Ingrid A Holm, Brittany R Iles, Sonja I Ziniel, Phoebe L Bacon, Sarah K Savage, Kurt D Christensen, Elissa R Weitzman, Robert C Green, Noelle L Huntington. J Empir Res Hum Res Ethics 2015
Times Cited: 16
Times Cited: 16
Times Cited
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The development of a preference-setting model for the return of individual genomic research results.
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37
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
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Adolescent perspectives on the return of individual results in genomic addiction research.
Marilyn E Coors, Kristen M Raymond, Shannon K McWilliams, Christian J Hopfer, Susan K Mikulich-Gilbertson. Psychiatr Genet 2015
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Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project.
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Saskia C Sanderson, Michael D Linderman, Sabrina A Suckiel, George A Diaz, Randi E Zinberg, Kadija Ferryman, Melissa Wasserstein, Andrew Kasarskis, Eric E Schadt. Eur J Hum Genet 2016
31
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
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31
Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
25
Parents' preferences for return of results in pediatric genomic research.
S I Ziniel, S K Savage, N Huntington, J Amatruda, R C Green, E R Weitzman, P Taylor, I A Holm. Public Health Genomics 2014
S I Ziniel, S K Savage, N Huntington, J Amatruda, R C Green, E R Weitzman, P Taylor, I A Holm. Public Health Genomics 2014
25
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
25
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
Gail P Jarvik, Laura M Amendola, Jonathan S Berg, Kyle Brothers, Ellen W Clayton, Wendy Chung, Barbara J Evans, James P Evans, Stephanie M Fullerton, Carlos J Gallego,[...]. Am J Hum Genet 2014
25
Public expectations for return of results from large-cohort genetic research.
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Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
25
Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
25
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
25
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
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Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
25
Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
25
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
Richard R Fabsitz, Amy McGuire, Richard R Sharp, Mona Puggal, Laura M Beskow, Leslie G Biesecker, Ebony Bookman, Wylie Burke, Esteban Gonzalez Burchard, George Church,[...]. Circ Cardiovasc Genet 2010
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Preferences for results delivery from exome sequencing/genome sequencing.
Martha F Wright, Katie L Lewis, Tyler C Fisher, Gillian W Hooker, Toby E Emanuel, Leslie G Biesecker, Barbara B Biesecker. Genet Med 2014
Martha F Wright, Katie L Lewis, Tyler C Fisher, Gillian W Hooker, Toby E Emanuel, Leslie G Biesecker, Barbara B Biesecker. Genet Med 2014
18
The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet Med 2012
Erin D Harris, Sonja I Ziniel, Jonathan G Amatruda, Catherine M Clinton, Sarah K Savage, Patrick L Taylor, Noelle L Huntington, Robert C Green, Ingrid A Holm. Genet Med 2012
18
IRB perspectives on the return of individual results from genomic research.
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
18
Engaging African-Americans about biobanks and the return of research results.
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
18
The return of unexpected research results in a biobank study and referral to health care for heritable long QT syndrome.
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
18
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
18
Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
18
Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.
Kyle B Brothers, Kelly M East, Whitley V Kelley, M Frances Wright, Matthew J Westbrook, Carla A Rich, Kevin M Bowling, Edward J Lose, E Martina Bebin, Shirley Simmons,[...]. Genet Med 2017
Kyle B Brothers, Kelly M East, Whitley V Kelley, M Frances Wright, Matthew J Westbrook, Carla A Rich, Kevin M Bowling, Edward J Lose, E Martina Bebin, Shirley Simmons,[...]. Genet Med 2017
18
Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers.
Kurt D Christensen, J Scott Roberts, David I Shalowitz, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. Cancer Epidemiol Biomarkers Prev 2011
Kurt D Christensen, J Scott Roberts, David I Shalowitz, Jessica N Everett, Scott Y H Kim, Leon Raskin, Stephen B Gruber. Cancer Epidemiol Biomarkers Prev 2011
18
Public preferences for the return of research results in genetic research: a conjoint analysis.
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
18
Psychological and behavioural impact of returning personal results from whole-genome sequencing: the HealthSeq project.
Saskia C Sanderson, Michael D Linderman, Sabrina A Suckiel, Randi Zinberg, Melissa Wasserstein, Andrew Kasarskis, George A Diaz, Eric E Schadt. Eur J Hum Genet 2017
Saskia C Sanderson, Michael D Linderman, Sabrina A Suckiel, Randi Zinberg, Melissa Wasserstein, Andrew Kasarskis, George A Diaz, Eric E Schadt. Eur J Hum Genet 2017
18
A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment.
David J Kaufman, Rebecca Baker, Lauren C Milner, Stephanie Devaney, Kathy L Hudson. PLoS One 2016
David J Kaufman, Rebecca Baker, Lauren C Milner, Stephanie Devaney, Kathy L Hudson. PLoS One 2016
18
Qualitative research methodology in the exploration of patients' perceptions of participating in a genetic research program.
Frieda Basson, Merle Joyce Futter, Jacquie Greenberg. Ophthalmic Genet 2007
Frieda Basson, Merle Joyce Futter, Jacquie Greenberg. Ophthalmic Genet 2007
27
Parental attitudes and expectations towards receiving genomic test results in healthy children.
Alanna Kulchak Rahm, Lindsay Bailey, Kara Fultz, Audrey Fan, Janet L Williams, Adam Buchanan, F Daniel Davis, Michael F Murray, Marc S Williams. Transl Behav Med 2018
Alanna Kulchak Rahm, Lindsay Bailey, Kara Fultz, Audrey Fan, Janet L Williams, Adam Buchanan, F Daniel Davis, Michael F Murray, Marc S Williams. Transl Behav Med 2018
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Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
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Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
18
Subjects matter: a survey of public opinions about a large genetic cohort study.
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
David Kaufman, Juli Murphy, Joan Scott, Kathy Hudson. Genet Med 2008
18
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
Erika Kleiderman, Bartha Maria Knoppers, Conrad V Fernandez, Kym M Boycott, Gail Ouellette, Durhane Wong-Rieger, Shelin Adam, Julie Richer, Denise Avard. J Med Ethics 2014
18
Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples.
Kurt D Christensen, Sarah K Savage, Noelle L Huntington, Elissa R Weitzman, Sonja I Ziniel, Phoebe L Bacon, Cara N Cacioppo, Robert C Green, Ingrid A Holm. J Empir Res Hum Res Ethics 2017
Kurt D Christensen, Sarah K Savage, Noelle L Huntington, Elissa R Weitzman, Sonja I Ziniel, Phoebe L Bacon, Cara N Cacioppo, Robert C Green, Ingrid A Holm. J Empir Res Hum Res Ethics 2017
25
Understanding What Information Is Valued By Research Participants, And Why.
Consuelo H Wilkins, Brandy M Mapes, Rebecca N Jerome, Victoria Villalta-Gil, Jill M Pulley, Paul A Harris. Health Aff (Millwood) 2019
Consuelo H Wilkins, Brandy M Mapes, Rebecca N Jerome, Victoria Villalta-Gil, Jill M Pulley, Paul A Harris. Health Aff (Millwood) 2019
18
What is a meaningful result? Disclosing the results of genomic research in autism to research participants.
Fiona Alice Miller, Robin Zoe Hayeems, Jessica Peace Bytautas. Eur J Hum Genet 2010
Fiona Alice Miller, Robin Zoe Hayeems, Jessica Peace Bytautas. Eur J Hum Genet 2010
18
Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences.
Michelle L McGowan, Cynthia A Prows, Melissa DeJonckheere, William B Brinkman, Lisa Vaughn, Melanie F Myers. J Empir Res Hum Res Ethics 2018
Michelle L McGowan, Cynthia A Prows, Melissa DeJonckheere, William B Brinkman, Lisa Vaughn, Melanie F Myers. J Empir Res Hum Res Ethics 2018
18
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
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Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.
Laurence Baret, Beatrice Godard. Eur J Hum Genet 2011
Laurence Baret, Beatrice Godard. Eur J Hum Genet 2011
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Attitudes of African Americans toward return of results from exome and whole genome sequencing.
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
Joon-Ho Yu, Julia Crouch, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Med Genet A 2013
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Next-generation sequencing in precision oncology: Patient understanding and expectations.
J Scott Roberts, Michele C Gornick, Lan Q Le, Natalie J Bartnik, Brian J Zikmund-Fisher, Arul M Chinnaiyan. Cancer Med 2019
J Scott Roberts, Michele C Gornick, Lan Q Le, Natalie J Bartnik, Brian J Zikmund-Fisher, Arul M Chinnaiyan. Cancer Med 2019
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Are physicians prepared for whole genome sequencing? a qualitative analysis.
K D Christensen, J L Vassy, L Jamal, L S Lehmann, M J Slashinski, D L Perry, J O Robinson, J Blumenthal-Barby, L Z Feuerman, M F Murray,[...]. Clin Genet 2016
K D Christensen, J L Vassy, L Jamal, L S Lehmann, M J Slashinski, D L Perry, J O Robinson, J Blumenthal-Barby, L Z Feuerman, M F Murray,[...]. Clin Genet 2016
12
Whole-genome sequencing for identification of Mendelian disorders in critically ill infants: a retrospective analysis of diagnostic and clinical findings.
Laurel K Willig, Josh E Petrikin, Laurie D Smith, Carol J Saunders, Isabelle Thiffault, Neil A Miller, Sarah E Soden, Julie A Cakici, Suzanne M Herd, Greyson Twist,[...]. Lancet Respir Med 2015
Laurel K Willig, Josh E Petrikin, Laurie D Smith, Carol J Saunders, Isabelle Thiffault, Neil A Miller, Sarah E Soden, Julie A Cakici, Suzanne M Herd, Greyson Twist,[...]. Lancet Respir Med 2015
12
Reporting incidental findings in genomic scale clinical sequencing--a clinical laboratory perspective: a report of the Association for Molecular Pathology.
Madhuri Hegde, Sherri Bale, Pinar Bayrak-Toydemir, Jane Gibson, Linda Jo Bone Jeng, Loren Joseph, Jordan Laser, Ira M Lubin, Christine E Miller, Lainie F Ross,[...]. J Mol Diagn 2015
Madhuri Hegde, Sherri Bale, Pinar Bayrak-Toydemir, Jane Gibson, Linda Jo Bone Jeng, Loren Joseph, Jordan Laser, Ira M Lubin, Christine E Miller, Lainie F Ross,[...]. J Mol Diagn 2015
12
The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine.
Jason L Vassy, Denise M Lautenbach, Heather M McLaughlin, Sek Won Kong, Kurt D Christensen, Joel Krier, Isaac S Kohane, Lindsay Z Feuerman, Jennifer Blumenthal-Barby, J Scott Roberts,[...]. Trials 2014
Jason L Vassy, Denise M Lautenbach, Heather M McLaughlin, Sek Won Kong, Kurt D Christensen, Joel Krier, Isaac S Kohane, Lindsay Z Feuerman, Jennifer Blumenthal-Barby, J Scott Roberts,[...]. Trials 2014
12
Effectiveness of exome and genome sequencing guided by acuity of illness for diagnosis of neurodevelopmental disorders.
Sarah E Soden, Carol J Saunders, Laurel K Willig, Emily G Farrow, Laurie D Smith, Josh E Petrikin, Jean-Baptiste LePichon, Neil A Miller, Isabelle Thiffault, Darrell L Dinwiddie,[...]. Sci Transl Med 2014
Sarah E Soden, Carol J Saunders, Laurel K Willig, Emily G Farrow, Laurie D Smith, Josh E Petrikin, Jean-Baptiste LePichon, Neil A Miller, Isabelle Thiffault, Darrell L Dinwiddie,[...]. Sci Transl Med 2014
12
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.
Paul A Harris, Robert Taylor, Robert Thielke, Jonathon Payne, Nathaniel Gonzalez, Jose G Conde. J Biomed Inform 2009
Paul A Harris, Robert Taylor, Robert Thielke, Jonathon Payne, Nathaniel Gonzalez, Jose G Conde. J Biomed Inform 2009
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Parents' interest in whole-genome sequencing of newborns.
Aaron J Goldenberg, Daniel S Dodson, Matthew M Davis, Beth A Tarini. Genet Med 2014
Aaron J Goldenberg, Daniel S Dodson, Matthew M Davis, Beth A Tarini. Genet Med 2014
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Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
12
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.