Gabrielle Natalie Samuel, Sandi Dheensa, Bobbie Farsides, Angela Fenwick, Anneke Lucassen. BMC Med Ethics 2017
Times Cited: 23
Times Cited: 23
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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
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Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
21
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
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Kym Boycott, Taila Hartley, Shelin Adam, Francois Bernier, Karen Chong, Bridget A Fernandez, Jan M Friedman, Michael T Geraghty, Stacey Hume, Bartha M Knoppers,[...]. J Med Genet 2015
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Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process.
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
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Patricia Birch, S Adam, N Bansback, R R Coe, J Hicklin, A Lehman, K C Li, J M Friedman. J Genet Couns 2016
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A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
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A tiered-layered-staged model for informed consent in personal genome testing.
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Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
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Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.
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Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
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A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study.
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
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Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms.
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An investigation of patients' motivations for their participation in genetics-related research.
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
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Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
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Understanding gendered influences on women's reproductive health in Pakistan: moving beyond the autonomy paradigm.
Zubia Mumtaz, Sarah Salway. Soc Sci Med 2009
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8
Men's experiences of antenatal screening: a metasynthesis of the qualitative research.
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Sandi Dheensa, Alison Metcalfe, Robert Alan Williams. Int J Nurs Stud 2013
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Families, patients, and physicians in medical decisionmaking: a Pakistani perspective.
F Moazam. Hastings Cent Rep 2000
F Moazam. Hastings Cent Rep 2000
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Supporting patient autonomy: the importance of clinician-patient relationships.
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
8
Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study.
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Shenaz Ahmed, Louise D Bryant, Zahra Tizro, Darren Shickle. Soc Sci Med 2012
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Noninvasive prenatal testing goes global.
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
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The Limits of Informed Consent for an Overwhelmed Patient: Clinicians' Role in Protecting Patients and Preventing Overwhelm.
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
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Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies.
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Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
8
"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.
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Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
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Resolution of Disease Phenotypes Resulting from Multilocus Genomic Variation.
Jennifer E Posey, Tamar Harel, Pengfei Liu, Jill A Rosenfeld, Regis A James, Zeynep H Coban Akdemir, Magdalena Walkiewicz, Weimin Bi, Rui Xiao, Yan Ding,[...]. N Engl J Med 2017
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Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
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Michael P Mackley, Benjamin Capps. Br Med Bull 2017
Michael P Mackley, Benjamin Capps. Br Med Bull 2017
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An assessment of time involved in pre-test case review and counseling for a whole genome sequencing clinical research program.
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Janet L Williams, W Andrew Faucett, Bethanny Smith-Packard, Monisa Wagner, Marc S Williams. J Genet Couns 2014
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Expanding access to BRCA1/2 genetic counseling with telephone delivery: a cluster randomized trial.
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8
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Anneke Lucassen, Roy Gilbar. J Med Genet 2018
Anneke Lucassen, Roy Gilbar. J Med Genet 2018
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Reporting practices for unsolicited and secondary findings from next-generation sequencing technologies: Perspectives of laboratory personnel.
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Danya F Vears, Karine Sénécal, Pascal Borry. Hum Mutat 2017
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Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
8
Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland).
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10
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Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
8
Secondary variants--in defense of a more fitting term in the incidental findings debate.
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8
Guidelines for diagnostic next-generation sequencing.
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Gert Matthijs, Erika Souche, Mariëlle Alders, Anniek Corveleyn, Sebastian Eck, Ilse Feenstra, Valérie Race, Erik Sistermans, Marc Sturm, Marjan Weiss,[...]. Eur J Hum Genet 2016
8
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Towards a European consensus for reporting incidental findings during clinical NGS testing.
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8
Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium.
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8
Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.
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8
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