A citation-based method for searching scientific literature

Lotte Kleinendorst, Lieke M van den Heuvel, Lidewij Henneman, Mieke M van Haelst. Eur J Hum Genet 2020
Times Cited: 1







List of co-cited articles
articles co-cited >1



Times Cited
  Times     Co-cited
Similarity



The value of diagnostic testing for parents of children with rare genetic diseases.
Deborah A Marshall, Karen V MacDonald, Sebastian Heidenreich, Taila Hartley, Francois P Bernier, Meredith K Gillespie, Brenda McInnes, A Micheil Innes, Christine M Armour, Kym M Boycott. Genet Med 2019
13
100

Mining Facebook Data of People with Rare Diseases: A Content-Based and Temporal Analysis.
Laia Subirats, Natalia Reguera, Antonio Miguel Bañón, Beni Gómez-Zúñiga, Julià Minguillón, Manuel Armayones. Int J Environ Res Public Health 2018
5
100

Assessment of the Information Sources and Interest in Research Collaboration Among Individuals with Vascular Ehlers-Danlos Syndrome.
Sherene Shalhub, Liz Sage, John Demasi, Stephanie E Wallace, Daphne S Fulton, Lara Bloom, Martha Driessnack, Peter H Byers. Ann Vasc Surg 2020
4
100

Perspectives of Patients With Dermatofibrosarcoma Protuberans on Diagnostic Delays, Surgical Outcomes, and Nonprotuberance.
Marjorie Parker David, Ashley Funderburg, James P Selig, Rebecca Brown, Pip M Caliskan, Lee Cove, Gayle Dicker, Lori Hoffman, Tammi Horne, Jerad M Gardner. JAMA Netw Open 2019
8
100

Health-related quality of life and symptom burden of epithelioid hemangioendothelioma patients: a global patient-driven Facebook study in a very rare malignancy.
Marije E Weidema, Olga Husson, Winette T A van der Graaf, Hugh Leonard, Belle H de Rooij, Lisa Hartle DeYoung, Ingrid M E Desar, Lonneke V van de Poll-Franse. Acta Oncol 2020
4
100

Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery.
Danielle Arigo, Sherry Pagoto, Lisa Carter-Harris, Sarah E Lillie, Camille Nebeker. Digit Health 2018
45
100


Cholesteatoma and family history: An international survey.
Rachael Collins, Ngan Hong Ta, Barbara A Jennings, Peter Prinsley, Carl M Philpott, Nick Steel, Allan Clark. Clin Otolaryngol 2020
1
100


Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information.
Ruth H Keogh, Diana Bilton, Rebecca Cosgriff, Dominic Kavanagh, Oliver Rayner, Philip M Sedgwick. PLoS One 2019
6
100

Analysis of a parent-initiated social media campaign for Hirschsprung's disease.
Kristy Wittmeier, Cindy Holland, Kendall Hobbs-Murison, Elizabeth Crawford, Chad Beauchamp, Brodie Milne, Melanie Morris, Richard Keijzer. J Med Internet Res 2014
13
100

Interventions Using Social Media for Cancer Prevention and Management: A Systematic Review.
Claire Jungyoun Han, Young Ji Lee, George Demiris. Cancer Nurs 2018
16
100

Taking an antiracist posture in scientific publications in human genetics and genomics.
Kyle B Brothers, Robin L Bennett, Mildred K Cho. Genet Med 2021
3
100

The experience of families with children with trisomy 13 and 18 in social networks.
Annie Janvier, Barbara Farlow, Benjamin S Wilfond. Pediatrics 2012
122
100



New onset transverse myelitis diagnostic accuracy and patient experiences.
Benjamin M Greenberg, Chitra Krishnan, Lana Harder. Mult Scler Relat Disord 2019
3
100

Health screening behaviors among adults with hereditary hemorrhagic telangiectasia in North America.
Melanie Baxter, Lori Erby, Debra Roter, Barbara A Bernhardt, Peter Terry, Alan Guttmacher. Genet Med 2017
2
100

The phenotypic spectrum of proximal 6q deletions based on a large cohort derived from social media and literature reports.
Aafke Engwerda, Barbara Frentz, A Lya den Ouden, Boudien C T Flapper, Morris A Swertz, Erica H Gerkes, Mirjam Plantinga, Trijnie Dijkhuizen, Conny M A van Ravenswaaij-Arts. Eur J Hum Genet 2018
16
100

Comparative Treatment Outcomes for Patients With Idiopathic Subglottic Stenosis.
Alexander Gelbard, Catherine Anderson, Lynne D Berry, Milan R Amin, Michael S Benninger, Joel H Blumin, Jonathan M Bock, Paul C Bryson, Paul F Castellanos, Sheau-Chiann Chen,[...]. JAMA Otolaryngol Head Neck Surg 2020
25
100

Beyond traditional advertisements: leveraging Facebook's social structures for research recruitment.
Rupa S Valdez, Thomas M Guterbock, Morgan J Thompson, Jeremiah D Reilly, Hannah K Menefee, Maria S Bennici, Ishan C Williams, Deborah L Rexrode. J Med Internet Res 2014
28
100

Public Perception of a Normal Head Shape in Children With Sagittal Craniosynostosis.
Sultan Z Al-Shaqsi, Ahsan Rai, Christopher Forrest, John Phillips. J Craniofac Surg 2020
3
100

3
100

A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment.
Janelle Applequist, Cristina Burroughs, Artemio Ramirez, Peter A Merkel, Marc E Rothenberg, Bruce Trapnell, Robert J Desnick, Mustafa Sahin, Jeffrey P Krischer. BMC Med Res Methodol 2020
5
100

Fontan-associated protein-losing enteropathy and plastic bronchitis.
Kurt R Schumacher, Kathleen A Stringer, Janet E Donohue, Sunkyung Yu, Ashley Shaver, Regine L Caruthers, Brian J Zikmund-Fisher, Carlen Fifer, Caren Goldberg, Mark W Russell. J Pediatr 2015
44
100

Financial burden is associated with worse health-related quality of life in adults with multiple endocrine neoplasia type 1.
Benjamin J Peipert, Sneha Goswami, Irene Helenowski, Susan E Yount, Cord Sturgeon. Surgery 2017
9
100


Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe.
Jeana Frost, Sally Okun, Timothy Vaughan, James Heywood, Paul Wicks. J Med Internet Res 2011
82
100


Positive Attitudes and Therapeutic Misconception Around Hypothetical Clinical Trial Participation in the Huntington's Disease Community.
Kristina Cotter, Carly E Siskind, Sharon J Sha, Andrea K Hanson-Kahn. J Huntingtons Dis 2019
4
100

Quality of Care for Huntington's Disease in the United States: Findings from a National Survey of Patients and Caregivers.
Karen E Anderson, Jack Griffin, Al Kinel, Abdul R Shaikh, Temitope Olofintuyi, Stevan Ramirez, Joni Steinman, George J Yohrling, Shari Kinel. J Huntingtons Dis 2019
2
100

Rare Cancers and Social Media: Analysis of Twitter Metrics in the First 2 Years of a Rare-Disease Community for Myeloproliferative Neoplasms on Social Media-#MPNSM.
Naveen Pemmaraju, Audun Utengen, Vikas Gupta, Jean-Jacques Kiladjian, Ruben Mesa, Michael A Thompson. Curr Hematol Malig Rep 2017
12
100

Disease-specific hashtags and the creation of Twitter medical communities in hematology and oncology.
Naveen Pemmaraju, Michael A Thompson, Muzaffar Qazilbash. Semin Hematol 2017
16
100

Use of social media to conduct a cross-sectional epidemiologic and quality of life survey of patients with neuroendocrine carcinoma of the cervix: a feasibility study.
Tarrik Zaid, Jennifer Burzawa, Karen Basen-Engquist, Diane C Bodurka, Lois M Ramondetta, Jubilee Brown, Michael Frumovitz. Gynecol Oncol 2014
25
100

An online monogenic diabetes discussion group: supporting families and fueling new research.
Marie E Perrone, David Carmody, Louis H Philipson, Siri Atma W Greeley. Transl Res 2015
4
100

Impact of psychiatric comorbidity and cognitive deficit on function in 22q11.2 deletion syndrome.
James J Yi, Monica E Calkins, Sunny X Tang, Christian G Kohler, Donna M McDonald-McGinn, Elaine H Zackai, Adam P Savitt, Warren B Bilker, Daneen A Whinna, Margaret C Souders,[...]. J Clin Psychiatry 2015
18
100

Rare diseases epidemiology research.
Manuel Posada de la Paz, Ana Villaverde-Hueso, Verónica Alonso, Sándor János, Oscar Zurriaga, Marina Pollán, Ignacio Abaitua-Borda. Adv Exp Med Biol 2010
38
100

Analysis of First-Year Twitter Metrics of a Rare Disease Community for Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) on Social Media: #BPDCN.
Naveen Pemmaraju, Audun Utengen, Vikas Gupta, Michael A Thompson, Andrew A Lane. Curr Hematol Malig Rep 2017
11
100

Microtia and Social Media: Patient Versus Physician Perspective of Quality of Information.
Sarvnaz Sepehripour, Ann Louise McDermott, Mark Sheldon Lloyd. J Craniofac Surg 2017
5
100

Use of social media to assess the effectiveness of vagal nerve stimulation in Dravet syndrome: A caregiver's perspective.
Rushna Ali, Mona Elsayed, Manpreet Kaur, Ellen Air, Naznin Mahmood, Jules Constantinou, Jason Schwalb. J Neurol Sci 2017
10
100

YouTube as a source of information about retinitis pigmentosa.
G Guthrie, R M Davies, C K Fleming, A C Browning. Eye (Lond) 2014
8
100

An Electronic Questionnaire for Liver Assessment in Congenital Disorders of Glycosylation (LeQCDG): A Patient-Centered Study.
D Marques-da-Silva, R Francisco, V Dos Reis Ferreira, L Forbat, R Lagoa, P A Videira, P Witters, J Jaeken, D Cassiman. JIMD Rep 2019
5
100


What happens when N = 1 and you want plus 1?
Matthew Might, Cristina Casanova Might. Prenat Diagn 2017
8
100

When Women with Cystic Fibrosis Become Mothers: Psychosocial Impact and Adjustments.
Sophie L Cammidge, Alistair J A Duff, Gary J Latchford, Christine Etherington. Pulm Med 2016
8
100

How can we relieve gastrointestinal symptoms in people with cystic fibrosis? An international qualitative survey.
Sherie Smith, Nicola Rowbotham, Gwyneth Davies, Katie Gathercole, Sarah J Collins, Zoe Elliott, Sophie Herbert, Lorna Allen, Christabella Ng, Alan Smyth. BMJ Open Respir Res 2020
1
100

The significance of the clavicle on shoulder girdle function.
Alexander Van Tongel, Iwein Piepers, Lieven De Wilde. J Shoulder Elbow Surg 2015
3
100


The epileptology of Koolen-de Vries syndrome: Electro-clinico-radiologic findings in 31 patients.
Kenneth A Myers, Simone A Mandelstam, Georgia Ramantani, Elisabeth J Rushing, Bert B de Vries, David A Koolen, Ingrid E Scheffer. Epilepsia 2017
8
100


Co-cited is the co-citation frequency, indicating how many articles cite the article together with the query article. Similarity is the co-citation as percentage of the times cited of the query article or the article in the search results, whichever is the lowest. These numbers are calculated for the last 100 citations when articles are cited more than 100 times.