Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
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Times Cited: 10
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Interactive multimedia consent for biobanking: a randomized trial.
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
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Interventions to improve research participants' understanding in informed consent for research: a systematic review.
James Flory, Ezekiel Emanuel. JAMA 2004
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"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.
Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
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Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
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Readability standards for informed-consent forms as compared with actual readability.
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Perspectives on Electronic Informed Consent From Patients Underrepresented in Research in the United States: A Focus Group Study.
Christian M Simon, Helen A Schartz, Gary E Rosenthal, Eric L Eisenstein, David W Klein. J Empir Res Hum Res Ethics 2018
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Participants' Understanding of Informed Consent for Biobanking: A Systematic Review.
Elizabeth R Eisenhauer, Alan R Tait, Soo Young Rieh, Cynthia M Arslanian-Engoren. Clin Nurs Res 2019
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Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
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Informed consent for biobanking: consensus-based guidelines for adequate comprehension.
Laura M Beskow, Carrie B Dombeck, Cole P Thompson, J Kemp Watson-Ormond, Kevin P Weinfurt. Genet Med 2015
Laura M Beskow, Carrie B Dombeck, Cole P Thompson, J Kemp Watson-Ormond, Kevin P Weinfurt. Genet Med 2015
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Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention.
Laura M Beskow, Li Lin, Carrie B Dombeck, Emily Gao, Kevin P Weinfurt. Genet Med 2017
Laura M Beskow, Li Lin, Carrie B Dombeck, Emily Gao, Kevin P Weinfurt. Genet Med 2017
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Exploring Understanding of "Understanding": The Paradigm Case of Biobank Consent Comprehension.
Laura M Beskow, Kevin P Weinfurt. Am J Bioeth 2019
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Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding.
T J Kasperbauer, Karen K Schmidt, Ariane Thomas, Susan M Perkins, Peter H Schwartz. AJOB Empir Bioeth 2021
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Research consent forms: continued unreadability and increasing length.
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Seeking Ways to Inform the Uninformed: Improving the Informed Consent Process in Online Social Science Research.
Evan K Perrault, David M Keating. J Empir Res Hum Res Ethics 2018
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The Deaconess Informed Consent Comprehension Test: an assessment tool for clinical research subjects.
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Evidence-Based Strategies for Shortening Informed Consent Forms in Clinical Research.
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Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing.
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A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.
Ellen W Clayton, Colin M Halverson, Nila A Sathe, Bradley A Malin. PLoS One 2018
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Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear.
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Development of the Precision Link Biobank at Boston Children's Hospital: Challenges and Opportunities.
Florence T Bourgeois, Paul Avillach, Sek Won Kong, Michelle M Heinz, Tram A Tran, Ramkrishna Chakrabarty, Jonathan Bickel, Piotr Sliz, Erin M Borglund, Susan Kornetsky,[...]. J Pers Med 2017
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The "All of Us" Research Program.
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
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Informed Consent Requires Understanding: Complete Disclosure Is Not Enough.
Thaddeus Mason Pope. Am J Bioeth 2019
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Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research.
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Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
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Challenges in creating an opt-in biobank with a registrar-based consent process and a commercial EHR.
Keith Marsolo, Jeremy Corsmo, Michael G Barnes, Carrie Pollick, Jamie Chalfin, Jeremy Nix, Christopher Smith, Rajesh Ganta. J Am Med Inform Assoc 2012
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The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.
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Principles of human subjects protections applied in an opt-out, de-identified biobank.
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Moving From Understanding of Consent Conditions to Heuristics of Trust.
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Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.
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Measuring Understanding and Respecting Trust in Biobank Consent.
T J Kasperbauer, Peter H Schwartz. Am J Bioeth 2019
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Biobanks and the Moral Concerns of Donors: A Democratic Deliberation.
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A review of the key issues associated with the commercialization of biobanks.
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Encouraging Participation And Transparency In Biobank Research.
Kayte Spector-Bagdady, Raymond G De Vries, Michele G Gornick, Andrew G Shuman, Sharon Kardia, Jodyn Platt. Health Aff (Millwood) 2018
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Saturation in qualitative research: exploring its conceptualization and operationalization.
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Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance.
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