A citation-based method for searching scientific literature

Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson, Deborah Mascalzoni. BMC Med Ethics 2017
Times Cited: 113







List of co-cited articles
453 articles co-cited >1



Times Cited
  Times     Co-cited
Similarity


Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
249
41

Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
132
24

Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
97
12

Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
59
18

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants.
Harriet Ja Teare, Michael Morrison, Edgar A Whitley, Jane Kaye. Digit Health 2015
26
42

Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
155
11

Testing an online, dynamic consent portal for large population biobank research.
Daniel B Thiel, Jodyn Platt, Tevah Platt, Susan B King, Nicole Fisher, Robert Shelton, Sharon L R Kardia. Public Health Genomics 2015
29
37

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
81
12

The FAIR Guiding Principles for scientific data management and stewardship.
Mark D Wilkinson, Michel Dumontier, I Jsbrand Jan Aalbersberg, Gabrielle Appleton, Myles Axton, Arie Baak, Niklas Blomberg, Jan-Willem Boiten, Luiz Bonino da Silva Santos, Philip E Bourne,[...]. Sci Data 2016
9

Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.
Adam Nishimura, Jantey Carey, Patricia J Erwin, Jon C Tilburt, M Hassan Murad, Jennifer B McCormick. BMC Med Ethics 2013
259
9

Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach.
Megan Prictor, Harriet J A Teare, Jane Kaye. Front Public Health 2018
24
37

Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
34
23

From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
168
8

Informed consent in genomics and genetic research.
Amy L McGuire, Laura M Beskow. Annu Rev Genomics Hum Genet 2010
102
8

Broadening consent--and diluting ethics?
B Hofmann. J Med Ethics 2009
97
8


A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
105
8

Dynamic Consent: An Evaluation and Reporting Framework.
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
16
50

The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results.
Cristian Pattaro, Martin Gögele, Deborah Mascalzoni, Roberto Melotti, Christine Schwienbacher, Alessandro De Grandi, Luisa Foco, Yuri D'Elia, Barbara Linder, Christian Fuchsberger,[...]. J Transl Med 2015
40
17

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.
Sabina Gainotti, Cathy Turner, Simon Woods, Anna Kole, Pauline McCormack, Hanns Lochmüller, Olaf Riess, Volker Straub, Manuel Posada, Domenica Taruscio,[...]. Eur J Hum Genet 2016
28
25

The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.
Brent Daniel Mittelstadt, Luciano Floridi. Sci Eng Ethics 2016
146
7

Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
493
7

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V Campbell, Calvin W L Ho, Kazuto Kato, Jusaku Minari, Chih-Hsing Ho, Colin Mitchell,[...]. BMC Med Ethics 2016
61
11


Can Broad Consent be Informed Consent?
Mark Sheehan. Public Health Ethics 2011
69
10


Genomic research and wide data sharing: views of prospective participants.
Susan Brown Trinidad, Stephanie M Fullerton, Julie M Bares, Gail P Jarvik, Eric B Larson, Wylie Burke. Genet Med 2010
139
6

'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.
Pauline McCormack, Anna Kole, Sabina Gainotti, Deborah Mascalzoni, Caron Molster, Hanns Lochmüller, Simon Woods. Eur J Hum Genet 2016
42
14

Consent and research governance in biobanks: evidence from focus groups with medical researchers.
E A Whitley, N Kanellopoulou, J Kaye. Public Health Genomics 2012
28
21

Including all voices in international data-sharing governance.
Jane Kaye, Sharon F Terry, Eric Juengst, Sarah Coy, Jennifer R Harris, Don Chalmers, Edward S Dove, Isabelle Budin-Ljøsne, Clement Adebamowo, Emilomo Ogbe,[...]. Hum Genomics 2018
28
21

From consent to institutions: designing adaptive governance for genomic biobanks.
Kieran C O'Doherty, Michael M Burgess, Kelly Edwards, Richard P Gallagher, Alice K Hawkins, Jane Kaye, Veronica McCaffrey, David E Winickoff. Soc Sci Med 2011
94
6

The "All of Us" Research Program.
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
345
6

Reflections on dynamic consent in biomedical research: the story so far.
Harriet J A Teare, Megan Prictor, Jane Kaye. Eur J Hum Genet 2021
16
37

Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
177
5

A review of the key issues associated with the commercialization of biobanks.
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley,[...]. J Law Biosci 2014
51
9


Biobanking from the patient perspective.
Derick Mitchell, Jan Geissler, Alison Parry-Jones, Hans Keulen, Doris C Schmitt, Rosaria Vavassori, Balwir Matharoo-Ball. Res Involv Engagem 2015
39
12

Genes, cells, and biobanks: Yes, there's still a consent problem.
Timothy Caulfield, Blake Murdoch. PLoS Biol 2017
40
12

Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.
Paul A Harris, Robert Taylor, Robert Thielke, Jonathon Payne, Nathaniel Gonzalez, Jose G Conde. J Biomed Inform 2009
5

Broad Consent Is Consent for Governance.
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. Am J Bioeth 2015
20
25

A solidarity-based approach to the governance of research biobanks.
Barbara Prainsack, Alena Buyx. Med Law Rev 2013
41
12

Health Research with Big Data: Time for Systemic Oversight.
Effy Vayena, Alessandro Blasimme. J Law Med Ethics 2018
42
11

The RUDY study platform - a novel approach to patient driven research in rare musculoskeletal diseases.
M K Javaid, L Forestier-Zhang, L Watts, A Turner, C Ponte, H Teare, D Gray, N Gray, R Popert, J Hogg,[...]. Orphanet J Rare Dis 2016
28
17

Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
232
5

iCONCUR: informed consent for clinical data and bio-sample use for research.
Hyeoneui Kim, Elizabeth Bell, Jihoon Kim, Amy Sitapati, Joe Ramsdell, Claudiu Farcas, Dexter Friedman, Stephanie Feudjio Feupe, Lucila Ohno-Machado. J Am Med Inform Assoc 2017
24
20


A framework for enhancing ethical genomic research with Indigenous communities.
Katrina G Claw, Matthew Z Anderson, Rene L Begay, Krystal S Tsosie, Keolu Fox, Nanibaa' A Garrison. Nat Commun 2018
136
5

Organoids as hybrids: ethical implications for the exchange of human tissues.
Sarah N Boers, Johannes J M van Delden, Annelien L Bredenoord. J Med Ethics 2019
20
25

Ethical issues in human organoid and gastruloid research.
Megan Munsie, Insoo Hyun, Jeremy Sugarman. Development 2017
41
12



Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.