Dianne Nicol, Christine Critchley, Rebekah McWhirter, Tess Whitton. Soc Sci Med 2016
Times Cited: 32
Times Cited: 32
Times Cited
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The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research.
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
40
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
31
We're not in it for the money-lay people's moral intuitions on commercial use of 'their' biobank.
Kristin Solum Steinsbekk, Lars Oystein Ursin, John-Arne Skolbekken, Berge Solberg. Med Health Care Philos 2013
Kristin Solum Steinsbekk, Lars Oystein Ursin, John-Arne Skolbekken, Berge Solberg. Med Health Care Philos 2013
32
Predicting intention to biobank: a national survey.
Christine R Critchley, Dianne Nicol, Margaret F A Otlowski, Mark J A Stranger. Eur J Public Health 2012
Christine R Critchley, Dianne Nicol, Margaret F A Otlowski, Mark J A Stranger. Eur J Public Health 2012
25
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
25
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
George Gaskell, Herbert Gottweis, Johannes Starkbaum, Monica M Gerber, Jacqueline Broerse, Ursula Gottweis, Abbi Hobbs, Ilpo Helén, Maria Paschou, Karoliina Snell,[...]. Eur J Hum Genet 2013
25
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
21
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
Asa Kettis-Lindblad, Lena Ring, Eva Viberth, Mats G Hansson. Eur J Public Health 2006
21
A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
21
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.
Richard Milne, Katherine I Morley, Heidi Howard, Emilia Niemiec, Dianne Nicol, Christine Critchley, Barbara Prainsack, Danya Vears, James Smith, Claire Steed,[...]. Hum Genet 2019
Richard Milne, Katherine I Morley, Heidi Howard, Emilia Niemiec, Dianne Nicol, Christine Critchley, Barbara Prainsack, Danya Vears, James Smith, Claire Steed,[...]. Hum Genet 2019
25
Identifying public expectations of genetic biobanks.
Christine Critchley, Dianne Nicol, Rebekah McWhirter. Public Underst Sci 2017
Christine Critchley, Dianne Nicol, Rebekah McWhirter. Public Underst Sci 2017
35
"That is why I have trust": unpacking what 'trust' means to participants in international genetic research in Pakistan and Denmark.
Zainab Sheikh, Klaus Hoeyer. Med Health Care Philos 2018
Zainab Sheikh, Klaus Hoeyer. Med Health Care Philos 2018
37
Attitudes of publics who are unwilling to donate DNA data for research.
Anna Middleton, Richard Milne, Adrian Thorogood, Erika Kleiderman, Emilia Niemiec, Barbara Prainsack, Lauren Farley, Paul Bevan, Claire Steed, James Smith,[...]. Eur J Med Genet 2019
Anna Middleton, Richard Milne, Adrian Thorogood, Erika Kleiderman, Emilia Niemiec, Barbara Prainsack, Lauren Farley, Paul Bevan, Claire Steed, James Smith,[...]. Eur J Med Genet 2019
22
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
15
Factors influencing public participation in biobanking.
Mamoun Ahram, Areej Othman, Manal Shahrouri, Ebtihal Mustafa. Eur J Hum Genet 2014
Mamoun Ahram, Areej Othman, Manal Shahrouri, Ebtihal Mustafa. Eur J Hum Genet 2014
15
Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
16
Encouraging Participation And Transparency In Biobank Research.
Kayte Spector-Bagdady, Raymond G De Vries, Michele G Gornick, Andrew G Shuman, Sharon Kardia, Jodyn Platt. Health Aff (Millwood) 2018
Kayte Spector-Bagdady, Raymond G De Vries, Michele G Gornick, Andrew G Shuman, Sharon Kardia, Jodyn Platt. Health Aff (Millwood) 2018
27
Broad consent for biobanks is best - provided it is also deep.
Rasmus Bjerregaard Mikkelsen, Mickey Gjerris, Gunhild Waldemar, Peter Sandøe. BMC Med Ethics 2019
Rasmus Bjerregaard Mikkelsen, Mickey Gjerris, Gunhild Waldemar, Peter Sandøe. BMC Med Ethics 2019
25
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
29
Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
12
Trends in ethical and legal frameworks for the use of human biobanks.
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
A Cambon-Thomsen, E Rial-Sebbag, B M Knoppers. Eur Respir J 2007
12
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
12
Public's attitudes on participation in a biobank for research: an Italian survey.
Corinna Porteri, Patrizio Pasqualetti, Elena Togni, Michael Parker. BMC Med Ethics 2014
Corinna Porteri, Patrizio Pasqualetti, Elena Togni, Michael Parker. BMC Med Ethics 2014
12
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
12
Ethics of Research Biobanks: Islamic Perspectives.
Ghiath Alahmad, Kris Dierickx. Biopreserv Biobank 2018
Ghiath Alahmad, Kris Dierickx. Biopreserv Biobank 2018
50
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.
Anna Middleton, Emilia Niemiec, Barbara Prainsack, Jason Bobe, Lauren Farley, Claire Steed, James Smith, Paul Bevan, Natasha Bonhomme, Erika Kleiderman,[...]. Per Med 2018
Anna Middleton, Emilia Niemiec, Barbara Prainsack, Jason Bobe, Lauren Farley, Claire Steed, James Smith, Paul Bevan, Natasha Bonhomme, Erika Kleiderman,[...]. Per Med 2018
22
Cohort Profile: LifeLines, a three-generation cohort study and biobank.
Salome Scholtens, Nynke Smidt, Morris A Swertz, Stephan J L Bakker, Aafje Dotinga, Judith M Vonk, Freerk van Dijk, Sander K R van Zon, Cisca Wijmenga, Bruce H R Wolffenbuttel,[...]. Int J Epidemiol 2015
Salome Scholtens, Nynke Smidt, Morris A Swertz, Stephan J L Bakker, Aafje Dotinga, Judith M Vonk, Freerk van Dijk, Sander K R van Zon, Cisca Wijmenga, Bruce H R Wolffenbuttel,[...]. Int J Epidemiol 2015
12
Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank?
J L Ridgeway, L C Han, J E Olson, K A Lackore, B A Koenig, T J Beebe, J Y Ziegenfuss. Public Health Genomics 2013
J L Ridgeway, L C Han, J E Olson, K A Lackore, B A Koenig, T J Beebe, J Y Ziegenfuss. Public Health Genomics 2013
12
Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.
Suzanne M Rivera, Kyle B Brothers, R Jean Cadigan, Heather L Harrell, Mark A Rothstein, Richard R Sharp, Aaron J Goldenberg. Am J Bioeth 2017
Suzanne M Rivera, Kyle B Brothers, R Jean Cadigan, Heather L Harrell, Mark A Rothstein, Richard R Sharp, Aaron J Goldenberg. Am J Bioeth 2017
66
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
12
Trust in Centralized Large-Scale Data Repository: A Qualitative Analysis.
Reinder Broekstra, Judith Aris-Meijer, Els Maeckelberghe, Ronald Stolk, Sabine Otten. J Empir Res Hum Res Ethics 2020
Reinder Broekstra, Judith Aris-Meijer, Els Maeckelberghe, Ronald Stolk, Sabine Otten. J Empir Res Hum Res Ethics 2020
66
National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue.
Robert Mitchell. Sci Technol Human Values 2010
Robert Mitchell. Sci Technol Human Values 2010
10
Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V Campbell, Calvin W L Ho, Kazuto Kato, Jusaku Minari, Chih-Hsing Ho, Colin Mitchell,[...]. BMC Med Ethics 2016
Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V Campbell, Calvin W L Ho, Kazuto Kato, Jusaku Minari, Chih-Hsing Ho, Colin Mitchell,[...]. BMC Med Ethics 2016
9
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
Susan E Kelly, Timothy D Spector, Lynn F Cherkas, Barbara Prainsack, Juliette M Harris. PLoS One 2015
12
The role of race and trust in tissue/blood donation for genetic research.
Jada Bussey-Jones, Joanne Garrett, Gail Henderson, Mairead Moloney, Connie Blumenthal, Giselle Corbie-Smith. Genet Med 2010
Jada Bussey-Jones, Joanne Garrett, Gail Henderson, Mairead Moloney, Connie Blumenthal, Giselle Corbie-Smith. Genet Med 2010
9
Public trust in health information sharing: implications for biobanking and electronic health record systems.
Jodyn Platt, Sharon Kardia. J Pers Med 2015
Jodyn Platt, Sharon Kardia. J Pers Med 2015
9
Attitudes towards biomedical use of tissue sample collections, consent, and biobanks among Finns.
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
Aaro Tupasela, Sinikka Sihvo, Karolna Snell, Pa Jallinoja, Arja R Aro, Elina Hemminki. Scand J Public Health 2010
9
Tackling community concerns about commercialisation and genetic research: a modest interdisciplinary proposal.
Gillian Haddow, Graeme Laurie, Sarah Cunningham-Burley, Kathryn G Hunter. Soc Sci Med 2007
Gillian Haddow, Graeme Laurie, Sarah Cunningham-Burley, Kathryn G Hunter. Soc Sci Med 2007
9
The social licence for research: why care.data ran into trouble.
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
9
Biobank attributes associated with higher patient participation: a randomized study.
Angèle Gayet-Ageron, Sandrine Rudaz, Thomas Perneger. Eur J Hum Genet 2016
Angèle Gayet-Ageron, Sandrine Rudaz, Thomas Perneger. Eur J Hum Genet 2016
37
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
9
Research on stored biological samples: views of African American and White American cancer patients.
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
Rebecca D Pentz, Laurent Billot, David Wendler. Am J Med Genet A 2006
9
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
9
A template for broad consent in biobank research. Results and explanation of an evidence and consensus-based development process.
D Strech, S Bein, M Brumhard, W Eisenmenger, C Glinicke, T Herbst, R Jahns, S von Kielmansegg, G Schmidt, J Taupitz,[...]. Eur J Med Genet 2016
D Strech, S Bein, M Brumhard, W Eisenmenger, C Glinicke, T Herbst, R Jahns, S von Kielmansegg, G Schmidt, J Taupitz,[...]. Eur J Med Genet 2016
10
Trust in physicians and medical institutions: what is it, can it be measured, and does it matter?
M A Hall, E Dugan, B Zheng, A K Mishra. Milbank Q 2001
M A Hall, E Dugan, B Zheng, A K Mishra. Milbank Q 2001
9
Attitudes toward medical and genetic confidentiality in the Saudi research biobank: An exploratory survey.
Ghiath Alahmad, Tamer Hifnawy, Badaruddin Abbasi, Kris Dierickx. Int J Med Inform 2016
Ghiath Alahmad, Tamer Hifnawy, Badaruddin Abbasi, Kris Dierickx. Int J Med Inform 2016
33
Sustainability in biobanking.
Daniel Simeon-Dubach, Marianne K Henderson. Biopreserv Biobank 2014
Daniel Simeon-Dubach, Marianne K Henderson. Biopreserv Biobank 2014
10
Targeting Future Customers: An Introductory Biobanking Course for Undergraduate Students of Life Sciences.
Ahmed Samir Abdelhafiz, Merhan Ahmed Fouda, Shaimaa Ibrahim El-Jaafary, Maysa Ibrahim Farghly, Mazen Salem, Ahmed Tammam, Hala Gabr. Biopreserv Biobank 2017
Ahmed Samir Abdelhafiz, Merhan Ahmed Fouda, Shaimaa Ibrahim El-Jaafary, Maysa Ibrahim Farghly, Mazen Salem, Ahmed Tammam, Hala Gabr. Biopreserv Biobank 2017
30
What do Islamic institutional fatwas say about medical and research confidentiality and breach of confidentiality?
Ghiath Alahmad, Kris Dierickx. Dev World Bioeth 2012
Ghiath Alahmad, Kris Dierickx. Dev World Bioeth 2012
23
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