Gaia Barazzetti, Samuele Cavalli, Lazare Benaroyo, Alain Kaufmann. Genet Test Mol Biomarkers 2017
Times Cited: 6
Times Cited: 6
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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
50
Pediatric biobanking: a pilot qualitative survey of practices, rules, and researcher opinions in ten European countries.
Elena Salvaterra, Roberto Giorda, Maria T Bassi, Renato Borgatti, Lisbeth E Knudsen, Andrea Martinuzzi, Maria Nobile, Uberto Pozzoli, Gian P Ramelli, Gianl L Reni,[...]. Biopreserv Biobank 2012
Elena Salvaterra, Roberto Giorda, Maria T Bassi, Renato Borgatti, Lisbeth E Knudsen, Andrea Martinuzzi, Maria Nobile, Uberto Pozzoli, Gian P Ramelli, Gianl L Reni,[...]. Biopreserv Biobank 2012
33
Engaging African-Americans about biobanks and the return of research results.
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
33
Return of "accurate" and "actionable" results: yes!
Bartha Maria Knoppers, Claude Laberge. Am J Bioeth 2009
Bartha Maria Knoppers, Claude Laberge. Am J Bioeth 2009
33
Biobanking, consent, and control: a survey of Albertans on key research ethics issues.
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
33
The development of a preference-setting model for the return of individual genomic research results.
Phoebe L Bacon, Erin D Harris, Sonja I Ziniel, Sarah K Savage, Elissa R Weitzman, Robert C Green, Noelle L Huntington, Ingrid A Holm. J Empir Res Hum Res Ethics 2015
Phoebe L Bacon, Erin D Harris, Sonja I Ziniel, Sarah K Savage, Elissa R Weitzman, Robert C Green, Noelle L Huntington, Ingrid A Holm. J Empir Res Hum Res Ethics 2015
33
The return of unexpected research results in a biobank study and referral to health care for heritable long QT syndrome.
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
33
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
33
Return of research results from genomic biobanks: cost matters.
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
33
Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
33
Allocation of Resources to Communication of Research Result Summaries.
Julie E Richards, Emmi Bane, Stephanie M Fullerton, Evette J Ludman, Gail Jarvik. J Empir Res Hum Res Ethics 2016
Julie E Richards, Emmi Bane, Stephanie M Fullerton, Evette J Ludman, Gail Jarvik. J Empir Res Hum Res Ethics 2016
66
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
33
Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.
Gloria M Petersen, Brian Van Ness. J Law Med Ethics 2015
Gloria M Petersen, Brian Van Ness. J Law Med Ethics 2015
33
Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice.
D Pullman, K Hodgkinson. Clin Genet 2006
D Pullman, K Hodgkinson. Clin Genet 2006
16
Community engagement for big epidemiology: deliberative democracy as a tool.
Rebekah E McWhirter, Christine R Critchley, Dianne Nicol, Don Chalmers, Tess Whitton, Margaret Otlowski, Michael M Burgess, Joanne L Dickinson. J Pers Med 2014
Rebekah E McWhirter, Christine R Critchley, Dianne Nicol, Don Chalmers, Tess Whitton, Margaret Otlowski, Michael M Burgess, Joanne L Dickinson. J Pers Med 2014
16
How Geisinger made the case for an institutional duty to return genomic results to biobank participants.
W Andrew Faucett, F Daniel Davis. Appl Transl Genom 2016
W Andrew Faucett, F Daniel Davis. Appl Transl Genom 2016
16
Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.
Amy L McGuire, Bartha Maria Knoppers, Ma'n H Zawati, Ellen Wright Clayton. Genome Res 2014
Amy L McGuire, Bartha Maria Knoppers, Ma'n H Zawati, Ellen Wright Clayton. Genome Res 2014
16
Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.
Blanaid Mee, Eoin Gaffney, Sharon A Glynn, Simona Donatello, Paul Carroll, Elizabeth Connolly, Sarah Mc Garrigle, Terry Boyle, Delia Flannery, Francis J Sullivan,[...]. Biopreserv Biobank 2013
Blanaid Mee, Eoin Gaffney, Sharon A Glynn, Simona Donatello, Paul Carroll, Elizabeth Connolly, Sarah Mc Garrigle, Terry Boyle, Delia Flannery, Francis J Sullivan,[...]. Biopreserv Biobank 2013
16
The Mayo Clinic Biobank: a building block for individualized medicine.
Janet E Olson, Euijung Ryu, Kiley J Johnson, Barbara A Koenig, Karen J Maschke, Jody A Morrisette, Mark Liebow, Paul Y Takahashi, Zachary S Fredericksen, Ruchi G Sharma,[...]. Mayo Clin Proc 2013
Janet E Olson, Euijung Ryu, Kiley J Johnson, Barbara A Koenig, Karen J Maschke, Jody A Morrisette, Mark Liebow, Paul Y Takahashi, Zachary S Fredericksen, Ruchi G Sharma,[...]. Mayo Clin Proc 2013
16
Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants.
Heather R Bemmels, Susan M Wolf, Brian Van Ness. Genet Med 2012
Heather R Bemmels, Susan M Wolf, Brian Van Ness. Genet Med 2012
16
The Tohoku Medical Megabank Project: Design and Mission.
Shinichi Kuriyama, Nobuo Yaegashi, Fuji Nagami, Tomohiko Arai, Yoshio Kawaguchi, Noriko Osumi, Masaki Sakaida, Yoichi Suzuki, Keiko Nakayama, Hiroaki Hashizume,[...]. J Epidemiol 2016
Shinichi Kuriyama, Nobuo Yaegashi, Fuji Nagami, Tomohiko Arai, Yoshio Kawaguchi, Noriko Osumi, Masaki Sakaida, Yoichi Suzuki, Keiko Nakayama, Hiroaki Hashizume,[...]. J Epidemiol 2016
16
Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
16
Funding considerations for the disclosure of genetic incidental findings in biobank research.
L Black, D Avard, M H Zawati, B M Knoppers, J Hébert, G Sauvageau. Clin Genet 2013
L Black, D Avard, M H Zawati, B M Knoppers, J Hébert, G Sauvageau. Clin Genet 2013
16
The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
16
Offering aggregate results to participants in genomic research: opportunities and challenges.
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet Med 2012
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet Med 2012
16
Researchers' opinions towards the communication of results of biobank research: a survey study.
Tineke M Meulenkamp, Sjef J K Gevers, Jasper A Bovenberg, Ellen M A Smets. Eur J Hum Genet 2012
Tineke M Meulenkamp, Sjef J K Gevers, Jasper A Bovenberg, Ellen M A Smets. Eur J Hum Genet 2012
16
On the justifiability of ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Thomas May. J Law Med Ethics 2015
Thomas May. J Law Med Ethics 2015
16
Biobanks: importance, implications and opportunities for genetic counselors.
Alice K Hawkins. J Genet Couns 2010
Alice K Hawkins. J Genet Couns 2010
16
[Biobanks and the return of results to donors].
Eric Vermeulen, Martin Boeckhout, Gerhard A Zielhuis, Rachel Bakker, A C J W Cecile Janssens, Marjanka K Schmidt. Ned Tijdschr Geneeskd 2014
Eric Vermeulen, Martin Boeckhout, Gerhard A Zielhuis, Rachel Bakker, A C J W Cecile Janssens, Marjanka K Schmidt. Ned Tijdschr Geneeskd 2014
50
National survey and community advisory board development for a bipolar disorder biobank.
Mark A Frye, Allen Doederlein, Barbara Koenig, Susan L McElroy, Malik Nassan, Lisa R Seymour, Joanna M Biernacka, Allen S Daniels. Bipolar Disord 2015
Mark A Frye, Allen Doederlein, Barbara Koenig, Susan L McElroy, Malik Nassan, Lisa R Seymour, Joanna M Biernacka, Allen S Daniels. Bipolar Disord 2015
16
Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.
Ingrid A Holm, Brittany R Iles, Sonja I Ziniel, Phoebe L Bacon, Sarah K Savage, Kurt D Christensen, Elissa R Weitzman, Robert C Green, Noelle L Huntington. J Empir Res Hum Res Ethics 2015
Ingrid A Holm, Brittany R Iles, Sonja I Ziniel, Phoebe L Bacon, Sarah K Savage, Kurt D Christensen, Elissa R Weitzman, Robert C Green, Noelle L Huntington. J Empir Res Hum Res Ethics 2015
16
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
. Genet Med 2015
16
16
Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.
Joanna Stjernschantz Forsberg, Mats G Hansson, Stefan Eriksson. Eur J Hum Genet 2009
Joanna Stjernschantz Forsberg, Mats G Hansson, Stefan Eriksson. Eur J Hum Genet 2009
16
Attitudes of African-American parents about biobank participation and return of results for themselves and their children.
Colin M E Halverson, Lainie Friedman Ross. J Med Ethics 2012
Colin M E Halverson, Lainie Friedman Ross. J Med Ethics 2012
16
Point-counterpoint. Patient autonomy and incidental findings in clinical genomics.
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
Susan M Wolf, George J Annas, Sherman Elias. Science 2013
16
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
16
Translation of research discoveries to clinical care in arrhythmogenic right ventricular cardiomyopathy in Newfoundland and Labrador: lessons for health policy in genetic disease.
Kathy Hodgkinson, Elizabeth Dicks, Sean Connors, Terry-Lynn Young, Patrick Parfrey, Daryl Pullman. Genet Med 2009
Kathy Hodgkinson, Elizabeth Dicks, Sean Connors, Terry-Lynn Young, Patrick Parfrey, Daryl Pullman. Genet Med 2009
16
Incidental findings of therapeutic misconception in biobank-based research.
Colin M E Halverson, Lainie Friedman Ross. Genet Med 2012
Colin M E Halverson, Lainie Friedman Ross. Genet Med 2012
16
Ensuring the Quality, Fairness, and Integrity of Journal Peer Review: A Possible Role of Editors.
David B Resnik, Susan A Elmore. Sci Eng Ethics 2016
David B Resnik, Susan A Elmore. Sci Eng Ethics 2016
16
Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies.
Alice Hawkins Virani, Holly Longstaff. J Genet Couns 2015
Alice Hawkins Virani, Holly Longstaff. J Genet Couns 2015
16
Biobanks and personalized medicine.
J E Olson, S J Bielinski, E Ryu, E M Winkler, P Y Takahashi, J Pathak, J R Cerhan. Clin Genet 2014
J E Olson, S J Bielinski, E Ryu, E M Winkler, P Y Takahashi, J Pathak, J R Cerhan. Clin Genet 2014
16
A histogram approach to the quality of fit in sedimentation velocity analyses.
Jia Ma, Huaying Zhao, Peter Schuck. Anal Biochem 2015
Jia Ma, Huaying Zhao, Peter Schuck. Anal Biochem 2015
16
Design of a randomized controlled trial of disclosing genomic risk of coronary heart disease: the Myocardial Infarction Genes (MI-GENES) study.
Iftikhar J Kullo, Hayan Jouni, Janet E Olson, Victor M Montori, Kent R Bailey. BMC Med Genomics 2015
Iftikhar J Kullo, Hayan Jouni, Janet E Olson, Victor M Montori, Kent R Bailey. BMC Med Genomics 2015
16
Paediatric biobanks: what makes them so unique?
Julie Samuël, Bartha M Knoppers, Denise Avard. J Paediatr Child Health 2012
Julie Samuël, Bartha M Knoppers, Denise Avard. J Paediatr Child Health 2012
16
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
16
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.