Kerry A Ryan, Raymond G De Vries, Wendy R Uhlmann, J Scott Roberts, Michele C Gornick. J Genet Couns 2017
Times Cited: 12
Times Cited: 12
Times Cited
Times Co-cited
Similarity
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
50
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
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Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
Joon-Ho Yu, Tanya M Harrell, Seema M Jamal, Holly K Tabor, Michael J Bamshad. Am J Hum Genet 2014
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
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Incidental findings in the era of whole genome sequencing?
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
Erik Parens, Paul Appelbaum, Wendy Chung. Hastings Cent Rep 2013
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Researchers' views on return of incidental genomic research results: qualitative and quantitative findings.
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
Robert Klitzman, Paul S Appelbaum, Abby Fyer, Josue Martinez, Brigitte Buquez, Julia Wynn, Cameron R Waldman, Jo Phelan, Erik Parens, Wendy K Chung. Genet Med 2013
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Stakeholders in psychiatry and their attitudes toward receiving pertinent and incident findings in genomic research.
Anna Sundby, Merete W Boolsen, Kristoffer S Burgdorf, Henrik Ullum, Thomas F Hansen, Anna Middleton, Ole Mors. Am J Med Genet A 2017
Anna Sundby, Merete W Boolsen, Kristoffer S Burgdorf, Henrik Ullum, Thomas F Hansen, Anna Middleton, Ole Mors. Am J Med Genet A 2017
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Finding people who will tell you their thoughts on genomics-recruitment strategies for social sciences research.
A Middleton, E Bragin, M Parker. J Community Genet 2014
A Middleton, E Bragin, M Parker. J Community Genet 2014
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To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
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Potential research participants support the return of raw sequence data.
Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker. J Med Genet 2015
Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker. J Med Genet 2015
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The Danish Blood Donor Study: a large, prospective cohort and biobank for medical research.
O B Pedersen, C Erikstrup, S R Kotzé, E Sørensen, M S Petersen, K Grau, H Ullum. Vox Sang 2012
O B Pedersen, C Erikstrup, S R Kotzé, E Sørensen, M S Petersen, K Grau, H Ullum. Vox Sang 2012
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Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
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Effect of Public Deliberation on Attitudes toward Return of Secondary Results in Genomic Sequencing.
Michele C Gornick, Aaron M Scherer, Erica J Sutton, Kerry A Ryan, Nicole L Exe, Ming Li, Wendy R Uhlmann, Scott Y H Kim, J Scott Roberts, Raymond G De Vries. J Genet Couns 2017
Michele C Gornick, Aaron M Scherer, Erica J Sutton, Kerry A Ryan, Nicole L Exe, Ming Li, Wendy R Uhlmann, Scott Y H Kim, J Scott Roberts, Raymond G De Vries. J Genet Couns 2017
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Can I access my personal genome? The current legal position in the UK.
Jane Kaye, Nadja Kanellopoulou, Naomi Hawkins, Heather Gowans, Liam Curren, Karen Melham. Med Law Rev 2014
Jane Kaye, Nadja Kanellopoulou, Naomi Hawkins, Heather Gowans, Liam Curren, Karen Melham. Med Law Rev 2014
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Using whole-exome sequencing to identify inherited causes of autism.
Timothy W Yu, Maria H Chahrour, Michael E Coulter, Sarn Jiralerspong, Kazuko Okamura-Ikeda, Bulent Ataman, Klaus Schmitz-Abe, David A Harmin, Mazhar Adli, Athar N Malik,[...]. Neuron 2013
Timothy W Yu, Maria H Chahrour, Michael E Coulter, Sarn Jiralerspong, Kazuko Okamura-Ikeda, Bulent Ataman, Klaus Schmitz-Abe, David A Harmin, Mazhar Adli, Athar N Malik,[...]. Neuron 2013
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Empirical research on the ethics of genomic research.
Anna Middleton, Michael Parker, Caroline F Wright, Eugene Bragin, Matthew E Hurles. Am J Med Genet A 2013
Anna Middleton, Michael Parker, Caroline F Wright, Eugene Bragin, Matthew E Hurles. Am J Med Genet A 2013
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Personal genome research : what should the participant be told?
Amy L McGuire, James R Lupski. Trends Genet 2010
Amy L McGuire, James R Lupski. Trends Genet 2010
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Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
Elise T Bui, Natalie K Anderson, Layla Kassem, Francis J McMahon. PLoS One 2014
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ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
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The emergence of an ethical duty to disclose genetic research results: international perspectives.
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
Bartha Maria Knoppers, Yann Joly, Jacques Simard, Francine Durocher. Eur J Hum Genet 2006
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Online questionnaire development: using film to engage participants and then gather attitudes towards the sharing of genomic data.
A Middleton, E Bragin, K I Morley, M Parker. Soc Sci Res 2014
A Middleton, E Bragin, K I Morley, M Parker. Soc Sci Res 2014
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Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.
Kyle B Brothers, Kelly M East, Whitley V Kelley, M Frances Wright, Matthew J Westbrook, Carla A Rich, Kevin M Bowling, Edward J Lose, E Martina Bebin, Shirley Simmons,[...]. Genet Med 2017
Kyle B Brothers, Kelly M East, Whitley V Kelley, M Frances Wright, Matthew J Westbrook, Carla A Rich, Kevin M Bowling, Edward J Lose, E Martina Bebin, Shirley Simmons,[...]. Genet Med 2017
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Information Mismatch: Cancer Risk Counseling with Diverse Underserved Patients.
Galen Joseph, Rena J Pasick, Dean Schillinger, Judith Luce, Claudia Guerra, Janice Ka Yan Cheng. J Genet Couns 2017
Galen Joseph, Rena J Pasick, Dean Schillinger, Judith Luce, Claudia Guerra, Janice Ka Yan Cheng. J Genet Couns 2017
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Research Participants' Preferences for Hypothetical Secondary Results from Genomic Research.
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
Julia Wynn, Josue Martinez, Jimmy Duong, Codruta Chiuzan, Jo C Phelan, Abby Fyer, Robert L Klitzman, Paul S Appelbaum, Wendy K Chung. J Genet Couns 2017
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The impact of communicating genetic risks of disease on risk-reducing health behaviour: systematic review with meta-analysis.
Gareth J Hollands, David P French, Simon J Griffin, A Toby Prevost, Stephen Sutton, Sarah King, Theresa M Marteau. BMJ 2016
Gareth J Hollands, David P French, Simon J Griffin, A Toby Prevost, Stephen Sutton, Sarah King, Theresa M Marteau. BMJ 2016
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Attitudes of parents toward the return of targeted and incidental genomic research findings in children.
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
Conrad V Fernandez, Eric Bouffet, David Malkin, Nada Jabado, Colleen O'Connell, Denise Avard, Bartha M Knoppers, Meghan Ferguson, Kym M Boycott, Poul H Sorensen,[...]. Genet Med 2014
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Overcoming recruitment barriers revealed high readiness to participate and low dropout rate among people with schizophrenia in a randomized controlled trial testing the effect of a Guided Self-Determination intervention.
Rikke Jørgensen, Povl Munk-Jørgensen, Paul H Lysaker, Kelly D Buck, Lars Hansson, Vibeke Zoffmann. BMC Psychiatry 2014
Rikke Jørgensen, Povl Munk-Jørgensen, Paul H Lysaker, Kelly D Buck, Lars Hansson, Vibeke Zoffmann. BMC Psychiatry 2014
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Assessing hypothetical scenario methodology in genetic susceptibility testing analog studies: a quantitative review.
Susan Persky, Kimberly A Kaphingst, Celeste M Condit, Colleen M McBride. Genet Med 2007
Susan Persky, Kimberly A Kaphingst, Celeste M Condit, Colleen M McBride. Genet Med 2007
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Is "incidental finding" the best term?: a study of patients' preferences.
Nina Tan, Laura M Amendola, Julianne M O'Daniel, Amber Burt, Martha J Horike-Pyne, Lacey Boshe, Gail E Henderson, Christine Rini, Myra I Roche, Fuki M Hisama,[...]. Genet Med 2017
Nina Tan, Laura M Amendola, Julianne M O'Daniel, Amber Burt, Martha J Horike-Pyne, Lacey Boshe, Gail E Henderson, Christine Rini, Myra I Roche, Fuki M Hisama,[...]. Genet Med 2017
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Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.
Catherine Gliwa, Ilana R Yurkiewicz, Lisa Soleymani Lehmann, Sara Chandros Hull, Nathan Jones, Benjamin E Berkman. Genet Med 2016
Catherine Gliwa, Ilana R Yurkiewicz, Lisa Soleymani Lehmann, Sara Chandros Hull, Nathan Jones, Benjamin E Berkman. Genet Med 2016
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Public perspectives on returning genetics and genomics research results.
J O'Daniel, S B Haga. Public Health Genomics 2011
J O'Daniel, S B Haga. Public Health Genomics 2011
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Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
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Managing incidental findings in human subjects research: analysis and recommendations.
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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Secondary variants in individuals undergoing exome sequencing: screening of 572 individuals identifies high-penetrance mutations in cancer-susceptibility genes.
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
Jennifer J Johnston, Wendy S Rubinstein, Flavia M Facio, David Ng, Larry N Singh, Jamie K Teer, James C Mullikin, Leslie G Biesecker. Am J Hum Genet 2012
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Preferences for return of incidental findings from genome sequencing among women diagnosed with breast cancer at a young age.
K A Kaphingst, J Ivanovich, B B Biesecker, R Dresser, J Seo, L G Dressler, P J Goodfellow, M S Goodman. Clin Genet 2016
K A Kaphingst, J Ivanovich, B B Biesecker, R Dresser, J Seo, L G Dressler, P J Goodfellow, M S Goodman. Clin Genet 2016
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A survey of current practices for genomic sequencing test interpretation and reporting processes in US laboratories.
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
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Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
Robert C Green, Jonathan S Berg, Gerard T Berry, Leslie G Biesecker, David P Dimmock, James P Evans, Wayne W Grody, Madhuri R Hegde, Sarah Kalia, Bruce R Korf,[...]. Genet Med 2012
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Patient preferences regarding incidental genomic findings discovered during tumor profiling.
Melinda L Yushak, Gang Han, Sara Bouberhan, Lianne Epstein, Michael P DiGiovanna, Sarah S Mougalian, Tara B Sanft, Maysa M Abu-Khalaf, Gina G Chung, Stacey M Stein,[...]. Cancer 2016
Melinda L Yushak, Gang Han, Sara Bouberhan, Lianne Epstein, Michael P DiGiovanna, Sarah S Mougalian, Tara B Sanft, Maysa M Abu-Khalaf, Gina G Chung, Stacey M Stein,[...]. Cancer 2016
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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
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"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
Anne Townsend, Shelin Adam, Patricia H Birch, Zoe Lohn, Francois Rousseau, Jan M Friedman. Am J Med Genet A 2012
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Experiences and perspectives on the return of secondary findings among genetic epidemiologists.
Catherine M Stein, Roselle Ponsaran, Erika S Trapl, Aaron J Goldenberg. Genet Med 2019
Catherine M Stein, Roselle Ponsaran, Erika S Trapl, Aaron J Goldenberg. Genet Med 2019
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Guidelines for the process of cross-cultural adaptation of self-report measures.
D E Beaton, C Bombardier, F Guillemin, M B Ferraz. Spine (Phila Pa 1976) 2000
D E Beaton, C Bombardier, F Guillemin, M B Ferraz. Spine (Phila Pa 1976) 2000
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Reasons for participating in randomised controlled trials: conditional altruism and considerations for self.
Sharon K McCann, Marion K Campbell, Vikki A Entwistle. Trials 2010
Sharon K McCann, Marion K Campbell, Vikki A Entwistle. Trials 2010
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Potential consumers' attitudes toward psychiatric genetic research and testing and factors influencing their intentions to test.
Mett Marri Laegsgaard, Ann Suhl Kristensen, Ole Mors. Genet Test Mol Biomarkers 2009
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Whole-Genome Sequencing Suggests Schizophrenia Risk Mechanisms in Humans with 22q11.2 Deletion Syndrome.
Daniele Merico, Mehdi Zarrei, Gregory Costain, Lucas Ogura, Babak Alipanahi, Matthew J Gazzellone, Nancy J Butcher, Bhooma Thiruvahindrapuram, Thomas Nalpathamkalam, Eva W C Chow,[...]. G3 (Bethesda) 2015
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Uncovering the roles of rare variants in common disease through whole-genome sequencing.
Elizabeth T Cirulli, David B Goldstein. Nat Rev Genet 2010
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8
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