Thomas Ploug, Søren Holm. BMC Med Ethics 2017
Times Cited: 8
Times Cited: 8
Times Cited
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Dynamic consent: a patient interface for twenty-first century research networks.
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham. Eur J Hum Genet 2015
50
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
Kristin Solum Steinsbekk, Bjørn Kåre Myskja, Berge Solberg. Eur J Hum Genet 2013
50
Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data.
Thomas Ploug, Søren Holm. Bioethics 2016
Thomas Ploug, Søren Holm. Bioethics 2016
50
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
37
Informed consent within a learning health system: A scoping review.
Annabelle Cumyn, Adrien Barton, Roxanne Dault, Anne-Marie Cloutier, Rosalie Jalbert, Jean-François Ethier. Learn Health Syst 2019
Annabelle Cumyn, Adrien Barton, Roxanne Dault, Anne-Marie Cloutier, Rosalie Jalbert, Jean-François Ethier. Learn Health Syst 2019
42
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
25
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
Natalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, Nicole L Allen, Victor M Castro, Megan Morash, P Pearl O'Rourke, Elizabeth L Hohmann, Neil Herring, Lynn Bry,[...]. J Pers Med 2016
25
Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research.
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
Hawys Williams, Karen Spencer, Caroline Sanders, David Lund, Edgar A Whitley, Jane Kaye, William G Dixon. JMIR Med Inform 2015
25
Dynamic Consent: An Evaluation and Reporting Framework.
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
Megan Prictor, Megan A Lewis, Ainsley J Newson, Matilda Haas, Sachiko Baba, Hannah Kim, Minori Kokado, Jusaku Minari, Fruzsina Molnár-Gábor, Beverley Yamamoto,[...]. J Empir Res Hum Res Ethics 2020
25
Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.
Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Emily Rosenthal, Steven Joffe, Mildred K Cho, Benjamin Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2015
Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Emily Rosenthal, Steven Joffe, Mildred K Cho, Benjamin Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2015
25
Patient and Physician Views about Protocolized Dialysis Treatment in Randomized Trials and Clinical Care.
Ashley Kraybill, Laura M Dember, Steven Joffe, Jason Karlawish, Susan S Ellenberg, Vanessa Madden, Scott D Halpern. AJOB Empir Bioeth 2016
Ashley Kraybill, Laura M Dember, Steven Joffe, Jason Karlawish, Susan S Ellenberg, Vanessa Madden, Scott D Halpern. AJOB Empir Bioeth 2016
25
23andMe: a new two-sided data-banking market model.
Henri-Corto Stoeklé, Marie-France Mamzer-Bruneel, Guillaume Vogt, Christian Hervé. BMC Med Ethics 2016
Henri-Corto Stoeklé, Marie-France Mamzer-Bruneel, Guillaume Vogt, Christian Hervé. BMC Med Ethics 2016
12
[Toward dynamic informed consent].
Henri-Corto Stoeklé, Jean-François Deleuze, Guillaume Vogt, Christian Hervé. Med Sci (Paris) 2017
Henri-Corto Stoeklé, Jean-François Deleuze, Guillaume Vogt, Christian Hervé. Med Sci (Paris) 2017
16
Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
Elizabeth W Karlson, Natalie T Boutin, Alison G Hoffnagle, Nicole L Allen. J Pers Med 2016
12
Molecular Tumor Boards: Ethical Issues in the New Era of Data Medicine.
Henri-Corto Stoeklé, Marie-France Mamzer-Bruneel, Charles-Henry Frouart, Christophe Le Tourneau, Pierre Laurent-Puig, Guillaume Vogt, Christian Hervé. Sci Eng Ethics 2018
Henri-Corto Stoeklé, Marie-France Mamzer-Bruneel, Charles-Henry Frouart, Christophe Le Tourneau, Pierre Laurent-Puig, Guillaume Vogt, Christian Hervé. Sci Eng Ethics 2018
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[The Jardé law, a real simplification of research in France?]
C Levy, A Rybak, R Cohen, C Jung. Arch Pediatr 2017
C Levy, A Rybak, R Cohen, C Jung. Arch Pediatr 2017
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[Genetic data sharing: a new type of capital].
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Henri-Corto Stoeklé, Ninon Forster, Philippe Charlier, Oudy C Bloch, Christian Hervé, Mauro Turrini, Guillaume Vogt. Med Sci (Paris) 2018
16
Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective.
Béatrice Godard, Jörg Schmidtke, Jean-Jacques Cassiman, Ségolène Aymé. Eur J Hum Genet 2003
Béatrice Godard, Jörg Schmidtke, Jean-Jacques Cassiman, Ségolène Aymé. Eur J Hum Genet 2003
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The biobank consent debate: Why 'meta-consent' is not the solution?
Neil C Manson. J Med Ethics 2019
Neil C Manson. J Med Ethics 2019
12
Going Beyond the False Dichotomy of Broad or Specific Consent: A Meta-Perspective on Participant Choice in Research Using Human Tissue.
Thomas Ploug, Søren Holm. Am J Bioeth 2015
Thomas Ploug, Søren Holm. Am J Bioeth 2015
12
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research.
Thomas Ploug, Søren Holm. BMJ 2015
Thomas Ploug, Søren Holm. BMJ 2015
12
Should donors be allowed to give broad consent to future biobank research?
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
Mats G Hansson, Joakim Dillner, Claus R Bartram, Joyce A Carlson, Gert Helgesson. Lancet Oncol 2006
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Adopting clinical genomics: a systematic review of genomic literacy among physicians in cancer care.
Vu T Dung Ha, Julie Frizzo-Barker, Peter Chow-White. BMC Med Genomics 2018
Vu T Dung Ha, Julie Frizzo-Barker, Peter Chow-White. BMC Med Genomics 2018
12
ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure.
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Managing incidental findings in human subjects research: analysis and recommendations.
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Susan M Wolf, Frances P Lawrenz, Charles A Nelson, Jeffrey P Kahn, Mildred K Cho, Ellen Wright Clayton, Joel G Fletcher, Michael K Georgieff, Dale Hammerschmidt, Kathy Hudson,[...]. J Law Med Ethics 2008
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American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.
. J Clin Oncol 2003
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Glad you asked: participants' opinions of re-consent for dbGap data submission.
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
Evette J Ludman, Stephanie M Fullerton, Leslie Spangler, Susan Brown Trinidad, Monica M Fujii, Gail P Jarvik, Eric B Larson, Wylie Burke. J Empir Res Hum Res Ethics 2010
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Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
Sarah S Kalia, Kathy Adelman, Sherri J Bale, Wendy K Chung, Christine Eng, James P Evans, Gail E Herman, Sophia B Hufnagel, Teri E Klein, Bruce R Korf,[...]. Genet Med 2017
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From patients to partners: participant-centric initiatives in biomedical research.
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd,[...]. Nat Rev Genet 2012
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International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.
Ma'n H Zawati, Bartha Maria Knoppers. Genet Med 2012
Ma'n H Zawati, Bartha Maria Knoppers. Genet Med 2012
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Identifying personal genomes by surname inference.
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
Melissa Gymrek, Amy L McGuire, David Golan, Eran Halperin, Yaniv Erlich. Science 2013
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Precision medicine: the foundation of future cancer therapeutics.
Seung Ho Shin, Ann M Bode, Zigang Dong. NPJ Precis Oncol 2017
Seung Ho Shin, Ann M Bode, Zigang Dong. NPJ Precis Oncol 2017
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Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
Edward S Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M Lucassen, Emily Postan. J Med Ethics 2019
Edward S Dove, Vicky Chico, Michael Fay, Graeme Laurie, Anneke M Lucassen, Emily Postan. J Med Ethics 2019
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Secondary findings from whole-exome/genome sequencing evaluating stakeholder perspectives. A review of the literature.
J Delanne, S Nambot, A Chassagne, O Putois, A Pelissier, C Peyron, E Gautier, J Thevenon, E Cretin, A L Bruel,[...]. Eur J Med Genet 2019
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Can I access my personal genome? The current legal position in the UK.
Jane Kaye, Nadja Kanellopoulou, Naomi Hawkins, Heather Gowans, Liam Curren, Karen Melham. Med Law Rev 2014
Jane Kaye, Nadja Kanellopoulou, Naomi Hawkins, Heather Gowans, Liam Curren, Karen Melham. Med Law Rev 2014
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Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics.
Daniele Carrieri, Heidi C Howard, Caroline Benjamin, Angus J Clarke, Sandi Dheensa, Shane Doheny, Naomi Hawkins, Tanya F Halbersma-Konings, Leigh Jackson, Hülya Kayserili,[...]. Eur J Hum Genet 2019
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Patient-centric trials for therapeutic development in precision oncology.
Andrew V Biankin, Steven Piantadosi, Simon J Hollingsworth. Nature 2015
Andrew V Biankin, Steven Piantadosi, Simon J Hollingsworth. Nature 2015
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Return of individual genomic research results: are laws and policies keeping step?
Adrian Thorogood, Gratien Dalpé, Bartha Maria Knoppers. Eur J Hum Genet 2019
Adrian Thorogood, Gratien Dalpé, Bartha Maria Knoppers. Eur J Hum Genet 2019
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Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
Alma Husedzinovic, Dominik Ose, Christoph Schickhardt, Stefan Fröhling, Eva C Winkler. Eur J Hum Genet 2015
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Attitudes of patients with cancer about personalized medicine and somatic genetic testing.
Stacy W Gray, Katherine Hicks-Courant, Christopher S Lathan, Levi Garraway, Elyse R Park, Jane C Weeks. J Oncol Pract 2012
Stacy W Gray, Katherine Hicks-Courant, Christopher S Lathan, Levi Garraway, Elyse R Park, Jane C Weeks. J Oncol Pract 2012
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Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis.
Christoph Schickhardt, Henrike Fleischer, Eva C Winkler. BMC Med Ethics 2020
Christoph Schickhardt, Henrike Fleischer, Eva C Winkler. BMC Med Ethics 2020
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Framework for responsible sharing of genomic and health-related data.
Bartha Maria Knoppers. Hugo J 2014
Bartha Maria Knoppers. Hugo J 2014
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The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results.
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Potential research participants support the return of raw sequence data.
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Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker. J Med Genet 2015
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Personal privacy, public benefits, and biobanks: a conjoint analysis of policy priorities and public perceptions.
Daryl Pullman, Holly Etchegary, Katherine Gallagher, Kathleen Hodgkinson, Montgomery Keough, David Morgan, Catherine Street. Genet Med 2012
Daryl Pullman, Holly Etchegary, Katherine Gallagher, Kathleen Hodgkinson, Montgomery Keough, David Morgan, Catherine Street. Genet Med 2012
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Bench-to-Bedside; Clinical and Translational Research; Personalized Medicine; Precision Medicine-What's in a Name?
Arthur M Feldman. Clin Transl Sci 2015
Arthur M Feldman. Clin Transl Sci 2015
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So rare we need to hunt for them: reframing the ethical debate on incidental findings.
Sebastian Schuol, Christoph Schickhardt, Stefan Wiemann, Claus R Bartram, Klaus Tanner, Roland Eils, Benjamin Meder, Daniela Richter, Hanno Glimm, Christof von Kalle,[...]. Genome Med 2015
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