Laura M Beskow, Li Lin, Carrie B Dombeck, Emily Gao, Kevin P Weinfurt. Genet Med 2017
Times Cited: 24
Times Cited: 24
Times Cited
Times Co-cited
Similarity
Exploring Understanding of "Understanding": The Paradigm Case of Biobank Consent Comprehension.
Laura M Beskow, Kevin P Weinfurt. Am J Bioeth 2019
Laura M Beskow, Kevin P Weinfurt. Am J Bioeth 2019
41
Informed consent for biobanking: consensus-based guidelines for adequate comprehension.
Laura M Beskow, Carrie B Dombeck, Cole P Thompson, J Kemp Watson-Ormond, Kevin P Weinfurt. Genet Med 2015
Laura M Beskow, Carrie B Dombeck, Cole P Thompson, J Kemp Watson-Ormond, Kevin P Weinfurt. Genet Med 2015
37
Assessing the understanding of biobank participants.
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
K E Ormond, A L Cirino, I B Helenowski, R L Chisholm, W A Wolf. Am J Med Genet A 2009
29
Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
James Flory, Ezekiel Emanuel. JAMA 2004
25
Interactive multimedia consent for biobanking: a randomized trial.
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
20
Developing a simplified consent form for biobanking.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS One 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. PLoS One 2010
20
Quality of informed consent in cancer clinical trials: a cross-sectional survey.
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. Lancet 2001
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. Lancet 2001
20
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
20
Biobanking for research: a survey of patient population attitudes and understanding.
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
Alanna Kulchak Rahm, Michelle Wrenn, Nikki M Carroll, Heather Spencer Feigelson. J Community Genet 2013
16
Randomization to standard and concise informed consent forms: development of evidence-based consent practices.
Mary E Enama, Zonghui Hu, Ingelise Gordon, Pamela Costner, Julie E Ledgerwood, Christine Grady. Contemp Clin Trials 2012
Mary E Enama, Zonghui Hu, Ingelise Gordon, Pamela Costner, Julie E Ledgerwood, Christine Grady. Contemp Clin Trials 2012
16
Longer consent forms for clinical trials compromise patient understanding: so why are they lengthening?
Emma Beardsley, Michael Jefford, Linda Mileshkin. J Clin Oncol 2007
Emma Beardsley, Michael Jefford, Linda Mileshkin. J Clin Oncol 2007
16
16
Simplifying informed consent for biorepositories: stakeholder perspectives.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet Med 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet Med 2010
16
Encouraging Participation And Transparency In Biobank Research.
Kayte Spector-Bagdady, Raymond G De Vries, Michele G Gornick, Andrew G Shuman, Sharon Kardia, Jodyn Platt. Health Aff (Millwood) 2018
Kayte Spector-Bagdady, Raymond G De Vries, Michele G Gornick, Andrew G Shuman, Sharon Kardia, Jodyn Platt. Health Aff (Millwood) 2018
22
The "All of Us" Research Program.
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
16
Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.
Teddy D Warner, Carol J Weil, Christopher Andry, Howard B Degenholtz, Lisa Parker, Latarsha J Carithers, Michelle Feige, David Wendler, Rebecca D Pentz. J Empir Res Hum Res Ethics 2018
Teddy D Warner, Carol J Weil, Christopher Andry, Howard B Degenholtz, Lisa Parker, Latarsha J Carithers, Michelle Feige, David Wendler, Rebecca D Pentz. J Empir Res Hum Res Ethics 2018
17
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
16
Informed consent for biorepositories: assessing prospective participants' understanding and opinions.
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
Laura M Beskow, Elizabeth Dean. Cancer Epidemiol Biomarkers Prev 2008
12
Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project.
Catherine A McCarty, Anuradha Nair, Diane M Austin, Philip F Giampietro. Community Genet 2007
Catherine A McCarty, Anuradha Nair, Diane M Austin, Philip F Giampietro. Community Genet 2007
12
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
12
A randomized trial comparing concise and standard consent forms in the START trial.
Christine Grady, Giota Touloumi, A Sarah Walker, Mary Smolskis, Shweta Sharma, Abdel G Babiker, Nikos Pantazis, Jorge Tavel, Eric Florence, Adriana Sanchez,[...]. PLoS One 2017
Christine Grady, Giota Touloumi, A Sarah Walker, Mary Smolskis, Shweta Sharma, Abdel G Babiker, Nikos Pantazis, Jorge Tavel, Eric Florence, Adriana Sanchez,[...]. PLoS One 2017
16
Participant comprehension of research for which they volunteer: a systematic review.
Wanda Montalvo, Elaine Larson. J Nurs Scholarsh 2014
Wanda Montalvo, Elaine Larson. J Nurs Scholarsh 2014
12
Discrepancy between participants' understanding and desire to know in informed consent: are they informed about what they really want to know?
Jiwon Koh, Eurah Goh, Kyung-Sang Yu, Belong Cho, Jeong Hee Yang. J Med Ethics 2012
Jiwon Koh, Eurah Goh, Kyung-Sang Yu, Belong Cho, Jeong Hee Yang. J Med Ethics 2012
16
The evolution of consent forms for research: a quarter century of changes.
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
12
Simplification improves understanding of informed consent information in clinical trials regardless of health literacy level.
Eun Jin Kim, Su Hyun Kim. Clin Trials 2015
Eun Jin Kim, Su Hyun Kim. Clin Trials 2015
12
Moving From Understanding of Consent Conditions to Heuristics of Trust.
Michael M Burgess, Kieran C O'Doherty. Am J Bioeth 2019
Michael M Burgess, Kieran C O'Doherty. Am J Bioeth 2019
50
Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.
Yann Joly, Gratien Dalpé, Derek So, Stanislav Birko. PLoS One 2015
Yann Joly, Gratien Dalpé, Derek So, Stanislav Birko. PLoS One 2015
13
Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.
Marianna J Bledsoe. Biopreserv Biobank 2017
Marianna J Bledsoe. Biopreserv Biobank 2017
12
Biobanking past, present and future: responsibilities and benefits.
Yvonne G De Souza, John S Greenspan. AIDS 2013
Yvonne G De Souza, John S Greenspan. AIDS 2013
12
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
12
A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
12
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
12
The moral concerns of biobank donors: the effect of non-welfare interests on willingness to donate.
Raymond G De Vries, Tom Tomlinson, H Myra Kim, Chris D Krenz, Kerry A Ryan, Nicole Lehpamer, Scott Y H Kim. Life Sci Soc Policy 2016
Raymond G De Vries, Tom Tomlinson, H Myra Kim, Chris D Krenz, Kerry A Ryan, Nicole Lehpamer, Scott Y H Kim. Life Sci Soc Policy 2016
13
Genes, cells, and biobanks: Yes, there's still a consent problem.
Timothy Caulfield, Blake Murdoch. PLoS Biol 2017
Timothy Caulfield, Blake Murdoch. PLoS Biol 2017
12
Measuring Understanding and Respecting Trust in Biobank Consent.
T J Kasperbauer, Peter H Schwartz. Am J Bioeth 2019
T J Kasperbauer, Peter H Schwartz. Am J Bioeth 2019
75
The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
12
Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual.
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
30
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
12
Quality of informed consent: a new measure of understanding among research subjects.
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. J Natl Cancer Inst 2001
S Joffe, E F Cook, P D Cleary, J W Clark, J C Weeks. J Natl Cancer Inst 2001
8
Characterizing biobank organizations in the U.S.: results from a national survey.
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
8
A randomized controlled trial of short and standard-length consent forms for a genetic cohort study: is longer better?
Kenji Matsui, Reidar K Lie, Tanvir C Turin, Yoshikuni Kita. J Epidemiol 2012
Kenji Matsui, Reidar K Lie, Tanvir C Turin, Yoshikuni Kita. J Epidemiol 2012
8
Improving participant comprehension in the informed consent process.
Elizabeth Cohn, Elaine Larson. J Nurs Scholarsh 2007
Elizabeth Cohn, Elaine Larson. J Nurs Scholarsh 2007
8
Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project.
Catherine A McCarty, Donna Chapman-Stone, Teresa Derfus, Philip F Giampietro, Norman Fost. Am J Med Genet A 2008
Catherine A McCarty, Donna Chapman-Stone, Teresa Derfus, Philip F Giampietro, Norman Fost. Am J Med Genet A 2008
8
Length and complexity of US and international HIV consent forms from federal HIV network trials.
Nancy E Kass, Lelia Chaisson, Holly A Taylor, Jennifer Lohse. J Gen Intern Med 2011
Nancy E Kass, Lelia Chaisson, Holly A Taylor, Jennifer Lohse. J Gen Intern Med 2011
8
Satisfaction with the decision to participate in cancer clinical trials is high, but understanding is a problem.
M Jefford, L Mileshkin, J Matthews, H Raunow, C O'Kane, T Cavicchiolo, H Brasier, M Anderson, J Reynolds. Support Care Cancer 2011
M Jefford, L Mileshkin, J Matthews, H Raunow, C O'Kane, T Cavicchiolo, H Brasier, M Anderson, J Reynolds. Support Care Cancer 2011
8
Levels of knowledge and perceived understanding among participants in cancer clinical trials - factors related to the informed consent procedure.
Mia Bergenmar, Hemming Johansson, Nils Wilking. Clin Trials 2011
Mia Bergenmar, Hemming Johansson, Nils Wilking. Clin Trials 2011
8
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.