 2016
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Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
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Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
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Young people's awareness on biobanking and DNA profiling: results of a questionnaire administered to Italian university students.
Pamela Tozzo, Antonio Fassina, Luciana Caenazzo. Life Sci Soc Policy 2017
Pamela Tozzo, Antonio Fassina, Luciana Caenazzo. Life Sci Soc Policy 2017
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Collection, storage and use of blood samples for future research: views of Egyptian patients expressed in a cross-sectional survey.
Alaa Abou-Zeid, Henry Silverman, Magdi Shehata, Mohamed Shams, Mervat Elshabrawy, Tamer Hifnawy, Safa Abdel Rahman, Bahiga Galal, Hany Sleem, Nabiel Mikhail,[...]. J Med Ethics 2010
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12
The Public's Awareness of and Attitude Toward Research Biobanks - A Regional German Survey.
Sabine Bossert, Hannes Kahrass, Daniel Strech. Front Genet 2018
Sabine Bossert, Hannes Kahrass, Daniel Strech. Front Genet 2018
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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
23
Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study.
Virgilia Toccaceli, Corrado Fagnani, Lorenza Nisticò, Cristina D'Ippolito, Lorenzo Giannantonio, Sonia Brescianini, Maria Antonietta Stazi. BMC Med Ethics 2009
Virgilia Toccaceli, Corrado Fagnani, Lorenza Nisticò, Cristina D'Ippolito, Lorenzo Giannantonio, Sonia Brescianini, Maria Antonietta Stazi. BMC Med Ethics 2009
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Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
Klaus Hoeyer, Bert-Ove Olofsson, Tom Mjörndal, Niels Lynöe. Scand J Public Health 2004
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Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
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Public attitudes regarding willingness to participate in medical research studies.
J M Trauth, D Musa, L Siminoff, I K Jewell, E Ricci. J Health Soc Policy 2000
J M Trauth, D Musa, L Siminoff, I K Jewell, E Ricci. J Health Soc Policy 2000
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Understanding of informed consent by parents of children enrolled in a genetic biobank.
Jennifer Klima, Sara M Fitzgerald-Butt, Kelly J Kelleher, Deena J Chisolm, R Dawn Comstock, Amy K Ferketich, Kim L McBride. Genet Med 2014
Jennifer Klima, Sara M Fitzgerald-Butt, Kelly J Kelleher, Deena J Chisolm, R Dawn Comstock, Amy K Ferketich, Kim L McBride. Genet Med 2014
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Demographic differences in willingness to provide broad and narrow consent for biobank research.
Altovise T Ewing, Lori A H Erby, Juli Bollinger, Eva Tetteyfio, Luisel J Ricks-Santi, David Kaufman. Biopreserv Biobank 2015
Altovise T Ewing, Lori A H Erby, Juli Bollinger, Eva Tetteyfio, Luisel J Ricks-Santi, David Kaufman. Biopreserv Biobank 2015
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A qualitative analysis of the attitudes of Irish patients towards participation in genetic-based research.
T P McVeigh, K J Sweeney, M J Kerin, D J Gallagher. Ir J Med Sci 2016
T P McVeigh, K J Sweeney, M J Kerin, D J Gallagher. Ir J Med Sci 2016
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Intentions to donate to a biobank in a national sample of African Americans.
Jasmine A McDonald, Susan Vadaparampil, Deborah Bowen, Gayenell Magwood, Jihad S Obeid, Melanie Jefferson, Richard Drake, Mulugeta Gebregziabher, Chanita Hughes Halbert. Public Health Genomics 2014
Jasmine A McDonald, Susan Vadaparampil, Deborah Bowen, Gayenell Magwood, Jihad S Obeid, Melanie Jefferson, Richard Drake, Mulugeta Gebregziabher, Chanita Hughes Halbert. Public Health Genomics 2014
9
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