Haridimos Kondylakis, Lefteris Koumakis, Stephanie Hänold, Iheanyi Nwankwo, Nikolaus Forgó, Kostas Marias, Manolis Tsiknakis, Norbert Graf. Int J Med Inform 2017
Times Cited: 6
Times Cited: 6
Times Cited
Times Co-cited
Similarity
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
50
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. 2016
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. 2016
33
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur. J. Hum. Genet. 2015
33
Public perspectives on informed consent for biobanking.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Public Health 2009
33
A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. 2014
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. 2014
33
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. 2015
33
Every participant is a PI. Citizen science and participatory governance in population studies.
Alena Buyx, Lorenzo Del Savio, Barbara Prainsack, Henry Völzke. Int J Epidemiol 2017
Alena Buyx, Lorenzo Del Savio, Barbara Prainsack, Henry Völzke. Int J Epidemiol 2017
33
Teleconsent: A Novel Approach to Obtain Informed Consent for Research.
Brandon M Welch, Elizabeth Marshall, Suparna Qanungo, Ayesha Aziz, Marilyn Laken, Leslie Lenert, Jihad Obeid. 2016
Brandon M Welch, Elizabeth Marshall, Suparna Qanungo, Ayesha Aziz, Marilyn Laken, Leslie Lenert, Jihad Obeid. 2016
33
Finland on a road towards a modern legal biobanking infrastructure.
Sirpa Soini. Eur J Health Law 2013
Sirpa Soini. Eur J Health Law 2013
16
Characterizing biobank organizations in the U.S.: results from a national survey.
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
Gail E Henderson, R Jean Cadigan, Teresa P Edwards, Ian Conlon, Anders G Nelson, James P Evans, Arlene M Davis, Catherine Zimmer, Bryan J Weiner. Genome Med 2013
16
Understanding the impact of commercialization on public support for scientific research: is it about the funding source or the organization conducting the research.
Christine R Critchley, Dianne Nicol. Public Underst Sci 2011
Christine R Critchley, Dianne Nicol. Public Underst Sci 2011
16
Understanding the Public's Reservations about Broad Consent and Study-By-Study Consent for Donations to a Biobank: Results of a National Survey.
Raymond Gene De Vries, Tom Tomlinson, Hyungjin Myra Kim, Chris Krenz, Diana Haggerty, Kerry A Ryan, Scott Y H Kim. PLoS ONE 2016
Raymond Gene De Vries, Tom Tomlinson, Hyungjin Myra Kim, Chris Krenz, Diana Haggerty, Kerry A Ryan, Scott Y H Kim. PLoS ONE 2016
16
Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide.
Jennifer Kulynych, Henry T Greely. 2017
Jennifer Kulynych, Henry T Greely. 2017
16
Global trends on fears and concerns of genetic discrimination: a systematic literature review.
Annet Wauters, Ine Van Hoyweghen. J. Hum. Genet. 2016
Annet Wauters, Ine Van Hoyweghen. J. Hum. Genet. 2016
16
No regrets: Young adult patients in psychiatry report positive reactions to biobank participation.
Janet L Cunningham, Manuel Zanzi, Mimmie Willebrand, Lisa Ekselius, Mia Ramklint. BMC Psychiatry 2017
Janet L Cunningham, Manuel Zanzi, Mimmie Willebrand, Lisa Ekselius, Mia Ramklint. BMC Psychiatry 2017
25
SCIENTIFIC COMMUNITY. Confronting stem cell hype.
Timothy Caulfield, Douglas Sipp, Charles E Murry, George Q Daley, Jonathan Kimmelman. Science 2016
Timothy Caulfield, Douglas Sipp, Charles E Murry, George Q Daley, Jonathan Kimmelman. Science 2016
16
Public knowledge of and attitudes toward genetics and genetic testing.
Susanne B Haga, William T Barry, Rachel Mills, Geoffrey S Ginsburg, Laura Svetkey, Jennifer Sullivan, Huntington F Willard. Genet Test Mol Biomarkers 2013
Susanne B Haga, William T Barry, Rachel Mills, Geoffrey S Ginsburg, Laura Svetkey, Jennifer Sullivan, Huntington F Willard. Genet Test Mol Biomarkers 2013
16
Controversial patient-consent proposal left out of research-ethics reforms.
Sara Reardon. Nature 2017
Sara Reardon. Nature 2017
50
Open consent, biobanking and data protection law: can open consent be 'informed' under the forthcoming data protection regulation?
Dara Hallinan, Michael Friedewald. Life Sci Soc Policy 2015
Dara Hallinan, Michael Friedewald. Life Sci Soc Policy 2015
16
When Children Become Adults: Should Biobanks Re-Contact?
Noor A A Giesbertz, Annelien L Bredenoord, Johannes J M van Delden. PLoS Med. 2016
Noor A A Giesbertz, Annelien L Bredenoord, Johannes J M van Delden. PLoS Med. 2016
25
Biobanking, consent, and control: a survey of Albertans on key research ethics issues.
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
16
100
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet. Med. 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet. Med. 2016
16
Policy uncertainty, sequencing, and cell lines.
Timothy Caulfield, Amy L McGuire. G3 (Bethesda) 2013
Timothy Caulfield, Amy L McGuire. G3 (Bethesda) 2013
20
Public opinion on policy issues in genetics and genomics.
Rene Almeling, Shana Kushner Gadarian. Genet. Med. 2014
Rene Almeling, Shana Kushner Gadarian. Genet. Med. 2014
16
Moral concerns and the willingness to donate to a research biobank.
Tom Tomlinson, Raymond De Vries, Kerry Ryan, Hyungjin Myra Kim, Nicole Lehpamer, Scott Y H Kim. JAMA 2015
Tom Tomlinson, Raymond De Vries, Kerry Ryan, Hyungjin Myra Kim, Nicole Lehpamer, Scott Y H Kim. JAMA 2015
16
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am. J. Hum. Genet. 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am. J. Hum. Genet. 2017
16
Newspaper coverage of biobanks.
Ubaka Ogbogu, Maeghan Toews, Adam Ollenberger, Pascal Borry, Helene Nobile, Manuela Bergmann, Timothy Caulfield. 2014
Ubaka Ogbogu, Maeghan Toews, Adam Ollenberger, Pascal Borry, Helene Nobile, Manuela Bergmann, Timothy Caulfield. 2014
33
Biobanks, consent and claims of consensus.
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
Zubin Master, Erin Nelson, Blake Murdoch, Timothy Caulfield. Nat. Methods 2012
16
Revamping the US Federal Common Rule: Modernizing Human Participant Research Regulations.
James G Hodge, Lawrence O Gostin. JAMA 2017
James G Hodge, Lawrence O Gostin. JAMA 2017
16
Confidentiality in Biobanking Research: A Comparison of Donor and Nondonor Families' Understanding of Risks.
Laura A Siminoff, Maureen Wilson-Genderson, Maghboeba Mosavel, Laura Barker, Jennifer Trgina, Heather M Traino. Genet Test Mol Biomarkers 2017
Laura A Siminoff, Maureen Wilson-Genderson, Maghboeba Mosavel, Laura Barker, Jennifer Trgina, Heather M Traino. Genet Test Mol Biomarkers 2017
16
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies.
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
16
Public awareness of genetic nondiscrimination laws in four states and perceived importance of life insurance protections.
Alicia A Parkman, Joan Foland, Beth Anderson, Debra Duquette, Holly Sobotka, Mary Lynn, Shelley Nottingham, William David Dotson, Katherine Kolor, Summer L Cox. J Genet Couns 2015
Alicia A Parkman, Joan Foland, Beth Anderson, Debra Duquette, Holly Sobotka, Mary Lynn, Shelley Nottingham, William David Dotson, Katherine Kolor, Summer L Cox. J Genet Couns 2015
16
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am. J. Hum. Genet. 2009
16
Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.
Flavio D'Abramo, Jan Schildmann, Jochen Vollmann. BMC Med Ethics 2015
Flavio D'Abramo, Jan Schildmann, Jochen Vollmann. BMC Med Ethics 2015
16
Policy recommendations for addressing privacy challenges associated with cell-based research and interventions.
Ubaka Ogbogu, Sarah Burningham, Adam Ollenberger, Kathryn Calder, Li Du, Khaled El Emam, Robyn Hyde-Lay, Rosario Isasi, Yann Joly, Ian Kerr,[...]. BMC Med Ethics 2014
Ubaka Ogbogu, Sarah Burningham, Adam Ollenberger, Kathryn Calder, Li Du, Khaled El Emam, Robyn Hyde-Lay, Rosario Isasi, Yann Joly, Ian Kerr,[...]. BMC Med Ethics 2014
16
The uneasy ethical and legal underpinnings of large-scale genomic biobanks.
Henry T Greely. Annu Rev Genomics Hum Genet 2007
Henry T Greely. Annu Rev Genomics Hum Genet 2007
16
Immortal Life of the Common Rule: Ethics, Consent, and the Future of Cancer Research.
Joshua D Smith, Andrew C Birkeland, Edward B Goldman, J Chad Brenner, Thomas E Carey, Kayte Spector-Bagdady, Andrew G Shuman. J. Clin. Oncol. 2017
Joshua D Smith, Andrew C Birkeland, Edward B Goldman, J Chad Brenner, Thomas E Carey, Kayte Spector-Bagdady, Andrew G Shuman. J. Clin. Oncol. 2017
16
16
Biobanks containing clinical specimens: defining characteristics, policies, and practices.
Teresa Edwards, R Jean Cadigan, James P Evans, Gail E Henderson. Clin. Biochem. 2014
Teresa Edwards, R Jean Cadigan, James P Evans, Gail E Henderson. Clin. Biochem. 2014
16
Active choice but not too active: public perspectives on biobank consent models.
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
Christian M Simon, Jamie L'heureux, Jeffrey C Murray, Patricia Winokur, George Weiner, Elizabeth Newbury, Laura Shinkunas, Bridget Zimmerman. Genet. Med. 2011
16
Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study.
Chrysanthi Papoutsi, Julie E Reed, Cicely Marston, Ruth Lewis, Azeem Majeed, Derek Bell. BMC Med Inform Decis Mak 2015
Chrysanthi Papoutsi, Julie E Reed, Cicely Marston, Ruth Lewis, Azeem Majeed, Derek Bell. BMC Med Inform Decis Mak 2015
16
Biobankonomics: developing a sustainable business model approach for the formation of a human tissue biobank.
Jimmie Vaught, Joyce Rogers, Todd Carolin, Carolyn Compton. J. Natl. Cancer Inst. Monographs 2011
Jimmie Vaught, Joyce Rogers, Todd Carolin, Carolyn Compton. J. Natl. Cancer Inst. Monographs 2011
16
Scientists' perspectives on consent in the context of biobanking research.
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur. J. Hum. Genet. 2015
Zubin Master, Lisa Campo-Engelstein, Timothy Caulfield. Eur. J. Hum. Genet. 2015
16
The Future of Biobanking: A Conceptual Look at How Biobanks Can Respond to the Growing Human Biospecimen Needs of Researchers.
Stella B Somiari, Richard I Somiari. Adv. Exp. Med. Biol. 2015
Stella B Somiari, Richard I Somiari. Adv. Exp. Med. Biol. 2015
16
Research ethics recommendations for whole-genome research: consensus statement.
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh,[...]. PLoS Biol. 2008
16
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.