Gaia Barazzetti, Samuele Cavalli, Lazare Benaroyo, Alain Kaufmann. Genet Test Mol Biomarkers 2017
Times Cited: 7
Times Cited: 7
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Pediatric biobanking: a pilot qualitative survey of practices, rules, and researcher opinions in ten European countries.
Elena Salvaterra, Roberto Giorda, Maria T Bassi, Renato Borgatti, Lisbeth E Knudsen, Andrea Martinuzzi, Maria Nobile, Uberto Pozzoli, Gian P Ramelli, Gianl L Reni,[...]. Biopreserv Biobank 2012
Elena Salvaterra, Roberto Giorda, Maria T Bassi, Renato Borgatti, Lisbeth E Knudsen, Andrea Martinuzzi, Maria Nobile, Uberto Pozzoli, Gian P Ramelli, Gianl L Reni,[...]. Biopreserv Biobank 2012
42
Engaging African-Americans about biobanks and the return of research results.
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
42
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
Susan M Wolf, Brittney N Crock, Brian Van Ness, Frances Lawrenz, Jeffrey P Kahn, Laura M Beskow, Mildred K Cho, Michael F Christman, Robert C Green, Ralph Hall,[...]. Genet Med 2012
42
The development of a preference-setting model for the return of individual genomic research results.
Phoebe L Bacon, Erin D Harris, Sonja I Ziniel, Sarah K Savage, Elissa R Weitzman, Robert C Green, Noelle L Huntington, Ingrid A Holm. J Empir Res Hum Res Ethics 2015
Phoebe L Bacon, Erin D Harris, Sonja I Ziniel, Sarah K Savage, Elissa R Weitzman, Robert C Green, Noelle L Huntington, Ingrid A Holm. J Empir Res Hum Res Ethics 2015
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The return of unexpected research results in a biobank study and referral to health care for heritable long QT syndrome.
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
A Haukkala, E Kujala, P Alha, V Salomaa, S Koskinen, H Swan, H Kääriäinen. Public Health Genomics 2013
42
Public expectations for return of results from large-cohort genetic research.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson. Am J Bioeth 2008
42
Return of "accurate" and "actionable" results: yes!
Bartha Maria Knoppers, Claude Laberge. Am J Bioeth 2009
Bartha Maria Knoppers, Claude Laberge. Am J Bioeth 2009
28
Researchers' opinions towards the communication of results of biobank research: a survey study.
Tineke M Meulenkamp, Sjef J K Gevers, Jasper A Bovenberg, Ellen M A Smets. Eur J Hum Genet 2012
Tineke M Meulenkamp, Sjef J K Gevers, Jasper A Bovenberg, Ellen M A Smets. Eur J Hum Genet 2012
28
Biobanking, consent, and control: a survey of Albertans on key research ethics issues.
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
Timothy Caulfield, Christen Rachul, Erin Nelson. Biopreserv Biobank 2012
28
Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.
Ingrid A Holm, Brittany R Iles, Sonja I Ziniel, Phoebe L Bacon, Sarah K Savage, Kurt D Christensen, Elissa R Weitzman, Robert C Green, Noelle L Huntington. J Empir Res Hum Res Ethics 2015
Ingrid A Holm, Brittany R Iles, Sonja I Ziniel, Phoebe L Bacon, Sarah K Savage, Kurt D Christensen, Elissa R Weitzman, Robert C Green, Noelle L Huntington. J Empir Res Hum Res Ethics 2015
28
Return of research results from genomic biobanks: cost matters.
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps. Genet Med 2013
28
Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
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Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
28
Allocation of Resources to Communication of Research Result Summaries.
Julie E Richards, Emmi Bane, Stephanie M Fullerton, Evette J Ludman, Gail Jarvik. J Empir Res Hum Res Ethics 2016
Julie E Richards, Emmi Bane, Stephanie M Fullerton, Evette J Ludman, Gail Jarvik. J Empir Res Hum Res Ethics 2016
40
Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
Carmen Radecki Breitkopf, Gloria M Petersen, Susan M Wolf, Kari G Chaffee, Marguerite E Robinson, Deborah R Gordon, Noralane M Lindor, Barbara A Koenig. J Law Med Ethics 2015
28
Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
Amy A Lemke, Colin Halverson, Lainie Friedman Ross. Am J Med Genet A 2012
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Adolescent perspectives on the return of individual results in genomic addiction research.
Marilyn E Coors, Kristen M Raymond, Shannon K McWilliams, Christian J Hopfer, Susan K Mikulich-Gilbertson. Psychiatr Genet 2015
Marilyn E Coors, Kristen M Raymond, Shannon K McWilliams, Christian J Hopfer, Susan K Mikulich-Gilbertson. Psychiatr Genet 2015
28
When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results.
Fiona A Miller, Mita Giacomini, Catherine Ahern, Jason S Robert, Sonya de Laat. BMC Med Ethics 2008
Fiona A Miller, Mita Giacomini, Catherine Ahern, Jason S Robert, Sonya de Laat. BMC Med Ethics 2008
28
Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.
Sarah M Hartz, Emily Olfson, Robert Culverhouse, Patricia Cavazos-Rehg, Li-Shiun Chen, James DuBois, Sherri Fisher, Kimberly Kaphingst, David Kaufman, Andrew Plunk,[...]. Genet Med 2015
Sarah M Hartz, Emily Olfson, Robert Culverhouse, Patricia Cavazos-Rehg, Li-Shiun Chen, James DuBois, Sherri Fisher, Kimberly Kaphingst, David Kaufman, Andrew Plunk,[...]. Genet Med 2015
28
Prospective biorepository participants' perspectives on access to research results.
Laura M Beskow, Sondra J Smolek. J Empir Res Hum Res Ethics 2009
Laura M Beskow, Sondra J Smolek. J Empir Res Hum Res Ethics 2009
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Communication of biobanks' research results: what do (potential) participants want?
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
Tineke M Meulenkamp, Sjef K Gevers, Jasper A Bovenberg, Gerard H Koppelman, Astrid van Hylckama Vlieg, Ellen M A Smets. Am J Med Genet A 2010
28
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study.
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
Flavia M Facio, Haley Eidem, Tyler Fisher, Stephanie Brooks, Amy Linn, Kimberly A Kaphingst, Leslie G Biesecker, Barbara B Biesecker. Eur J Hum Genet 2013
28
Impact of Next Generation Sequencing on the Organization and Funding of Returning Research Results: Survey of Canadian Research Ethics Boards Members.
Iris Jaitovich Groisman, Beatrice Godard. PLoS One 2016
Iris Jaitovich Groisman, Beatrice Godard. PLoS One 2016
50
Population studies: return of research results and incidental findings Policy Statement.
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
Bartha Maria Knoppers, Mylène Deschênes, Ma'n H Zawati, Anne Marie Tassé. Eur J Hum Genet 2013
28
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
Juli Murphy Bollinger, Joan Scott, Rachel Dvoskin, David Kaufman. Genet Med 2012
28
Patients' Attitudes Towards the Return of Incidental Findings After Research with Residual Tissue: A Mixed Methods Study.
Eric Vermeulen, Susanne Rebers, Neil K Aaronson, Alexander P Brandenburg, Flora E van Leeuwen, Marjanka K Schmidt. Genet Test Mol Biomarkers 2018
Eric Vermeulen, Susanne Rebers, Neil K Aaronson, Alexander P Brandenburg, Flora E van Leeuwen, Marjanka K Schmidt. Genet Test Mol Biomarkers 2018
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Family decision maker perspectives on the return of genetic results in biobanking research.
Laura A Siminoff, Heather M Traino, Maghboeba Mosavel, Laura Barker, Glencora Gudger, Anita Undale. Genet Med 2016
Laura A Siminoff, Heather M Traino, Maghboeba Mosavel, Laura Barker, Glencora Gudger, Anita Undale. Genet Med 2016
28
The responses of research participants and their next of kin to receiving feedback of genetic test results following participation in the Australian Ovarian Cancer Study.
Nina Hallowell, Kathryn Alsop, Margaret Gleeson, Ashley Crook, Loren Plunkett, David Bowtell, Gillian Mitchell, Mary-Anne Young. Genet Med 2013
Nina Hallowell, Kathryn Alsop, Margaret Gleeson, Ashley Crook, Loren Plunkett, David Bowtell, Gillian Mitchell, Mary-Anne Young. Genet Med 2013
28
Public preferences for the return of research results in genetic research: a conjoint analysis.
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
Juli Murphy Bollinger, John F P Bridges, Ateesha Mohamed, David Kaufman. Genet Med 2014
28
Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
28
The views of ethics committee members and medical researchers on the return of individual research results and incidental findings, ownership issues and benefit sharing in biobanking research in a South Indian city.
Manjulika Vaz, Mario Vaz, Srinivasan K. Dev World Bioeth 2018
Manjulika Vaz, Mario Vaz, Srinivasan K. Dev World Bioeth 2018
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Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.
Catherine Gliwa, Ilana R Yurkiewicz, Lisa Soleymani Lehmann, Sara Chandros Hull, Nathan Jones, Benjamin E Berkman. Genet Med 2016
Catherine Gliwa, Ilana R Yurkiewicz, Lisa Soleymani Lehmann, Sara Chandros Hull, Nathan Jones, Benjamin E Berkman. Genet Med 2016
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Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.
M Ragan Hart, Barbara B Biesecker, Carrie L Blout, Kurt D Christensen, Laura M Amendola, Katie L Bergstrom, Sawona Biswas, Kevin M Bowling, Kyle B Brothers, Laura K Conlin,[...]. Genet Med 2019
M Ragan Hart, Barbara B Biesecker, Carrie L Blout, Kurt D Christensen, Laura M Amendola, Katie L Bergstrom, Sawona Biswas, Kevin M Bowling, Kyle B Brothers, Laura K Conlin,[...]. Genet Med 2019
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IRB perspectives on the return of individual results from genomic research.
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
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Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks.
Gloria M Petersen, Brian Van Ness. J Law Med Ethics 2015
Gloria M Petersen, Brian Van Ness. J Law Med Ethics 2015
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Genetic knowledge and moral responsibility: ambiguity at the interface of genetic research and clinical practice.
D Pullman, K Hodgkinson. Clin Genet 2006
D Pullman, K Hodgkinson. Clin Genet 2006
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Community engagement for big epidemiology: deliberative democracy as a tool.
Rebekah E McWhirter, Christine R Critchley, Dianne Nicol, Don Chalmers, Tess Whitton, Margaret Otlowski, Michael M Burgess, Joanne L Dickinson. J Pers Med 2014
Rebekah E McWhirter, Christine R Critchley, Dianne Nicol, Don Chalmers, Tess Whitton, Margaret Otlowski, Michael M Burgess, Joanne L Dickinson. J Pers Med 2014
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How Geisinger made the case for an institutional duty to return genomic results to biobank participants.
W Andrew Faucett, F Daniel Davis. Appl Transl Genom 2016
W Andrew Faucett, F Daniel Davis. Appl Transl Genom 2016
14
Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.
Amy L McGuire, Bartha Maria Knoppers, Ma'n H Zawati, Ellen Wright Clayton. Genome Res 2014
Amy L McGuire, Bartha Maria Knoppers, Ma'n H Zawati, Ellen Wright Clayton. Genome Res 2014
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Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.
Blanaid Mee, Eoin Gaffney, Sharon A Glynn, Simona Donatello, Paul Carroll, Elizabeth Connolly, Sarah Mc Garrigle, Terry Boyle, Delia Flannery, Francis J Sullivan,[...]. Biopreserv Biobank 2013
Blanaid Mee, Eoin Gaffney, Sharon A Glynn, Simona Donatello, Paul Carroll, Elizabeth Connolly, Sarah Mc Garrigle, Terry Boyle, Delia Flannery, Francis J Sullivan,[...]. Biopreserv Biobank 2013
14
The Mayo Clinic Biobank: a building block for individualized medicine.
Janet E Olson, Euijung Ryu, Kiley J Johnson, Barbara A Koenig, Karen J Maschke, Jody A Morrisette, Mark Liebow, Paul Y Takahashi, Zachary S Fredericksen, Ruchi G Sharma,[...]. Mayo Clin Proc 2013
Janet E Olson, Euijung Ryu, Kiley J Johnson, Barbara A Koenig, Karen J Maschke, Jody A Morrisette, Mark Liebow, Paul Y Takahashi, Zachary S Fredericksen, Ruchi G Sharma,[...]. Mayo Clin Proc 2013
14
Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants.
Heather R Bemmels, Susan M Wolf, Brian Van Ness. Genet Med 2012
Heather R Bemmels, Susan M Wolf, Brian Van Ness. Genet Med 2012
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The Tohoku Medical Megabank Project: Design and Mission.
Shinichi Kuriyama, Nobuo Yaegashi, Fuji Nagami, Tomohiko Arai, Yoshio Kawaguchi, Noriko Osumi, Masaki Sakaida, Yoichi Suzuki, Keiko Nakayama, Hiroaki Hashizume,[...]. J Epidemiol 2016
Shinichi Kuriyama, Nobuo Yaegashi, Fuji Nagami, Tomohiko Arai, Yoshio Kawaguchi, Noriko Osumi, Masaki Sakaida, Yoichi Suzuki, Keiko Nakayama, Hiroaki Hashizume,[...]. J Epidemiol 2016
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Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
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Funding considerations for the disclosure of genetic incidental findings in biobank research.
L Black, D Avard, M H Zawati, B M Knoppers, J Hébert, G Sauvageau. Clin Genet 2013
L Black, D Avard, M H Zawati, B M Knoppers, J Hébert, G Sauvageau. Clin Genet 2013
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The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
David J Carey, Samantha N Fetterolf, F Daniel Davis, William A Faucett, H Lester Kirchner, Uyenlinh Mirshahi, Michael F Murray, Diane T Smelser, Glenn S Gerhard, David H Ledbetter. Genet Med 2016
14
Offering aggregate results to participants in genomic research: opportunities and challenges.
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet Med 2012
Laura M Beskow, Wylie Burke, Stephanie M Fullerton, Richard R Sharp. Genet Med 2012
14
On the justifiability of ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Thomas May. J Law Med Ethics 2015
Thomas May. J Law Med Ethics 2015
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Biobanks: importance, implications and opportunities for genetic counselors.
Alice K Hawkins. J Genet Couns 2010
Alice K Hawkins. J Genet Couns 2010
14
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.