Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson, Deborah Mascalzoni. BMC Med Ethics 2017
Times Cited: 113
Times Cited: 113
Times Cited
Times Co-cited
Similarity
Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
41
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
24
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
12
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
18
Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants.
Harriet Ja Teare, Michael Morrison, Edgar A Whitley, Jane Kaye. Digit Health 2015
Harriet Ja Teare, Michael Morrison, Edgar A Whitley, Jane Kaye. Digit Health 2015
42
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
11
Testing an online, dynamic consent portal for large population biobank research.
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
37
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
12
The FAIR Guiding Principles for scientific data management and stewardship.
Mark D Wilkinson, Michel Dumontier, I Jsbrand Jan Aalbersberg, Gabrielle Appleton, Myles Axton, Arie Baak, Niklas Blomberg, Jan-Willem Boiten, Luiz Bonino da Silva Santos, Philip E Bourne,[...]. Sci Data 2016
Mark D Wilkinson, Michel Dumontier, I Jsbrand Jan Aalbersberg, Gabrielle Appleton, Myles Axton, Arie Baak, Niklas Blomberg, Jan-Willem Boiten, Luiz Bonino da Silva Santos, Philip E Bourne,[...]. Sci Data 2016
9
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
9
Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach.
Megan Prictor, Harriet J A Teare, Jane Kaye. Front Public Health 2018
Megan Prictor, Harriet J A Teare, Jane Kaye. Front Public Health 2018
37
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
23
From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
8
Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
8
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research.
Thomas Ploug, Søren Holm. BMJ 2015
Thomas Ploug, Søren Holm. BMJ 2015
22
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
8
Dynamic Consent: An Evaluation and Reporting Framework.
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
50
The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results.
Cristian Pattaro, Martin Gögele, Deborah Mascalzoni, Roberto Melotti, Christine Schwienbacher, Alessandro De Grandi, Luisa Foco, Yuri D'Elia, Barbara Linder, Christian Fuchsberger,[...]. J Transl Med 2015
Cristian Pattaro, Martin Gögele, Deborah Mascalzoni, Roberto Melotti, Christine Schwienbacher, Alessandro De Grandi, Luisa Foco, Yuri D'Elia, Barbara Linder, Christian Fuchsberger,[...]. J Transl Med 2015
17
Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.
Sabina Gainotti, Cathy Turner, Simon Woods, Anna Kole, Pauline McCormack, Hanns Lochmüller, Olaf Riess, Volker Straub, Manuel Posada, Domenica Taruscio,[...]. Eur J Hum Genet 2016
Sabina Gainotti, Cathy Turner, Simon Woods, Anna Kole, Pauline McCormack, Hanns Lochmüller, Olaf Riess, Volker Straub, Manuel Posada, Domenica Taruscio,[...]. Eur J Hum Genet 2016
25
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
7
Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
7
Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V Campbell, Calvin W L Ho, Kazuto Kato, Jusaku Minari, Chih-Hsing Ho, Colin Mitchell,[...]. BMC Med Ethics 2016
Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V Campbell, Calvin W L Ho, Kazuto Kato, Jusaku Minari, Chih-Hsing Ho, Colin Mitchell,[...]. BMC Med Ethics 2016
11
Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data.
Thomas Ploug, Søren Holm. Bioethics 2016
Thomas Ploug, Søren Holm. Bioethics 2016
18
7
Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
6
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.
Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, Simon Woods. Eur J Hum Genet 2016
Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, Simon Woods. Eur J Hum Genet 2016
14
Consent and research governance in biobanks: evidence from focus groups with medical researchers.
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
21
Including all voices in international data-sharing governance.
Jane Kaye, Sharon F Terry, Eric Juengst, Sarah Coy, Jennifer R Harris, Don Chalmers, Edward S Dove, Isabelle Budin-Ljøsne, Clement Adebamowo, Emilomo Ogbe,[...]. Hum Genomics 2018
Jane Kaye, Sharon F Terry, Eric Juengst, Sarah Coy, Jennifer R Harris, Don Chalmers, Edward S Dove, Isabelle Budin-Ljøsne, Clement Adebamowo, Emilomo Ogbe,[...]. Hum Genomics 2018
21
From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
6
The "All of Us" Research Program.
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
6
Reflections on dynamic consent in biomedical research: the story so far.
Harriet J A Teare, Megan Prictor, Jane Kaye. Eur J Hum Genet 2021
Harriet J A Teare, Megan Prictor, Jane Kaye. Eur J Hum Genet 2021
37
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
5
A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
9
Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review.
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
Mahsa Shabani, Louise Bezuidenhout, Pascal Borry. Expert Rev Mol Diagn 2014
11
Biobanking from the patient perspective.
Derick Mitchell, Jan Geissler, Alison Parry-Jones, Hans Keulen, Doris C Schmitt, Rosaria Vavassori, Balwir Matharoo-Ball. Res Involv Engagem 2015
Derick Mitchell, Jan Geissler, Alison Parry-Jones, Hans Keulen, Doris C Schmitt, Rosaria Vavassori, Balwir Matharoo-Ball. Res Involv Engagem 2015
12
Genes, cells, and biobanks: Yes, there's still a consent problem.
Timothy Caulfield, Blake Murdoch. PLoS Biol 2017
Timothy Caulfield, Blake Murdoch. PLoS Biol 2017
12
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.
Paul A Harris, Robert Taylor, Robert Thielke, Jonathon Payne, Nathaniel Gonzalez, Jose G Conde. J Biomed Inform 2009
Paul A Harris, Robert Taylor, Robert Thielke, Jonathon Payne, Nathaniel Gonzalez, Jose G Conde. J Biomed Inform 2009
5
Broad Consent Is Consent for Governance.
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. Am J Bioeth 2015
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. Am J Bioeth 2015
25
A solidarity-based approach to the governance of research biobanks.
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
12
Health Research with Big Data: Time for Systemic Oversight.
Effy Vayena, Alessandro Blasimme. J Law Med Ethics 2018
Effy Vayena, Alessandro Blasimme. J Law Med Ethics 2018
11
The RUDY study platform - a novel approach to patient driven research in rare musculoskeletal diseases.
M K Javaid, L Forestier-Zhang, L Watts, A Turner, C Ponte, H Teare, D Gray, N Gray, R Popert, J Hogg,[...]. Orphanet J Rare Dis 2016
M K Javaid, L Forestier-Zhang, L Watts, A Turner, C Ponte, H Teare, D Gray, N Gray, R Popert, J Hogg,[...]. Orphanet J Rare Dis 2016
17
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
5
iCONCUR: informed consent for clinical data and bio-sample use for research.
Hyeoneui Kim, Elizabeth Bell, Jihoon Kim, Amy Sitapati, Joe Ramsdell, Claudiu Farcas, Dexter Friedman, Stephanie Feudjio Feupe, Lucila Ohno-Machado. J Am Med Inform Assoc 2017
Hyeoneui Kim, Elizabeth Bell, Jihoon Kim, Amy Sitapati, Joe Ramsdell, Claudiu Farcas, Dexter Friedman, Stephanie Feudjio Feupe, Lucila Ohno-Machado. J Am Med Inform Assoc 2017
20
A framework for enhancing ethical genomic research with Indigenous communities.
Katrina G Claw, Matthew Z Anderson, Rene L Begay, Krystal S Tsosie, Keolu Fox, Nanibaa' A Garrison. Nat Commun 2018
Katrina G Claw, Matthew Z Anderson, Rene L Begay, Krystal S Tsosie, Keolu Fox, Nanibaa' A Garrison. Nat Commun 2018
5
Organoids as hybrids: ethical implications for the exchange of human tissues.
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. J Med Ethics 2019
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. J Med Ethics 2019
25
Ethical issues in human organoid and gastruloid research.
Megan Munsie, Insoo Hyun, Jeremy Sugarman. Development 2017
Megan Munsie, Insoo Hyun, Jeremy Sugarman. Development 2017
12
Organoid biobanking: identifying the ethics: Organoids revive old and raise new ethical challenges for basic research and therapeutic use.
Sarah N Boers, Johannes Jm van Delden, Hans Clevers, Annelien L Bredenoord. EMBO Rep 2016
Sarah N Boers, Johannes Jm van Delden, Hans Clevers, Annelien L Bredenoord. EMBO Rep 2016
12
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.