Gabrielle Natalie Samuel, Sandi Dheensa, Bobbie Farsides, Angela Fenwick, Anneke Lucassen. BMC Med Ethics 2017
Times Cited: 19
Times Cited: 19
Times Cited
Times Co-cited
Similarity
Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics.
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
Carla G van El, Martina C Cornel, Pascal Borry, Ros J Hastings, Florence Fellmann, Shirley V Hodgson, Heidi C Howard, Anne Cambon-Thomsen, Bartha M Knoppers, Hanne Meijers-Heijboer,[...]. Eur J Hum Genet 2013
31
Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
26
ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
Robert C Green, Jonathan S Berg, Wayne W Grody, Sarah S Kalia, Bruce R Korf, Christa L Martin, Amy L McGuire, Robert L Nussbaum, Julianne M O'Daniel, Kelly E Ormond,[...]. Genet Med 2013
21
"You hoped we would sleep walk into accepting the collection of our data": controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.
Sigrid Sterckx, Vojin Rakic, Julian Cockbain, Pascal Borry. Med Health Care Philos 2016
Sigrid Sterckx, Vojin Rakic, Julian Cockbain, Pascal Borry. Med Health Care Philos 2016
15
The social licence for research: why care.data ran into trouble.
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
Pam Carter, Graeme T Laurie, Mary Dixon-Woods. J Med Ethics 2015
15
Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process.
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
Carmen Ayuso, José M Millán, Marta Mancheño, Rafael Dal-Ré. Eur J Hum Genet 2013
15
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
. Genet Med 2015
15
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
Jonathan S Berg, Muin J Khoury, James P Evans. Genet Med 2011
15
Experiences with obtaining informed consent for genomic sequencing.
Barbara A Bernhardt, Myra I Roche, Denise L Perry, Sarah R Scollon, Ashley N Tomlinson, Debra Skinner. Am J Med Genet A 2015
Barbara A Bernhardt, Myra I Roche, Denise L Perry, Sarah R Scollon, Ashley N Tomlinson, Debra Skinner. Am J Med Genet A 2015
15
The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists.
Kym Boycott, Taila Hartley, Shelin Adam, Francois Bernier, Karen Chong, Bridget A Fernandez, Jan M Friedman, Michael T Geraghty, Stacey Hume, Bartha M Knoppers,[...]. J Med Genet 2015
Kym Boycott, Taila Hartley, Shelin Adam, Francois Bernier, Karen Chong, Bridget A Fernandez, Jan M Friedman, Michael T Geraghty, Stacey Hume, Bartha M Knoppers,[...]. J Med Genet 2015
15
Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
Michael P Mackley, Benjamin Fletcher, Michael Parker, Hugh Watkins, Elizabeth Ormondroyd. Genet Med 2017
15
An investigation of patients' motivations for their participation in genetics-related research.
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
N Hallowell, S Cooke, G Crawford, A Lucassen, M Parker, C Snowdon. J Med Ethics 2010
10
Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
Gabrielle Natalie Samuel, Bobbie Farsides. Public Underst Sci 2018
20
Understanding gendered influences on women's reproductive health in Pakistan: moving beyond the autonomy paradigm.
Zubia Mumtaz, Sarah Salway. Soc Sci Med 2009
Zubia Mumtaz, Sarah Salway. Soc Sci Med 2009
10
Men's experiences of antenatal screening: a metasynthesis of the qualitative research.
Sandi Dheensa, Alison Metcalfe, Robert Alan Williams. Int J Nurs Stud 2013
Sandi Dheensa, Alison Metcalfe, Robert Alan Williams. Int J Nurs Stud 2013
10
Families, patients, and physicians in medical decisionmaking: a Pakistani perspective.
F Moazam. Hastings Cent Rep 2000
F Moazam. Hastings Cent Rep 2000
10
Supporting patient autonomy: the importance of clinician-patient relationships.
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
Vikki A Entwistle, Stacy M Carter, Alan Cribb, Kirsten McCaffery. J Gen Intern Med 2010
10
Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study.
Shenaz Ahmed, Louise D Bryant, Zahra Tizro, Darren Shickle. Soc Sci Med 2012
Shenaz Ahmed, Louise D Bryant, Zahra Tizro, Darren Shickle. Soc Sci Med 2012
10
Noninvasive prenatal testing goes global.
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
Subhashini Chandrasekharan, Mollie A Minear, Anthony Hung, Megan Allyse. Sci Transl Med 2014
10
Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies.
Nina Hallowell, Sarah Cooke, Gill Crawford, Anneke Lucassen, Michael Parker. Soc Sci Med 2009
Nina Hallowell, Sarah Cooke, Gill Crawford, Anneke Lucassen, Michael Parker. Soc Sci Med 2009
10
Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
Anna Middleton, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Caroline F Wright, Michael Parker. Eur J Hum Genet 2016
10
"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
10
Standards and guidelines for the interpretation of sequence variants: a joint consensus recommendation of the American College of Medical Genetics and Genomics and the Association for Molecular Pathology.
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
Sue Richards, Nazneen Aziz, Sherri Bale, David Bick, Soma Das, Julie Gastier-Foster, Wayne W Grody, Madhuri Hegde, Elaine Lyon, Elaine Spector,[...]. Genet Med 2015
10
Expect the unexpected: screening for secondary findings in clinical genomics research.
Michael P Mackley, Benjamin Capps. Br Med Bull 2017
Michael P Mackley, Benjamin Capps. Br Med Bull 2017
22
A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
Robert Resta, Barbara Bowles Biesecker, Robin L Bennett, Sandra Blum, Susan Estabrooks Hahn, Michelle N Strecker, Janet L Williams. J Genet Couns 2006
10
Expanding access to BRCA1/2 genetic counseling with telephone delivery: a cluster randomized trial.
Anita Y Kinney, Karin M Butler, Marc D Schwartz, Jeanne S Mandelblatt, Kenneth M Boucher, Lisa M Pappas, Amanda Gammon, Wendy Kohlmann, Sandra L Edwards, Antoinette M Stroup,[...]. J Natl Cancer Inst 2014
Anita Y Kinney, Karin M Butler, Marc D Schwartz, Jeanne S Mandelblatt, Kenneth M Boucher, Lisa M Pappas, Amanda Gammon, Wendy Kohlmann, Sandra L Edwards, Antoinette M Stroup,[...]. J Natl Cancer Inst 2014
10
Disclosure of genetic information to relatives: balancing confidentiality and relatives' interests.
Anneke Lucassen, Roy Gilbar. J Med Genet 2018
Anneke Lucassen, Roy Gilbar. J Med Genet 2018
50
Reporting practices for unsolicited and secondary findings from next-generation sequencing technologies: Perspectives of laboratory personnel.
Danya F Vears, Karine Sénécal, Pascal Borry. Hum Mutat 2017
Danya F Vears, Karine Sénécal, Pascal Borry. Hum Mutat 2017
10
Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland).
Anna Middleton, Chris Patch, Jennifer Wiggins, Kathy Barnes, Gill Crawford, Caroline Benjamin, Anita Bruce. Eur J Hum Genet 2014
Anna Middleton, Chris Patch, Jennifer Wiggins, Kathy Barnes, Gill Crawford, Caroline Benjamin, Anita Bruce. Eur J Hum Genet 2014
10
Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
Lainie Friedman Ross, Mark A Rothstein, Ellen Wright Clayton. JAMA 2013
10
Secondary variants--in defense of a more fitting term in the incidental findings debate.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
10
Guidelines for diagnostic next-generation sequencing.
Gert Matthijs, Erika Souche, Mariëlle Alders, Anniek Corveleyn, Sebastian Eck, Ilse Feenstra, Valérie Race, Erik Sistermans, Marc Sturm, Marjan Weiss,[...]. Eur J Hum Genet 2016
Gert Matthijs, Erika Souche, Mariëlle Alders, Anniek Corveleyn, Sebastian Eck, Ilse Feenstra, Valérie Race, Erik Sistermans, Marc Sturm, Marjan Weiss,[...]. Eur J Hum Genet 2016
10
Compare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencing.
Elli G Gourna, Natalie Armstrong, Susan E Wallace. Eur J Hum Genet 2016
Elli G Gourna, Natalie Armstrong, Susan E Wallace. Eur J Hum Genet 2016
28
Towards a European consensus for reporting incidental findings during clinical NGS testing.
Jayne Y Hehir-Kwa, Mireille Claustres, Ros J Hastings, Conny van Ravenswaaij-Arts, Gabrielle Christenhusz, Maurizio Genuardi, Béla Melegh, Anne Cambon-Thomsen, Philippos Patsalis, Joris Vermeesch,[...]. Eur J Hum Genet 2015
Jayne Y Hehir-Kwa, Mireille Claustres, Ros J Hastings, Conny van Ravenswaaij-Arts, Gabrielle Christenhusz, Maurizio Genuardi, Béla Melegh, Anne Cambon-Thomsen, Philippos Patsalis, Joris Vermeesch,[...]. Eur J Hum Genet 2015
10
A tiered-layered-staged model for informed consent in personal genome testing.
Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
Eline M Bunnik, A Cecile J W Janssens, Maartje H N Schermer. Eur J Hum Genet 2013
10
Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium.
Jonathan S Berg, Laura M Amendola, Christine Eng, Eliezer Van Allen, Stacy W Gray, Nikhil Wagle, Heidi L Rehm, Elizabeth T DeChene, Matthew C Dulik, Fuki M Hisama,[...]. Genet Med 2013
Jonathan S Berg, Laura M Amendola, Christine Eng, Eliezer Van Allen, Stacy W Gray, Nikhil Wagle, Heidi L Rehm, Elizabeth T DeChene, Matthew C Dulik, Fuki M Hisama,[...]. Genet Med 2013
10
Recommendations for returning genomic incidental findings? We need to talk!
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
Wylie Burke, Armand H Matheny Antommaria, Robin Bennett, Jeffrey Botkin, Ellen Wright Clayton, Gail E Henderson, Ingrid A Holm, Gail P Jarvik, Muin J Khoury, Bartha Maria Knoppers,[...]. Genet Med 2013
10
Reporting genomic secondary findings: ACMG members weigh in.
Maren T Scheuner, Jane Peredo, Judith Benkendorf, Bruce Bowdish, Gerald Feldman, Lynn Fleisher, John J Mulvihill, Michael Watson, Gail E Herman, James Evans. Genet Med 2015
Maren T Scheuner, Jane Peredo, Judith Benkendorf, Bruce Bowdish, Gerald Feldman, Lynn Fleisher, John J Mulvihill, Michael Watson, Gail E Herman, James Evans. Genet Med 2015
10
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).
Christine Weiner. Am J Epidemiol 2014
Christine Weiner. Am J Epidemiol 2014
10
To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
Gabrielle M Christenhusz, Koenraad Devriendt, Kris Dierickx. Eur J Hum Genet 2013
10
Defining and managing incidental findings in genetic and genomic practice.
Shiri Shkedi-Rafid, Sandi Dheensa, Gillian Crawford, Angela Fenwick, Anneke Lucassen. J Med Genet 2014
Shiri Shkedi-Rafid, Sandi Dheensa, Gillian Crawford, Angela Fenwick, Anneke Lucassen. J Med Genet 2014
10
Points to consider for laboratories reporting results from diagnostic genomic sequencing.
D F Vears, K Sénécal, A J Clarke, L Jackson, A M Laberge, L Lovrecic, A Piton, K L I Van Gassen, H G Yntema, B M Knoppers,[...]. Eur J Hum Genet 2018
D F Vears, K Sénécal, A J Clarke, L Jackson, A M Laberge, L Lovrecic, A Piton, K L I Van Gassen, H G Yntema, B M Knoppers,[...]. Eur J Hum Genet 2018
11
A survey of current practices for genomic sequencing test interpretation and reporting processes in US laboratories.
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
Julianne M O'Daniel, Heather M McLaughlin, Laura M Amendola, Sherri J Bale, Jonathan S Berg, David Bick, Kevin M Bowling, Elizabeth C Chao, Wendy K Chung, Laura K Conlin,[...]. Genet Med 2017
10
How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis.
D F Vears, E Niemiec, H C Howard, P Borry. Clin Genet 2018
D F Vears, E Niemiec, H C Howard, P Borry. Clin Genet 2018
25
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms.
Danya F Vears, Emilia Niemiec, Heidi Carmen Howard, Pascal Borry. Eur J Hum Genet 2018
Danya F Vears, Emilia Niemiec, Heidi Carmen Howard, Pascal Borry. Eur J Hum Genet 2018
10
Communicating genetic information in families--a review of guidelines and position papers.
Laura E Forrest, Martin B Delatycki, Loane Skene, MaryAnne Aitken. Eur J Hum Genet 2007
Laura E Forrest, Martin B Delatycki, Loane Skene, MaryAnne Aitken. Eur J Hum Genet 2007
10
Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.
Sandi Dheensa, Angela Fenwick, Shiri Shkedi-Rafid, Gillian Crawford, Anneke Lucassen. Genet Med 2016
Sandi Dheensa, Angela Fenwick, Shiri Shkedi-Rafid, Gillian Crawford, Anneke Lucassen. Genet Med 2016
10
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.