Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
Times Cited: 36
Times Cited: 36
Times Cited
Times Co-cited
Similarity
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
Stephanie A Kraft, Mildred K Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E Ormond, Harold S Luft, Benjamin S Wilfond, Sandra Soo-Jin Lee. Am J Bioeth 2018
36
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
16
Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly,[...]. Am J Hum Genet 2017
16
Increasing participation in genomic research and biobanking through community-based capacity building.
Elizabeth Gross Cohn, Maryam Husamudeen, Elaine L Larson, Janet K Williams. J Genet Couns 2015
Elizabeth Gross Cohn, Maryam Husamudeen, Elaine L Larson, Janet K Williams. J Genet Couns 2015
21
The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
13
Patient perspectives on group benefits and harms in genetic research.
A J Goldenberg, S C Hull, B S Wilfond, R R Sharp. Public Health Genomics 2011
A J Goldenberg, S C Hull, B S Wilfond, R R Sharp. Public Health Genomics 2011
17
Public and biobank participant attitudes toward genetic research participation and data sharing.
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
A A Lemke, W A Wolf, J Hebert-Beirne, M E Smith. Public Health Genomics 2010
11
More than Tuskegee: understanding mistrust about research participation.
Darcell P Scharff, Katherine J Mathews, Pamela Jackson, Jonathan Hoffsuemmer, Emeobong Martin, Dorothy Edwards. J Health Care Poor Underserved 2010
Darcell P Scharff, Katherine J Mathews, Pamela Jackson, Jonathan Hoffsuemmer, Emeobong Martin, Dorothy Edwards. J Health Care Poor Underserved 2010
11
Broad Consent for Research With Biological Samples: Workshop Conclusions.
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M Fullerton, Hank Greely, Mats G Hansson, Sara Hull, Scott Kim,[...]. Am J Bioeth 2015
11
Biobanks and the Moral Concerns of Donors: A Democratic Deliberation.
Raymond G De Vries, Kerry A Ryan, Linda Gordon, Chris D Krenz, Tom Tomlinson, Scott Jewell, Scott Y H Kim. Qual Health Res 2019
Raymond G De Vries, Kerry A Ryan, Linda Gordon, Chris D Krenz, Tom Tomlinson, Scott Jewell, Scott Y H Kim. Qual Health Res 2019
57
Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual.
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
40
Public opinion about the importance of privacy in biobank research.
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
David J Kaufman, Juli Murphy-Bollinger, Joan Scott, Kathy L Hudson. Am J Hum Genet 2009
11
If We Would Only Ask: How Henrietta Lacks Continues to Teach Us About Perceptions of Research and Genetic Research Among African Americans Today.
Bridgette L Jones, Carrie A Vyhlidal, Andrea Bradley-Ewing, Ashley Sherman, Kathy Goggin. J Racial Ethn Health Disparities 2017
Bridgette L Jones, Carrie A Vyhlidal, Andrea Bradley-Ewing, Ashley Sherman, Kathy Goggin. J Racial Ethn Health Disparities 2017
16
African American women's perceptions and attitudes regarding participation in medical research: the Mayo Clinic/The Links, Incorporated partnership.
LaPrincess C Brewer, Sharonne N Hayes, Monica W Parker, Joyce E Balls-Berry, Michele Y Halyard, Vivian W Pinn, Carmen Radecki Breitkopf. J Womens Health (Larchmt) 2014
LaPrincess C Brewer, Sharonne N Hayes, Monica W Parker, Joyce E Balls-Berry, Michele Y Halyard, Vivian W Pinn, Carmen Radecki Breitkopf. J Womens Health (Larchmt) 2014
11
Conducting Precision Medicine Research with African Americans.
Chanita Hughes Halbert, Jasmine McDonald, Susan Vadaparampil, LaShanta Rice, Melanie Jefferson. PLoS One 2016
Chanita Hughes Halbert, Jasmine McDonald, Susan Vadaparampil, LaShanta Rice, Melanie Jefferson. PLoS One 2016
11
African Americans and Clinical Research: Evidence Concerning Barriers and Facilitators to Participation and Recruitment Recommendations.
Travonia B Hughes, Vijay R Varma, Corinne Pettigrew, Marilyn S Albert. Gerontologist 2017
Travonia B Hughes, Vijay R Varma, Corinne Pettigrew, Marilyn S Albert. Gerontologist 2017
8
Precision Public Health for the Era of Precision Medicine.
Muin J Khoury, Michael F Iademarco, William T Riley. Am J Prev Med 2016
Muin J Khoury, Michael F Iademarco, William T Riley. Am J Prev Med 2016
8
8
A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.
Sheba George, Nelida Duran, Keith Norris. Am J Public Health 2014
Sheba George, Nelida Duran, Keith Norris. Am J Public Health 2014
8
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
Isabelle Budin-Ljøsne, Harriet J A Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D'Abramo, Heike Felzmann, Teresa Finlay,[...]. BMC Med Ethics 2017
8
The Missing Diversity in Human Genetic Studies.
Giorgio Sirugo, Scott M Williams, Sarah A Tishkoff. Cell 2019
Giorgio Sirugo, Scott M Williams, Sarah A Tishkoff. Cell 2019
8
The Symbolic Value and Limitations of Racial Concordance in Minority Research Engagement.
Craig S Fryer, Susan R Passmore, Raymond C Maietta, Jeff Petruzzelli, Erica Casper, Natasha A Brown, James Butler, Mary A Garza, Stephen B Thomas, Sandra C Quinn. Qual Health Res 2016
Craig S Fryer, Susan R Passmore, Raymond C Maietta, Jeff Petruzzelli, Erica Casper, Natasha A Brown, James Butler, Mary A Garza, Stephen B Thomas, Sandra C Quinn. Qual Health Res 2016
8
The "All of Us" Research Program.
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
Joshua C Denny, Joni L Rutter, David B Goldstein, Anthony Philippakis, Jordan W Smoller, Gwynne Jenkins, Eric Dishman. N Engl J Med 2019
8
Lack Of Diversity In Genomic Databases Is A Barrier To Translating Precision Medicine Research Into Practice.
Latrice G Landry, Nadya Ali, David R Williams, Heidi L Rehm, Vence L Bonham. Health Aff (Millwood) 2018
Latrice G Landry, Nadya Ali, David R Williams, Heidi L Rehm, Vence L Bonham. Health Aff (Millwood) 2018
8
Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review.
Jan Domaradzki, Jakub Pawlikowski. Int J Environ Res Public Health 2019
Jan Domaradzki, Jakub Pawlikowski. Int J Environ Res Public Health 2019
12
Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing.
Michelle M Mello, Van Lieou, Steven N Goodman. N Engl J Med 2018
Michelle M Mello, Van Lieou, Steven N Goodman. N Engl J Med 2018
8
Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research.
Jihoon Kim, Hyeoneui Kim, Elizabeth Bell, Tyler Bath, Paulina Paul, Anh Pham, Xiaoqian Jiang, Kai Zheng, Lucila Ohno-Machado. JAMA Netw Open 2019
Jihoon Kim, Hyeoneui Kim, Elizabeth Bell, Tyler Bath, Paulina Paul, Anh Pham, Xiaoqian Jiang, Kai Zheng, Lucila Ohno-Machado. JAMA Netw Open 2019
12
Interactive multimedia consent for biobanking: a randomized trial.
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
Christian M Simon, David W Klein, Helen A Schartz. Genet Med 2016
10
Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.
Teddy D Warner, Carol J Weil, Christopher Andry, Howard B Degenholtz, Lisa Parker, Latarsha J Carithers, Michelle Feige, David Wendler, Rebecca D Pentz. J Empir Res Hum Res Ethics 2018
Teddy D Warner, Carol J Weil, Christopher Andry, Howard B Degenholtz, Lisa Parker, Latarsha J Carithers, Michelle Feige, David Wendler, Rebecca D Pentz. J Empir Res Hum Res Ethics 2018
13
Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.
Nanibaa' A Garrison. Sci Technol Human Values 2013
Nanibaa' A Garrison. Sci Technol Human Values 2013
8
Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding.
T J Kasperbauer, Karen K Schmidt, Ariane Thomas, Susan M Perkins, Peter H Schwartz. AJOB Empir Bioeth 2021
T J Kasperbauer, Karen K Schmidt, Ariane Thomas, Susan M Perkins, Peter H Schwartz. AJOB Empir Bioeth 2021
60
Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.
Sandra Soo-Jin Lee. Am J Bioeth 2021
Sandra Soo-Jin Lee. Am J Bioeth 2021
16
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
17
A Research Agenda for Communication Scholars in the Precision Medicine Era.
Courtney L Scherr, Marleah Dean, Margaret F Clayton, Bradford W Hesse, Kami Silk, Richard L Street, Janice Krieger. J Health Commun 2017
Courtney L Scherr, Marleah Dean, Margaret F Clayton, Bradford W Hesse, Kami Silk, Richard L Street, Janice Krieger. J Health Commun 2017
20
Community-based partnership to identify keys to biospecimen research participation.
Deborah O Erwin, Kirsten Moysich, Marc T Kiviniemi, Frances G Saad-Harfouche, Warren Davis, Nikia Clark-Hargrave, Gregory L Ciupak, Christine B Ambrosone, Charles Walker. J Cancer Educ 2013
Deborah O Erwin, Kirsten Moysich, Marc T Kiviniemi, Frances G Saad-Harfouche, Warren Davis, Nikia Clark-Hargrave, Gregory L Ciupak, Christine B Ambrosone, Charles Walker. J Cancer Educ 2013
7
Engaging African-Americans about biobanks and the return of research results.
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
Colin Me Halverson, Lainie Friedman Ross. J Community Genet 2012
5
"It takes a village": multilevel approaches to recruit African Americans and their families for genetic research.
Heather M Ochs-Balcom, Lina Jandorf, Youjin Wang, Detric Johnson, Veronica Meadows Ray, Mattye J Willis, Deborah O Erwin. J Community Genet 2015
Heather M Ochs-Balcom, Lina Jandorf, Youjin Wang, Detric Johnson, Veronica Meadows Ray, Mattye J Willis, Deborah O Erwin. J Community Genet 2015
10
Beliefs and Preferences for Medical Research Among African-Americans.
Gloria E Cain, Nnenna Kalu, John Kwagyan, Vanessa J Marshall, Altovise T Ewing, Walter P Bland, Victor Hesselbrock, Robert E Taylor, Denise M Scott. J Racial Ethn Health Disparities 2016
Gloria E Cain, Nnenna Kalu, John Kwagyan, Vanessa J Marshall, Altovise T Ewing, Walter P Bland, Victor Hesselbrock, Robert E Taylor, Denise M Scott. J Racial Ethn Health Disparities 2016
18
Intentions to donate to a biobank in a national sample of African Americans.
Jasmine A McDonald, Susan Vadaparampil, Deborah Bowen, Gayenell Magwood, Jihad S Obeid, Melanie Jefferson, Richard Drake, Mulugeta Gebregziabher, Chanita Hughes Halbert. Public Health Genomics 2014
Jasmine A McDonald, Susan Vadaparampil, Deborah Bowen, Gayenell Magwood, Jihad S Obeid, Melanie Jefferson, Richard Drake, Mulugeta Gebregziabher, Chanita Hughes Halbert. Public Health Genomics 2014
6
Barriers to Clinical Research Participation Among African Americans.
Rebecca Luebbert, Amelia Perez. J Transcult Nurs 2016
Rebecca Luebbert, Amelia Perez. J Transcult Nurs 2016
5
Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine.
Timothy Dye, Dongmei Li, Margaret Demment, Susan Groth, Diana Fernandez, Ann Dozier, Jack Chang. J Am Med Inform Assoc 2016
Timothy Dye, Dongmei Li, Margaret Demment, Susan Groth, Diana Fernandez, Ann Dozier, Jack Chang. J Am Med Inform Assoc 2016
10
Under the shadow of Tuskegee: African Americans and health care.
V N Gamble. Am J Public Health 1997
V N Gamble. Am J Public Health 1997
5
Understanding participation by African Americans in cancer genetics research.
Jasmine A McDonald, Frances K Barg, Benita Weathers, Carmen E Guerra, Andrea B Troxel, Susan Domchek, Deborah Bowen, Judy A Shea, Chanita Hughes Halbert. J Natl Med Assoc 2012
Jasmine A McDonald, Frances K Barg, Benita Weathers, Carmen E Guerra, Andrea B Troxel, Susan Domchek, Deborah Bowen, Judy A Shea, Chanita Hughes Halbert. J Natl Med Assoc 2012
7
Are racial and ethnic minorities less willing to participate in health research?
David Wendler, Raynard Kington, Jennifer Madans, Gretchen Van Wye, Heidi Christ-Schmidt, Laura A Pratt, Otis W Brawley, Cary P Gross, Ezekiel Emanuel. PLoS Med 2006
David Wendler, Raynard Kington, Jennifer Madans, Gretchen Van Wye, Heidi Christ-Schmidt, Laura A Pratt, Otis W Brawley, Cary P Gross, Ezekiel Emanuel. PLoS Med 2006
5
Community leaders' perspectives on engaging African Americans in biobanks and other human genetics initiatives.
Aaron G Buseh, Patricia E Stevens, Sandra Millon-Underwood, Leolia Townsend, Sheryl T Kelber. J Community Genet 2013
Aaron G Buseh, Patricia E Stevens, Sandra Millon-Underwood, Leolia Townsend, Sheryl T Kelber. J Community Genet 2013
8
The Tuskegee Study of Untreated Syphilis and public perceptions of biomedical research: a focus group study.
Benjamin R Bates, Tina M Harris. J Natl Med Assoc 2004
Benjamin R Bates, Tina M Harris. J Natl Med Assoc 2004
5
Barriers and Strategies to Participation in Tissue Research Among African-American Men.
Bettina F Drake, Danielle Boyd, Kimberly Carter, Sarah Gehlert, Vetta Sanders Thompson. J Cancer Educ 2017
Bettina F Drake, Danielle Boyd, Kimberly Carter, Sarah Gehlert, Vetta Sanders Thompson. J Cancer Educ 2017
18
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.