Gabrielle Natalie Samuel, Sandi Dheensa, Bobbie Farsides, Angela Fenwick, Anneke Lucassen. BMC Med Ethics 2017
Times Cited: 33
Times Cited: 33
Times Cited
Times Co-cited
Similarity
Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
21
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
21
Experiences with obtaining informed consent for genomic sequencing.
Barbara A Bernhardt, Myra I Roche, Denise L Perry, Sarah R Scollon, Ashley N Tomlinson, Debra Skinner. Am J Med Genet A 2015
Barbara A Bernhardt, Myra I Roche, Denise L Perry, Sarah R Scollon, Ashley N Tomlinson, Debra Skinner. Am J Med Genet A 2015
21
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
15
Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals.
Sandi Dheensa, Angela Fenwick, Anneke Lucassen. BMJ Open 2017
Sandi Dheensa, Angela Fenwick, Anneke Lucassen. BMJ Open 2017
17
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process.
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
12
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
. Genet Med 2015
12
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
12
The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists.
Kym Boycott, Taila Hartley, Shelin Adam, Francois Bernier, Karen Chong, Bridget A Fernandez, Jan M Friedman, Michael T Geraghty, Stacey Hume, Bartha M Knoppers,[...]. J Med Genet 2015
Kym Boycott, Taila Hartley, Shelin Adam, Francois Bernier, Karen Chong, Bridget A Fernandez, Jan M Friedman, Michael T Geraghty, Stacey Hume, Bartha M Knoppers,[...]. J Med Genet 2015
12
A tiered-layered-staged model for informed consent in personal genome testing.
Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
12
Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
12
Clinical providers' experiences with returning results from genomic sequencing: an interview study.
Julia Wynn, Katie Lewis, Laura M Amendola, Barbara A Bernhardt, Sawona Biswas, Manasi Joshi, Carmit McMullen, Sarah Scollon. BMC Med Genomics 2018
Julia Wynn, Katie Lewis, Laura M Amendola, Barbara A Bernhardt, Sawona Biswas, Manasi Joshi, Carmit McMullen, Sarah Scollon. BMC Med Genomics 2018
12
Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.
Sandi Dheensa, Angela Fenwick, Shiri Shkedi-Rafid, Gillian Crawford, Anneke Lucassen. Genet Med 2016
Sandi Dheensa, Angela Fenwick, Shiri Shkedi-Rafid, Gillian Crawford, Anneke Lucassen. Genet Med 2016
12
"You hoped we would sleep walk into accepting the collection of our data": controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.
Sigrid Sterckx, Vojin Rakic, Julian Cockbain, Pascal Borry. Med Health Care Philos 2016
Sigrid Sterckx, Vojin Rakic, Julian Cockbain, Pascal Borry. Med Health Care Philos 2016
9
The social licence for research: why care.data ran into trouble.
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
9
Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
15
"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
9
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
9
DECIDE: a Decision Support Tool to Facilitate Parents' Choices Regarding Genome-Wide Sequencing.
Patricia Birch, S Adam, N Bansback, R R Coe, J Hicklin, A Lehman, K C Li, J M Friedman. J Genet Couns 2016
Patricia Birch, S Adam, N Bansback, R R Coe, J Hicklin, A Lehman, K C Li, J M Friedman. J Genet Couns 2016
11
A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
9
Known unknowns: building an ethics of uncertainty into genomic medicine.
Ainsley J Newson, Samantha J Leonard, Alison Hall, Clara L Gaff. BMC Med Genomics 2016
Ainsley J Newson, Samantha J Leonard, Alison Hall, Clara L Gaff. BMC Med Genomics 2016
9
Disclosure of genetic information to relatives: balancing confidentiality and relatives' interests.
Anneke Lucassen, Roy Gilbar. J Med Genet 2018
Anneke Lucassen, Roy Gilbar. J Med Genet 2018
42
Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
9
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
9
Defining and managing incidental findings in genetic and genomic practice.
Shiri Shkedi-Rafid, Sandi Dheensa, Gillian Crawford, Angela Fenwick, Anneke Lucassen. J Med Genet 2014
Shiri Shkedi-Rafid, Sandi Dheensa, Gillian Crawford, Angela Fenwick, Anneke Lucassen. J Med Genet 2014
9
Patient-centered informed consent in surgical practice.
James L Bernat, Lynn M Peterson. Arch Surg 2006
James L Bernat, Lynn M Peterson. Arch Surg 2006
9
A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study.
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
37
Genetic counselling in the era of genomic medicine.
Christine Patch, Anna Middleton. Br Med Bull 2018
Christine Patch, Anna Middleton. Br Med Bull 2018
9
A survey of current practices for genomic sequencing test interpretation and reporting processes in US laboratories.
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
9
Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
Edward S Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M Lucassen, Emily Postan. J Med Ethics 2019
Edward S Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M Lucassen, Emily Postan. J Med Ethics 2019
15
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms.
Danya F Vears, Emilia Niemiec, Heidi Carmen Howard, Pascal Borry. Eur J Hum Genet 2018
Danya F Vears, Emilia Niemiec, Heidi Carmen Howard, Pascal Borry. Eur J Hum Genet 2018
9
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?
Edward S Dove, Susan E Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa, Barbara Prainsack. Clin Ethics 2017
Edward S Dove, Susan E Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa, Barbara Prainsack. Clin Ethics 2017
9
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am J Med Genet A 2011
Holly K Tabor, Benjamin E Berkman, Sara Chandros Hull, Michael J Bamshad. Am J Med Genet A 2011
9
'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine.
Sandi Dheensa, Angela Fenwick, Anneke Lucassen. J Med Ethics 2016
Sandi Dheensa, Angela Fenwick, Anneke Lucassen. J Med Ethics 2016
9
An investigation of patients' motivations for their participation in genetics-related research.
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
6
The UK's 100,000 Genomes Project: manifesting policymakers' expectations.
Gabrielle Natalie Samuel, Bobbie Farsides. New Genet Soc 2017
Gabrielle Natalie Samuel, Bobbie Farsides. New Genet Soc 2017
8
Understanding gendered influences on women's reproductive health in Pakistan: moving beyond the autonomy paradigm.
Zubia Mumtaz, Sarah Salway. Soc Sci Med 2009
Zubia Mumtaz, Sarah Salway. Soc Sci Med 2009
6
Men's experiences of antenatal screening: a metasynthesis of the qualitative research.
Sandi Dheensa, Alison Metcalfe, Robert Alan Williams. Int J Nurs Stud 2013
Sandi Dheensa, Alison Metcalfe, Robert Alan Williams. Int J Nurs Stud 2013
6
Families, patients, and physicians in medical decisionmaking: a Pakistani perspective.
F Moazam. Hastings Cent Rep 2000
F Moazam. Hastings Cent Rep 2000
6
Supporting patient autonomy: the importance of clinician-patient relationships.
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
6
Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study.
Shenaz Ahmed, Louise D Bryant, Zahra Tizro, Darren Shickle. Soc Sci Med 2012
Shenaz Ahmed, Louise D Bryant, Zahra Tizro, Darren Shickle. Soc Sci Med 2012
9
Noninvasive prenatal testing goes global.
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
6
The Limits of Informed Consent for an Overwhelmed Patient: Clinicians' Role in Protecting Patients and Preventing Overwhelm.
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
6
Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies.
Nina Hallowell, Sarah Cooke, Gill Crawford, Anneke Lucassen, Michael Parker. Soc Sci Med 2009
Nina Hallowell, Sarah Cooke, Gill Crawford, Anneke Lucassen, Michael Parker. Soc Sci Med 2009
6
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.