Emma C Hitchcock, Causes Study, Alison M Elliott. Mol Genet Genomic Med 2020
Times Cited: 4
Times Cited: 4
Times Cited
Times Co-cited
Similarity
The importance of genetic counselling in genome-wide sequencing.
Alison M Elliott, Jan M Friedman. Nat Rev Genet 2018
Alison M Elliott, Jan M Friedman. Nat Rev Genet 2018
50
Parents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing.
Karen C Li, Patricia H Birch, Bernard M Garrett, Maura MacPhee, Shelin Adam, Jan M Friedman. J Nurs Scholarsh 2016
Karen C Li, Patricia H Birch, Bernard M Garrett, Maura MacPhee, Shelin Adam, Jan M Friedman. J Nurs Scholarsh 2016
50
Understanding the Psychosocial Effects of WES Test Results on Parents of Children with Rare Diseases.
Lotte Krabbenborg, L E L M Vissers, J Schieving, T Kleefstra, E J Kamsteeg, J A Veltman, M A Willemsen, S Van der Burg. J Genet Couns 2016
Lotte Krabbenborg, L E L M Vissers, J Schieving, T Kleefstra, E J Kamsteeg, J A Veltman, M A Willemsen, S Van der Burg. J Genet Couns 2016
50
Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.
Allyn McConkie Rosell, Loren D M Pena, Kelly Schoch, Rebecca Spillmann, Jennifer Sullivan, Stephen R Hooper, Yong-Hui Jiang, Nicolas Mathey-Andrews, David B Goldstein, Vandana Shashi. J Genet Couns 2016
Allyn McConkie Rosell, Loren D M Pena, Kelly Schoch, Rebecca Spillmann, Jennifer Sullivan, Stephen R Hooper, Yong-Hui Jiang, Nicolas Mathey-Andrews, David B Goldstein, Vandana Shashi. J Genet Couns 2016
50
Factors complicating the informed consent process for whole exome sequencing in neonatal and pediatic intensive care units.
Callie J Diamonstein. J Genet Couns 2019
Callie J Diamonstein. J Genet Couns 2019
50
Alone in a Crowd? Parents of Children with Rare Diseases' Experiences of Navigating the Healthcare System.
Jennifer Baumbusch, Samara Mayer, Isabel Sloan-Yip. J Genet Couns 2018
Jennifer Baumbusch, Samara Mayer, Isabel Sloan-Yip. J Genet Couns 2018
50
Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.
Stacey Pereira, Jill Oliver Robinson, Amanda M Gutierrez, Devan K Petersen, Rebecca L Hsu, Caroline H Lee, Talia S Schwartz, Ingrid A Holm, Alan H Beggs, Robert C Green,[...]. Pediatrics 2019
Stacey Pereira, Jill Oliver Robinson, Amanda M Gutierrez, Devan K Petersen, Rebecca L Hsu, Caroline H Lee, Talia S Schwartz, Ingrid A Holm, Alan H Beggs, Robert C Green,[...]. Pediatrics 2019
50
Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.
Casie A Genetti, Talia S Schwartz, Jill O Robinson, Grace E VanNoy, Devan Petersen, Stacey Pereira, Shawn Fayer, Hayley A Peoples, Pankaj B Agrawal, Wendi N Betting,[...]. Genet Med 2019
Casie A Genetti, Talia S Schwartz, Jill O Robinson, Grace E VanNoy, Devan Petersen, Stacey Pereira, Shawn Fayer, Hayley A Peoples, Pankaj B Agrawal, Wendi N Betting,[...]. Genet Med 2019
50
New developmental syndromes: Understanding the family experience.
Cara N Inglese, Alison M Elliott, Anna Lehman. J Genet Couns 2019
Cara N Inglese, Alison M Elliott, Anna Lehman. J Genet Couns 2019
50
Genetic counseling considerations with rapid genome-wide sequencing in a neonatal intensive care unit.
Emma E Smith, Christèle du Souich, Nick Dragojlovic, Alison M Elliott. J Genet Couns 2019
Emma E Smith, Christèle du Souich, Nick Dragojlovic, Alison M Elliott. J Genet Couns 2019
50
Moving Forward on Consent Practices in Australia.
Rebekah E McWhirter, Lisa Eckstein. J Bioeth Inq 2018
Rebekah E McWhirter, Lisa Eckstein. J Bioeth Inq 2018
25
Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children.
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
J C Sapp, D Dong, C Stark, L E Ivey, G Hooker, L G Biesecker, B B Biesecker. Clin Genet 2014
25
Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators.
Rhonda G Kost, Stephen M Poppel, Barry S Coller. J Clin Transl Sci 2017
Rhonda G Kost, Stephen M Poppel, Barry S Coller. J Clin Transl Sci 2017
25
Caregivers' perception of and experience with variants of uncertain significance from whole exome sequencing for children with undiagnosed conditions.
Xin Li, Rachel Nusbaum, Constance Smith-Hicks, Leila Jamal, Shannan Dixon, Sonal Mahida. J Genet Couns 2019
Xin Li, Rachel Nusbaum, Constance Smith-Hicks, Leila Jamal, Shannan Dixon, Sonal Mahida. J Genet Couns 2019
25
Decision aids for people facing health treatment or screening decisions.
Dawn Stacey, France Légaré, Krystina Lewis, Michael J Barry, Carol L Bennett, Karen B Eden, Margaret Holmes-Rovner, Hilary Llewellyn-Thomas, Anne Lyddiatt, Richard Thomson,[...]. Cochrane Database Syst Rev 2017
Dawn Stacey, France Légaré, Krystina Lewis, Michael J Barry, Carol L Bennett, Karen B Eden, Margaret Holmes-Rovner, Hilary Llewellyn-Thomas, Anne Lyddiatt, Richard Thomson,[...]. Cochrane Database Syst Rev 2017
25
Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention.
Laura M Beskow, Li Lin, Carrie B Dombeck, Emily Gao, Kevin P Weinfurt. Genet Med 2017
Laura M Beskow, Li Lin, Carrie B Dombeck, Emily Gao, Kevin P Weinfurt. Genet Med 2017
25
Informed consent for exome sequencing in diagnostics: exploring first experiences and views of professionals and patients.
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
T Rigter, C J A van Aart, M W Elting, Q Waisfisz, M C Cornel, L Henneman. Clin Genet 2014
25
The cost trajectory of the diagnostic care pathway for children with suspected genetic disorders.
Nick Dragojlovic, Clara D M van Karnebeek, Aisha Ghani, Dallas Genereaux, Ellen Kim, Patricia Birch, Alison M Elliott, Jan M Friedman, Larry D Lynd. Genet Med 2020
Nick Dragojlovic, Clara D M van Karnebeek, Aisha Ghani, Dallas Genereaux, Ellen Kim, Patricia Birch, Alison M Elliott, Jan M Friedman, Larry D Lynd. Genet Med 2020
25
Evidence-Based Strategies for Shortening Informed Consent Forms in Clinical Research.
Amy Corneli, Emily Namey, Monique P Mueller, Jenae Tharaldson, Steve Sortijas, Thomas Grey, Jeremy Sugarman. J Empir Res Hum Res Ethics 2017
Amy Corneli, Emily Namey, Monique P Mueller, Jenae Tharaldson, Steve Sortijas, Thomas Grey, Jeremy Sugarman. J Empir Res Hum Res Ethics 2017
25
Simplifying informed consent for biorepositories: stakeholder perspectives.
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet Med 2010
Laura M Beskow, Joëlle Y Friedman, N Chantelle Hardy, Li Lin, Kevin P Weinfurt. Genet Med 2010
25
Assessing an Interactive Online Tool to Support Parents' Genomic Testing Decisions.
Shelin Adam, Patricia H Birch, Rachel R Coe, Nick Bansback, Adrian L Jones, Mary B Connolly, Michelle K Demos, Eric B Toyota, Matthew J Farrer, Jan M Friedman. J Genet Couns 2018
Shelin Adam, Patricia H Birch, Rachel R Coe, Nick Bansback, Adrian L Jones, Mary B Connolly, Michelle K Demos, Eric B Toyota, Matthew J Farrer, Jan M Friedman. J Genet Couns 2018
25
From the Patient Perspective, Consent Forms Fall Short of Providing Information to Guide Decision Making.
Christine J Manta, Jacqueline Ortiz, Benjamin W Moulton, Seema S Sonnad. J Patient Saf 2021
Christine J Manta, Jacqueline Ortiz, Benjamin W Moulton, Seema S Sonnad. J Patient Saf 2021
25
Development of a consent resource for genomic data sharing in the clinical setting.
Erin Rooney Riggs, Danielle R Azzariti, Annie Niehaus, Scott R Goehringer, Erin M Ramos, Laura Lyman Rodriguez, Bartha Knoppers, Heidi L Rehm, Christa Lese Martin. Genet Med 2019
Erin Rooney Riggs, Danielle R Azzariti, Annie Niehaus, Scott R Goehringer, Erin M Ramos, Laura Lyman Rodriguez, Bartha Knoppers, Heidi L Rehm, Christa Lese Martin. Genet Med 2019
25
A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study.
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
Erin Turbitt, Paola P Chrysostomou, Holly L Peay, Alexis R Heidlebaugh, Lawrence M Nelson, Barbara B Biesecker. Eur J Hum Genet 2018
25
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing.
. Genet Med 2015
. Genet Med 2015
25
The challenge of consent in clinical genome-wide testing.
Katherine Burke, Angus Clarke. Arch Dis Child 2016
Katherine Burke, Angus Clarke. Arch Dis Child 2016
25
Challenges to informed consent for exome sequencing: A best-worst scaling experiment.
Rachel H Gore, John F P Bridges, Julie S Cohen, Barbara B Biesecker. J Genet Couns 2019
Rachel H Gore, John F P Bridges, Julie S Cohen, Barbara B Biesecker. J Genet Couns 2019
33
IRB perspectives on the return of individual results from genomic research.
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
Lynn G Dressler, Sondra Smolek, Roselle Ponsaran, Janell M Markey, Helene Starks, Nancy Gerson, Susan Lewis, Nancy Press, Eric Juengst, Georgia L Wiesner. Genet Med 2012
25
The Genomic Consultation Service: A clinical service designed to improve patient selection for genome-wide sequencing in British Columbia.
Alison M Elliott, Christèle du Souich, Shelin Adam, Nick Dragojlovic, Clara van Karnebeek, Tanya N Nelson, Anna Lehman, Larry D Lynd, Jan M Friedman. Mol Genet Genomic Med 2018
Alison M Elliott, Christèle du Souich, Shelin Adam, Nick Dragojlovic, Clara van Karnebeek, Tanya N Nelson, Anna Lehman, Larry D Lynd, Jan M Friedman. Mol Genet Genomic Med 2018
25
The Limits of Informed Consent for an Overwhelmed Patient: Clinicians' Role in Protecting Patients and Preventing Overwhelm.
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
Johan Bester, Cristie M Cole, Eric Kodish. AMA J Ethics 2016
25
Paving the way to a more effective informed consent process: Recommendations from the Clinical Trials Transformation Initiative.
Jennifer Lentz, Michele Kennett, Jane Perlmutter, Annemarie Forrest. Contemp Clin Trials 2016
Jennifer Lentz, Michele Kennett, Jane Perlmutter, Annemarie Forrest. Contemp Clin Trials 2016
25
How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.
Sandi Dheensa, Gillian Crawford, Claire Salter, Michael Parker, Angela Fenwick, Anneke Lucassen. Fam Cancer 2018
Sandi Dheensa, Gillian Crawford, Claire Salter, Michael Parker, Angela Fenwick, Anneke Lucassen. Fam Cancer 2018
25
The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
Gail E Henderson, Susan M Wolf, Kristine J Kuczynski, Steven Joffe, Richard R Sharp, D Williams Parsons, Bartha M Knoppers, Joon-Ho Yu, Paul S Appelbaum. J Law Med Ethics 2014
25
Public participation in genomics research in the Netherlands: validating a measurement scale.
Anne M Dijkstra, Jan M Gutteling, J A A Swart, Nicolien F Wieringa, Henny J van Derwindt, Erwin R Seydel. Public Underst Sci 2012
Anne M Dijkstra, Jan M Gutteling, J A A Swart, Nicolien F Wieringa, Henny J van Derwindt, Erwin R Seydel. Public Underst Sci 2012
25
"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
Ashley N Tomlinson, Debra Skinner, Denise L Perry, Sarah R Scollon, Myra I Roche, Barbara A Bernhardt. J Genet Couns 2016
25
The cost and diagnostic yield of exome sequencing for children with suspected genetic disorders: a benchmarking study.
Nick Dragojlovic, Alison M Elliott, Shelin Adam, Clara van Karnebeek, Anna Lehman, Jill C Mwenifumbo, Tanya N Nelson, Christèle du Souich, Jan M Friedman, Larry D Lynd. Genet Med 2018
Nick Dragojlovic, Alison M Elliott, Shelin Adam, Clara van Karnebeek, Anna Lehman, Jill C Mwenifumbo, Tanya N Nelson, Christèle du Souich, Jan M Friedman, Larry D Lynd. Genet Med 2018
25
Views of clinical trial participants on the readability and their understanding of informed consent documents.
Rita Somers, Cornelius Van Staden, Francois Steffens. AJOB Empir Bioeth 2017
Rita Somers, Cornelius Van Staden, Francois Steffens. AJOB Empir Bioeth 2017
25
Participation in genetic testing research varies by social group.
Sharon Hensley Alford, Colleen M McBride, Robert J Reid, Eric B Larson, Andreas D Baxevanis, Lawrence C Brody. Public Health Genomics 2011
Sharon Hensley Alford, Colleen M McBride, Robert J Reid, Eric B Larson, Andreas D Baxevanis, Lawrence C Brody. Public Health Genomics 2011
25
Improving quality of the informed consent process: Developing an easy-to-read, multimodal, patient-centered format in a real-world setting.
Karen A Lindsley. Patient Educ Couns 2019
Karen A Lindsley. Patient Educ Couns 2019
25
Prioritizing diversity in human genomics research.
Lucia A Hindorff, Vence L Bonham, Lawrence C Brody, Margaret E C Ginoza, Carolyn M Hutter, Teri A Manolio, Eric D Green. Nat Rev Genet 2018
Lucia A Hindorff, Vence L Bonham, Lawrence C Brody, Margaret E C Ginoza, Carolyn M Hutter, Teri A Manolio, Eric D Green. Nat Rev Genet 2018
25
Variation among Consent Forms for Clinical Whole Exome Sequencing.
Sara A Fowler, Carol J Saunders, Mark A Hoffman. J Genet Couns 2018
Sara A Fowler, Carol J Saunders, Mark A Hoffman. J Genet Couns 2018
25
Model consent clauses for rare disease research.
Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid,[...]. BMC Med Ethics 2019
Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid,[...]. BMC Med Ethics 2019
25
Perspectives of IRB chairs on the informed consent process.
Eugene I Kane, Joseph J Gallo. AJOB Empir Bioeth 2017
Eugene I Kane, Joseph J Gallo. AJOB Empir Bioeth 2017
25
Randomization to standard and concise informed consent forms: development of evidence-based consent practices.
Mary E Enama, Zonghui Hu, Ingelise Gordon, Pamela Costner, Julie E Ledgerwood, Christine Grady. Contemp Clin Trials 2012
Mary E Enama, Zonghui Hu, Ingelise Gordon, Pamela Costner, Julie E Ledgerwood, Christine Grady. Contemp Clin Trials 2012
25
Readability of informed consent forms for whole-exome and whole-genome sequencing.
Emilia Niemiec, Danya F Vears, Pascal Borry, Heidi Carmen Howard. J Community Genet 2018
Emilia Niemiec, Danya F Vears, Pascal Borry, Heidi Carmen Howard. J Community Genet 2018
25
Longer consent forms for clinical trials compromise patient understanding: so why are they lengthening?
Emma Beardsley, Michael Jefford, Linda Mileshkin. J Clin Oncol 2007
Emma Beardsley, Michael Jefford, Linda Mileshkin. J Clin Oncol 2007
25
The evolution of consent forms for research: a quarter century of changes.
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
Ilene Albala, Margaret Doyle, Paul S Appelbaum. IRB 2010
25
Simplification improves understanding of informed consent information in clinical trials regardless of health literacy level.
Eun Jin Kim, Su Hyun Kim. Clin Trials 2015
Eun Jin Kim, Su Hyun Kim. Clin Trials 2015
25
Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.