Jihoon Kim, Hyeoneui Kim, Elizabeth Bell, Tyler Bath, Paulina Paul, Anh Pham, Xiaoqian Jiang, Kai Zheng, Lucila Ohno-Machado. JAMA Netw Open 2019
Times Cited: 28
Times Cited: 28
Times Cited
Times Co-cited
Similarity
Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing.
Michelle M Mello, Van Lieou, Steven N Goodman. N Engl J Med 2018
Michelle M Mello, Van Lieou, Steven N Goodman. N Engl J Med 2018
14
Comparison of consumers' views on electronic data sharing for healthcare and research.
Katherine K Kim, Jill G Joseph, Lucila Ohno-Machado. J Am Med Inform Assoc 2015
Katherine K Kim, Jill G Joseph, Lucila Ohno-Machado. J Am Med Inform Assoc 2015
14
Patients want granular privacy control over health information in electronic medical records.
Kelly Caine, Rima Hanania. J Am Med Inform Assoc 2013
Kelly Caine, Rima Hanania. J Am Med Inform Assoc 2013
14
Factors affecting willingness to share electronic health data among California consumers.
Katherine K Kim, Pamela Sankar, Machelle D Wilson, Sarah C Haynes. BMC Med Ethics 2017
Katherine K Kim, Pamela Sankar, Machelle D Wilson, Sarah C Haynes. BMC Med Ethics 2017
14
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
Karen Spencer, Caroline Sanders, Edgar A Whitley, David Lund, Jane Kaye, William Gregory Dixon. J Med Internet Res 2016
14
Sharing medical data for health research: the early personal health record experience.
Elissa R Weitzman, Liljana Kaci, Kenneth D Mandl. J Med Internet Res 2010
Elissa R Weitzman, Liljana Kaci, Kenneth D Mandl. J Med Internet Res 2010
14
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
Nanibaa' A Garrison, Nila A Sathe, Armand H Matheny Antommaria, Ingrid A Holm, Saskia C Sanderson, Maureen E Smith, Melissa L McPheeters, Ellen W Clayton. Genet Med 2016
14
Patients, privacy and trust: patients' willingness to allow researchers to access their medical records.
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
Laura J Damschroder, Joy L Pritts, Michael A Neblo, Rosemarie J Kalarickal, John W Creswell, Rodney A Hayward. Soc Sci Med 2007
14
The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research.
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
Christine Critchley, Dianne Nicol, Margaret Otlowski. Public Health Genomics 2015
10
"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.
Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
Sandra S-J Lee, Mildred K Cho, Stephanie A Kraft, Nina Varsava, Katie Gillespie, Kelly E Ormond, Benjamin S Wilfond, David Magnus. Genet Med 2019
10
Research Use of Electronic Health Records: Patients' Views on Alternative Approaches to Permission.
Catherine M Hammack-Aviran, Kathleen M Brelsford, Kevin C McKenna, Ross D Graham, Zachary M Lampron, Laura M Beskow. AJOB Empir Bioeth 2020
Catherine M Hammack-Aviran, Kathleen M Brelsford, Kevin C McKenna, Ross D Graham, Zachary M Lampron, Laura M Beskow. AJOB Empir Bioeth 2020
60
Sharing my health data: a survey of data sharing preferences of healthy individuals.
Elizabeth A Bell, Lucila Ohno-Machado, M Adela Grando. AMIA Annu Symp Proc 2014
Elizabeth A Bell, Lucila Ohno-Machado, M Adela Grando. AMIA Annu Symp Proc 2014
12
Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue.
Donald J Willison, Marilyn Swinton, Lisa Schwartz, Julia Abelson, Cathy Charles, David Northrup, Ji Cheng, Lehana Thabane. BMC Med Ethics 2008
Donald J Willison, Marilyn Swinton, Lisa Schwartz, Julia Abelson, Cathy Charles, David Northrup, Ji Cheng, Lehana Thabane. BMC Med Ethics 2008
7
Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.
M R Robling, K Hood, H Houston, R Pill, J Fay, H M Evans. J Med Ethics 2004
M R Robling, K Hood, H Houston, R Pill, J Fay, H M Evans. J Med Ethics 2004
7
Public preferences about secondary uses of electronic health information.
David Grande, Nandita Mitra, Anand Shah, Fei Wan, David A Asch. JAMA Intern Med 2013
David Grande, Nandita Mitra, Anand Shah, Fei Wan, David A Asch. JAMA Intern Med 2013
7
Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies.
James W Hazel, Christopher Slobogin. Cornell J Law Public Policy 2018
James W Hazel, Christopher Slobogin. Cornell J Law Public Policy 2018
10
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.
Richard Milne, Katherine I Morley, Heidi Howard, Emilia Niemiec, Dianne Nicol, Christine Critchley, Barbara Prainsack, Danya Vears, James Smith, Claire Steed,[...]. Hum Genet 2019
Richard Milne, Katherine I Morley, Heidi Howard, Emilia Niemiec, Dianne Nicol, Christine Critchley, Barbara Prainsack, Danya Vears, James Smith, Claire Steed,[...]. Hum Genet 2019
7
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.
Anna Middleton, Emilia Niemiec, Barbara Prainsack, Jason Bobe, Lauren Farley, Claire Steed, James Smith, Paul Bevan, Natasha Bonhomme, Erika Kleiderman,[...]. Per Med 2018
Anna Middleton, Emilia Niemiec, Barbara Prainsack, Jason Bobe, Lauren Farley, Claire Steed, James Smith, Paul Bevan, Natasha Bonhomme, Erika Kleiderman,[...]. Per Med 2018
11
33
Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual.
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
Sarah B Garrett, Marie Murphy, James Wiley, Daniel Dohan. J Empir Res Hum Res Ethics 2017
18
A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.
Ellen W Clayton, Colin M Halverson, Nila A Sathe, Bradley A Malin. PLoS One 2018
Ellen W Clayton, Colin M Halverson, Nila A Sathe, Bradley A Malin. PLoS One 2018
7
Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear.
Jeffrey Peppercorn, Eric Campbell, Steve Isakoff, Nora K Horick, Julia Rabin, Katharine Quain, Lecia V Sequist, Aditya Bardia, Deborah Collyar, Fay Hlubocky,[...]. Oncologist 2020
Jeffrey Peppercorn, Eric Campbell, Steve Isakoff, Nora K Horick, Julia Rabin, Katharine Quain, Lecia V Sequist, Aditya Bardia, Deborah Collyar, Fay Hlubocky,[...]. Oncologist 2020
50
Routes for breaching and protecting genetic privacy.
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
Yaniv Erlich, Arvind Narayanan. Nat Rev Genet 2014
7
Public perspectives regarding data-sharing practices in genomics research.
S B Haga, J O'Daniel. Public Health Genomics 2011
S B Haga, J O'Daniel. Public Health Genomics 2011
7
Using Electronic Health Records for Population Health Research: A Review of Methods and Applications.
Joan A Casey, Brian S Schwartz, Walter F Stewart, Nancy E Adler. Annu Rev Public Health 2016
Joan A Casey, Brian S Schwartz, Walter F Stewart, Nancy E Adler. Annu Rev Public Health 2016
7
Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial.
Christopher A Harle, Elizabeth H Golembiewski, Kiarash P Rahmanian, Babette Brumback, Janice L Krieger, Kenneth W Goodman, Arch G Mainous, Ray E Moseley. J Am Med Inform Assoc 2019
Christopher A Harle, Elizabeth H Golembiewski, Kiarash P Rahmanian, Babette Brumback, Janice L Krieger, Kenneth W Goodman, Arch G Mainous, Ray E Moseley. J Am Med Inform Assoc 2019
18
Patients' attitudes towards sharing their health information.
Richard Whiddett, Inga Hunter, Judith Engelbrecht, Jocelyn Handy. Int J Med Inform 2006
Richard Whiddett, Inga Hunter, Judith Engelbrecht, Jocelyn Handy. Int J Med Inform 2006
7
Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.
Yann Joly, Gratien Dalpé, Derek So, Stanislav Birko. PLoS One 2015
Yann Joly, Gratien Dalpé, Derek So, Stanislav Birko. PLoS One 2015
8
Patients' consent preferences for research uses of information in electronic medical records: interview and survey data.
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
Donald J Willison, Karim Keshavjee, Kalpana Nair, Charlie Goldsmith, Anne M Holbrook. BMJ 2003
7
Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?
Donald J Willison, Valerie Steeves, Cathy Charles, Lisa Schwartz, Jennifer Ranford, Gina Agarwal, Ji Cheng, Lehana Thabane. BMC Med Ethics 2009
Donald J Willison, Valerie Steeves, Cathy Charles, Lisa Schwartz, Jennifer Ranford, Gina Agarwal, Ji Cheng, Lehana Thabane. BMC Med Ethics 2009
7
Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
Anna Middleton, Richard Milne, Mohamed A Almarri, Shamim Anwer, Jerome Atutornu, Elena E Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Christine Critchley,[...]. Am J Hum Genet 2020
10
Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.
Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten,[...]. Genet Med 2019
Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten,[...]. Genet Med 2019
12
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies.
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson, Sarah Cunningham-Burley. BMC Med Ethics 2016
7
Patients' and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence.
Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert, Ghislaine van Thiel. J Med Ethics 2022
Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert, Ghislaine van Thiel. J Med Ethics 2022
7
Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era.
Stephen J O'Brien. Annu Rev Genomics Hum Genet 2009
Stephen J O'Brien. Annu Rev Genomics Hum Genet 2009
7
Mental health professionals' perceptions on patients control of data sharing.
Julia Ivanova, Adela Grando, Anita Murcko, Michael Saks, Mary Jo Whitfield, Christy Dye, Darwyn Chern. Health Informatics J 2020
Julia Ivanova, Adela Grando, Anita Murcko, Michael Saks, Mary Jo Whitfield, Christy Dye, Darwyn Chern. Health Informatics J 2020
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The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
Michelle M Mello, Leslie E Wolf. N Engl J Med 2010
3
Data Sharing: An Ethical and Scientific Imperative.
Howard Bauchner, Robert M Golub, Phil B Fontanarosa. JAMA 2016
Howard Bauchner, Robert M Golub, Phil B Fontanarosa. JAMA 2016
3
Public attitudes about health information technology, and its relationship to health care quality, costs, and privacy.
Daniel S Gaylin, Adil Moiduddin, Shamis Mohamoud, Katie Lundeen, Jennifer A Kelly. Health Serv Res 2011
Daniel S Gaylin, Adil Moiduddin, Shamis Mohamoud, Katie Lundeen, Jennifer A Kelly. Health Serv Res 2011
3
"What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project.
Amy Schulz, Cleopatra Caldwell, Sarah Foster. Health Educ Behav 2003
Amy Schulz, Cleopatra Caldwell, Sarah Foster. Health Educ Behav 2003
3
3
The battle for ethical AI at the world's biggest machine-learning conference.
Elizabeth Gibney. Nature 2020
Elizabeth Gibney. Nature 2020
10
Implementing Machine Learning in Health Care - Addressing Ethical Challenges.
Danton S Char, Nigam H Shah, David Magnus. N Engl J Med 2018
Danton S Char, Nigam H Shah, David Magnus. N Engl J Med 2018
3
Three approaches to qualitative content analysis.
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
Hsiu-Fang Hsieh, Sarah E Shannon. Qual Health Res 2005
3
Family perspectives on integrated child health information systems.
Terry Marie Hastings. J Public Health Manag Pract 2004
Terry Marie Hastings. J Public Health Manag Pract 2004
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'Nothing is really safe': a focus group study on the processes of anonymizing and sharing of health data for research purposes.
Gill Haddow, Ann Bruce, Shiva Sathanandam, Jeremy C Wyatt. J Eval Clin Pract 2011
Gill Haddow, Ann Bruce, Shiva Sathanandam, Jeremy C Wyatt. J Eval Clin Pract 2011
4
The limitations of "vulnerability" as a protection for human research participants.
Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler, Jeremy Sugarman. Am J Bioeth 2004
Carol Levine, Ruth Faden, Christine Grady, Dale Hammerschmidt, Lisa Eckenwiler, Jeremy Sugarman. Am J Bioeth 2004
3
Social licence and the general public's attitudes toward research based on linked administrative health data: a qualitative study.
P Alison Paprica, Magda Nunes de Melo, Michael J Schull. CMAJ Open 2019
P Alison Paprica, Magda Nunes de Melo, Michael J Schull. CMAJ Open 2019
6
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.